lynneh, Author at Desmoid Tumor Research Foundation
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Tucking for Tumors Annual on November 28, 2017

Join Kelly Mercier and her hometown of Cary, North Carolina, as they support research efforts by Tucking for Tumors! This event will take place at 6:30 pm at Pure Barre at 1412 Village Market Pl, Morrisville, NC 27560. The suggested donation per person is $20.  Limited edition Tucking for Tumors shirts will be for sale […]

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2nd Annual JoeStrong Volleyball Tournament

Special thank you to all who joined Joe Erickson for his volleyball tournament on October 21st in Austin, TX! Joe decided to fundraise as a virtual participant in RFA this year, since he wasn’t able to make it to Philadelphia for DTRF’s events.  Through the tournament and 12 basket charity raffle, this event raised over […]

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Phase I Trial for Tegavivint

At our 12th DTRF Annual Patient Meeting in Philadelphia, we were pleased to have Beta Cat Pharmaceuticals’ Jon Northrup, Chief Executive Officer, and Casey Cunningham, Chief Medical Officer, present an outline of the planned clinical trial of Tegavivint, a new drug that directly interferes with beta-catenin stabilization. Targeting beta-catenin in this way may hold promise […]

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2017 Awareness through Artprize

September 2017 Location: Grand Rapids, MI   Artprize is an independently organized annual competition that takes place each fall for 19 days in Grand Rapids Michigan.  Monetary prizes are awarded by public vote as well as awards given by a jury of art experts.  Artists from many locations exhibit their art in various places throughout […]

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Exciting Update on Phase III Trial

 A new company named SpringWorks Therapeutics has been formed as a spinoff of Pfizer to focus on investigational therapies that hold significant promise for underserved populations.  SpringWorks will now take the gamma-secretase inhibitor that showed promising results in treating desmoid tumors in Phase I and Phase II trials, into a Phase III trial. Formerly known as PF-03084014, the […]

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2017 Annual Patient Meeting & Running for Answers 5K

Date: September 23 & 24, 2017 Location: Philadelphia, PA   The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes […]

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Sophie’s Walk for Reed on July 22, 2017

Sophie Hickok organized her 5th Annual Walk for Reed in memory of her father, Reed, who lost his battle against an abdominal desmoid in April 2010. This year, her walk will take place at the Sunken Garden in Mission Hills, Kansas. Sophie, along with her friends and family, raised over $5,000 this year! We are […]

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2017 Shuffle Out Cancer Event in Toronto

Date: July 19, 2017 Location: Toronto, Canada Special thank you to Emily Smith, who led a group of Sports & Event Marketing students in Toronto, Canada to organize a fundraiser for desmoid tumor research called Shuffle Out Cancer. This event was a fundraiser for the Desmoid Tumor Foundation of Canada (DFC). The event featured 3 […]

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2017 Lap4Life in Newburgh, NY

Date: June 17, 2017 Location: Newburgh, NY Congratulations to the Casabianca & Reade families, along with the entire community of Newburgh, NY for their participation in the 9th annual Lap4Life! June 17, Lap4Life took place on June 17, 2017 at Chadwick Lake Park, 1702 Route 300, Newburgh, NY. This community event included a 4 Mile Walk […]

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