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PHOENIXVILLE BAKE SALE ON MAY 3, 2014

At the Phoenixville Farmers’ Market on May 3, 2014 from 9am- 1pm, there was a special bake sale and fundraiser for DTRF. RFA Team Mighty Max’s Angels raised over $350 on behalf of the Foundation! Thank you to Kathy, Max, and Edie Veeck who ran the bake sale. Also, they were so happy to welcome […]

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FIRST ANNUAL DESMOID DASH ON OCTOBER 12, 2013 IN MENDOTA HEIGHTS, MN

The 1st Annual Desmoid Dash was a huge success with over 300 runners/walkers and over $52,000 raised for DTRF (Desmoid Tumor Research Foundation)!  The efforts of the multi-talented Desmoid Dash committee of 20 somethings, headed up by Matt Zechmann’s younger sister, Nicole, were rewarded with uplifting energy and support.  The day started with a few […]

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2013 HARVEST FOR A CURE

Check out the flyer for Harvest for a Cure, which took place in Chesapeake, VA on September 29th! With over 200 attendees, the event was a great success, with family and friends meeting their goal of raising $3,000! Pictures here!

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2013 KUTZTOWN FALL FESTIVAL

This special event, on September 21, 2013, was held at Kutztown Fairgrounds in Kutztown, PA, in support of DTRF and Austin’s Fibromatosis Research Fund. The Fall Festival included a Car & Motorcycle Show; Craft & Home Show booths; Food & Homemade Bake Sale; Children’s Entertainment & Crafts; Carnival Games; a Raffle, Silent Auction and more! […]

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2013 SOPHIE’S WALK FOR REED

Sophie began this walk last year as a way of honoring her dad who lost his battle with an abdominal Desmoid in April of 2010. Her 2nd annual walk took place in her neighborhood, Mission Hills, Kansas, on September 1st and raised just over $3,000! It was attended by neighbors, friends, parents and family, as well as classmates […]

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EVENING AT THE WEMBLEY CLUB

Benefitting the Desmoid Tumor Research Foundation (DTRF) August 24, 2013 from 5:00 pm – 10:00 pm Please join Faith Dalton for a fun filled evening at the Wembley Club in Chagrin Falls, Ohio! Located just 40 short minutes from Cleveland, Ohio the Wembley Club provides a family friendly environment on 10 beautiful acres. Your ticket […]

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FIRST ANNUAL UTAH SURVIVOR CELEBRATION ON AUGUST 10, 2013

At the Utah Survivor Celebration, DeAnn Sorenson and her volunteers focused just as much on the support of getting together as they did the fundraising. DeAnn states, “It was fantastic to meet each other to share stories and support. We had 5 desmoid survivors, 2 desmoid/FAP survivors and 2 FAP survivors.” They raised over $1200 […]

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2013 LAP4LIFE IN NEWBURGH, NEW YORK

June 22, 2013 marked the 5th annual Lap4Life event on Chadwick Lake in Newburgh, New York.  The event drew over 1,000 enthusiastic participants in a 4 mile run, walk and kids’ fun run.  Organized by Maddalena Casabianca-Reade, this event raises research funding and awareness for demoid tumors and organ transplants. Eleven years ago, at the […]

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2013 ANNUAL DTRF GOLF CLASSIC IN MAHWAH, NJ

On June 17, 2013, Richie and Nan Klein held a golf outing fundraiser for DTRF. It was a beautiful day at the Apple Ridge Country Club in Mahway, New Jersey. The 130 golfers vied for hole-in-one prizes of a Maserati, a Ford Mustang and a $50,000 hole. There were also many great raffle prizes and […]

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