lynneh, Author at Desmoid Tumor Research Foundation
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2018 DTRF Western Regional Patient Meeting

The DTRF Western Regional Patient Meeting convenes patients and family members in Salt Lake City for an afternoon of connecting with other desmoid tumor patients and participating in informative lectures and roundtables on desmoid tumors. Attendees will also have an opportunity to fundraise for the Foundation. Save the date to join us! Stay tuned for registration […]

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5th Annual Desmoid Dash on May 12, 2018

In the midwest and looking to connect with other patients/caregivers? Save the date for the 5th Annual Desmoid Dash at St. Thomas School on Saturday, May 12th. This 5K will take place the day before Mother’s Day.  Stay tuned for more details!

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Tucking for Tumors on November 28, 2017

Special thank you to Kelly Mercier and her hometown of Cary, North Carolina, for supporting research efforts by Tucking for Tumors! This event took place at 6:30 pm at Pure Barre at 1412 Village Market Pl, Morrisville, NC 27560. The suggested donation per person was $20.  Limited edition Tucking for Tumors shirts were for sale […]

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2nd Annual JoeStrong Volleyball Tournament

Special thank you to all who joined Joe Erickson for his volleyball tournament on October 21st in Austin, TX! Joe decided to fundraise as a virtual participant in RFA this year, since he wasn’t able to make it to Philadelphia for DTRF’s events.  Through the tournament and 12 basket charity raffle, this event raised over […]

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Phase I Trial for Tegavivint

 At our 11th DTRF Annual Patient Meeting in Philadelphia, we were pleased to have Beta Cat Pharmaceuticals’ Jon Northrup, Chief Executive Officer, and Casey Cunningham, Chief Medical Officer, present an outline of the planned clinical trial of Tegavivint, a new drug that directly interferes with beta-catenin stabilization. Targeting beta-catenin in this way may hold promise […]

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2017 Awareness through Artprize

September 2017 Location: Grand Rapids, MI   Artprize is an independently organized annual competition that takes place each fall for 19 days in Grand Rapids Michigan.  Monetary prizes are awarded by public vote as well as awards given by a jury of art experts.  Artists from many locations exhibit their art in various places throughout […]

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Exciting Update on Phase III Trial

 A new company named SpringWorks Therapeutics has been formed as a spinoff of Pfizer to focus on investigational therapies that hold significant promise for underserved populations.  SpringWorks will now take the gamma-secretase inhibitor that showed promising results in treating desmoid tumors in Phase I and Phase II trials, into a Phase III trial. Formerly known as PF-03084014, the […]

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2017 Annual Patient Meeting & Running for Answers 5K

Date: September 23 & 24, 2017 Location: Philadelphia, PA   The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes […]

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Sophie’s Walk for Reed on July 22, 2017

Sophie Hickok organized her 5th Annual Walk for Reed in memory of her father, Reed, who lost his battle against an abdominal desmoid in April 2010. This year, her walk will take place at the Sunken Garden in Mission Hills, Kansas. Sophie, along with her friends and family, raised over $5,000 this year! We are […]

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