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2017 Shuffle Out Cancer Event in Toronto

Date: July 19, 2017 Location: Toronto, Canada Special thank you to Emily Smith, who led a group of Sports & Event Marketing students in Toronto, Canada to organize a fundraiser for desmoid tumor research called Shuffle Out Cancer. This event was a fundraiser for the Desmoid Tumor Foundation of Canada (DFC). The event featured 3 […]

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2017 Lap4Life in Newburgh, NY

Date: June 17, 2017 Location: Newburgh, NY Congratulations to the Casabianca & Reade families, along with the entire community of Newburgh, NY for their participation in the 9th annual Lap4Life! June 17, Lap4Life took place on June 17, 2017 at Chadwick Lake Park, 1702 Route 300, Newburgh, NY. This community event included a 4 Mile Walk […]

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2017 DTRF Golf Outing


Date: June 12, 2017 Location: Tuxedo, NY Over 125 guests enjoyed DTRF’s second Golf Outing at the beautiful Tuxedo Club in Tuxedo, NY, on Monday, June 12th.  Afterwards, attendees enjoyed a cool breeze with dinner on Tuxedo Lake. All funds raised were donated to desmoid tumor research. Registration brochure here.    

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Second Annual Tucking for Tumors

Date: November 29, 2016 Location: Morrisville, NC Dr. Kelly Mercier, DTRF grant recipient and desmoid tumor caregiver, is hosting the Second Annual Tucking for Tumors event on 11/29. Visit the event’s Facebook page for more information including location and silent auction items!  

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Winter Market in Switzerland

Date: November 27, 2016 Location: Chalet Au Moulin, Switzerland Join the Barrell family on Sunday, November 27, at their Winter Market at Chalet Au Moulin in the Swiss Alps! Pick up thank you cards and stocking stuffers with 10% of all proceeds going to the DTRF.

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Second Annual Beer Pong fundraiser in NYC

Once again, Brittany Longenbach and Danielle Portnoy have joined forces to organize a beer pong at Brother Jimmy’s in Murray Hill from 12-3pm on 11/13. This event raised over $3,000! Special thanks to these ladies and everyone who participated!   Here’s a message from Brittany and Danielle prior to the event: As many of you know, […]

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Desmoid Tumour Foundation of Canada- DFC

A Canadian entity has been formed for the purpose of raising funds in Canada for desmoid tumor research called the Desmoid Tumour Foundation of Canada (DFC).  It has just received Canadian government approval of charitable status. The entity was established so Canadian donors would be able to make tax-deductible donations to support desmoid tumor research projects.  […]

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2016 Patient Meeting Presentations

Below you will find slides from some of the presentations at our September 24th Patient Meeting. Save the date for next year’s meeting on Saturday, September 23rd in Philadelphia.   Benjamin Alman, MD, Department Chair, Orthopedic Surgery, Duke University. Slide Presentation: “Collaboration for a Cure: what we’ve learned so far.” VIDEO of Patient Meeting Presentation   […]

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