lynneh, Author at Desmoid Tumor Research Foundation - Page 3 of 4

Paint for a Purpose on November 19, 2015

Survivor Whitney Gramm hosted an evening of fun and creativity on November 19th at 6:30 at The Axis (prior Hancock Efree Church), 2 Fairview Lane, Hancock, MN. Food, snacks and beverages were provided, along with a silent auction to raise funds for DTRF!  

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Vendor Bingo on March 20, 2016

Special thank you to Rochelle Miller and Corrine Conrad for organizing this event with their amazing volunteer committee which took place at the Kutztown Fire Company! This event benefited Austin’s Fibromatosis Research Foundation and DTRF!

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DTRF’s Patient Reported Outcome (PRO) Tool

We are thrilled to announce that the groundbreaking DTRF Patient Reported Outcome (PRO) tool is ready for implementation in a clinical trial. The tool, funded by DTRF, has been developed in collaboration with Memorial Sloan Kettering Cancer Center and Quintiles, a leading PRO company. The tool consists of questionnaires designed to glean data on the […]

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Clinical Trials

Sorafenib DTRF has been advised that as of January 4th, the Nexavar/ Sorafenib Phase III clinical trial has met its accrual goal and stopped recruiting new patients. Current participants will continue with their treatment protocol.   Fluorine (F)-18 16 alpha-fluoroestradiol (18F-FES) positron emission tomography (PET)/computed tomography (CT) Vanderbilt is currently enrolling patients for an institutionally approved imaging […]

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2015 Patient Meeting Presentations

Below you will find slides from some of the presentations at our October 17th Patient Meeting. Save the date for next year’s meeting on Saturday, September 24th in Philadelphia.   Benjamin Alman, MD, Department Chair, Orthopedic Surgery, Duke University Presentation on “Collaboration for a Cure: What We’ve Learned So Far.” Bernd Kasper, MD, PhD, Mannheim University Medical […]

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Donating Tissue Samples

If you’re contemplating surgery, the Alman Lab at the Hospital for Sick Children in Toronto, Canada, is asking for freshly-resected desmoid tumor samples. These will be used for ongoing DTRF-funded research. If you’re interested or for more information, please contact Mushriq Al-Jazrawe at (416-813- 7210) or Val Cabral at (416-813-2178).

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Pong-a-Palooza: Charity Beer Pong Tournament on behalf of DTRF

Special thank you to Claudia Gomez, along with her family and friends for hosting Pong-A-Palooza, a charity beer pong tournament on May 14, 2016 in Philadelphia! This special event hosted over 50 teams in this double elimination tournament! Here are the rules she used below: Cost is $30/person ($60/team) and all proceeds go to DTRF-  Cost […]

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Thomas Paron to conquer Vermont City Marathon

Thomas Paron will be running the Vermont City Marathon on May 30th on behalf of DTRF. Thomas knows of 2 people affected by desmoid tumors, and this is put him into action! With a goal of $10,000, he is close to his goal! Special thank you to Compass Capital Management which will be providing a […]

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