lynneh, Author at Desmoid Tumor Research Foundation - Page 4 of 4

Pong-a-Palooza: Charity Beer Pong Tournament on behalf of DTRF

Special thank you to Claudia Gomez, along with her family and friends for hosting Pong-A-Palooza, a charity beer pong tournament on May 14, 2016 in Philadelphia! This special event hosted over 50 teams in this double elimination tournament! Here are the rules she used below: Cost is $30/person ($60/team) and all proceeds go to DTRF-  Cost […]

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Thomas Paron to conquer Vermont City Marathon

Thomas Paron will be running the Vermont City Marathon on May 30th on behalf of DTRF. Thomas knows of 2 people affected by desmoid tumors, and this is put him into action! With a goal of $10,000, he is close to his goal! Special thank you to Compass Capital Management which will be providing a […]

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DTRF’s Natural History Study

A natural history study is a type of study/registry that follows a group of people over time who have, or are at risk of developing, a specific medical condition or disease. The Desmoid Tumor Research Foundation has been selected as one of 20 rare disease patient groups who will develop a natural history study with the assistance of the […]

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“CARRIE ON” Walk-a-thon & Picnic

Nancy Deibel hosted a walk-a-thon in Hemlock, MI, in memory of her daughter, Carrie, who lost her battle with desmoid tumors. The event included a 50/50, bake sale and silent auction in support of DTRF. Special thank you to the Deibel family for their support.

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Fourth Annual Desmoid Dash

The DTRF thanks (and congratulates) the donors, participants, sponsors and organizers of the 4th annual Desmoid Dash in Mendota Heights, Minnesota. This 5K event, created in honor of survivor Matt Zechmann, raised over $91K this morning and has raised over $332K since inception in 2013! Unbelievable! Follow the Desmoid Dash on Facebook here.

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2018 DTRF Western Regional Patient Meeting

The DTRF Western Regional Patient Meeting convenes patients and family members in Salt Lake City for an afternoon of connecting with other desmoid tumor patients and participating in informative lectures and roundtables on desmoid tumors. Attendees will also have an opportunity to fundraise for the Foundation. Save the date to join us! Stay tuned for registration […]

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