lynneh, Author at Desmoid Tumor Research Foundation
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Phase I Trial for Tegavivint

At our 12th DTRF Annual Patient Meeting in Philadelphia, we were pleased to have Beta Cat Pharmaceuticals’ Jon Northrup, Chief Executive Officer, and Casey Cunningham, Chief Medical Officer, present an outline of the planned clinical trial of Tegavivint, a new drug that directly interferes with beta-catenin stabilization. Targeting beta-catenin in this way may hold promise […]

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2017 Awareness through Artprize

September 2017 Location: Grand Rapids, MI   Artprize is an independently organized annual competition that takes place each fall for 19 days in Grand Rapids Michigan.  Monetary prizes are awarded by public vote as well as awards given by a jury of art experts.  Artists from many locations exhibit their art in various places throughout […]

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Exciting Update on Phase III Trial

 A new company named SpringWorks Therapeutics has been formed as a spinoff of Pfizer to focus on investigational therapies that hold significant promise for underserved populations.  SpringWorks will now take the gamma-secretase inhibitor that showed promising results in treating desmoid tumors in Phase I and II trials, into a Phase III trial. Formerly known as PF-03084014, the drug […]

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Sophie’s Walk for Reed on July 22, 2017

Sophie Hickok organized her 5th Annual Walk for Reed in memory of her father, Reed, who lost his battle against an abdominal desmoid in April 2010. This year, her walk will take place at the Sunken Garden in Mission Hills, Kansas. Sophie, along with her friends and family, raised over $5,000 this year! We are […]

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2017 Shuffle Out Cancer Event in Toronto

Date: July 19, 2017 Location: Toronto, Canada Special thank you to Emily Smith, who led a group of Sports & Event Marketing students in Toronto, Canada to organize a fundraiser for desmoid tumor research called Shuffle Out Cancer. The event featured 3 interactive games: bocce ball, shuffleboard and crokinole. Attendees were welcome to enjoy food […]

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2017 Lap4Life in Newburgh, NY

Date: June 17, 2017 Location: Newburgh, NY Congratulations to the Casabianca & Reade families, along with the entire community of Newburgh, NY for their participation in the 9th annual Lap4Life! June 17, Lap4Life took place on June 17, 2017 at Chadwick Lake Park, 1702 Route 300, Newburgh, NY. This community event included a 4 Mile Walk […]

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2017 DTRF Golf Outing


Date: June 12, 2017 Location: Tuxedo, NY Over 125 guests enjoyed DTRF’s second Golf Outing at the beautiful Tuxedo Club in Tuxedo, NY, on Monday, June 12th.  Afterwards, attendees enjoyed a cool breeze with dinner on Tuxedo Lake. All funds raised were donated to desmoid tumor research. Registration brochure here.    

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2017 Annual Patient Meeting & Running for Answers 5K

Date: September 23 & 24, 2017 Location: Philadelphia, PA   The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes […]

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Second Annual Tucking for Tumors

Date: November 29, 2016 Location: Morrisville, NC Dr. Kelly Mercier, DTRF grant recipient and desmoid tumor caregiver, is hosting the Second Annual Tucking for Tumors event on 11/29. Visit the event’s Facebook page for more information including location and silent auction items!  

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