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A Closer Look: Current and Upcoming Clinical Trials

To view all clinical trials in desmoid tumors, visit here.   Below we’ve compiled additional information about a few open and upcoming clinical trials.     Open Clinical Trials Phase II DART Immunotherapy Despite their name, rare cancers make up more than 20 percent of cancers diagnosed worldwide. DART is a clinical trial testing new […]

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Upcoming Clinical Trials

Phase III Trial for Nirogacestat A new company named SpringWorks Therapeutics has been formed as a spinoff of Pfizer to focus on investigational therapies that hold  significant promise for underserved populations.  SpringWorks will now take the gamma-secretase inhibitor that showed promising results in treating desmoid tumors in Phase I and Phase II trials, into a Phase III trial. Formerly known […]

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Clinical Trials for Immunotherapy & HIFU

Clinical Trial:  Phase II DART Immunotherapy Despite their name, rare cancers make up more than 20 percent of cancers diagnosed worldwide. DART is a clinical trial testing new treatments for dozens of rare cancers. Desmoid tumor is one of the tumor types included in this trial. The two drugs under study are new FDA-approved immunotherapies. […]

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2017 DTRF Golf Outing

Date: June 12, 2017 Location: Tuxedo, NY Over 125 guests enjoyed DTRF’s second Golf Outing at the beautiful Tuxedo Club in Tuxedo, NY, on Monday, June 12th.  Afterwards, attendees enjoyed a cool breeze with dinner on Tuxedo Lake. All funds raised were donated to desmoid tumor research. Registration brochure here.        

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2016 Patient Meeting Presentations

Below you will find slides from some of the presentations at our September 24th Patient Meeting. Save the date for next year’s meeting on Saturday, September 23rd in Philadelphia.   Benjamin Alman, MD, Department Chair, Orthopedic Surgery, Duke University. Slide Presentation: “Collaboration for a Cure: what we’ve learned so far.” VIDEO of Patient Meeting Presentation   […]

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Fourth Annual Desmoid Dash

The DTRF thanks (and congratulates) the donors, participants, sponsors and organizers of the 4th annual Desmoid Dash in Mendota Heights, Minnesota. This 5K event, created in honor of survivor Matt Zechmann, raised over $91K this morning and has raised over $332K since inception in 2013! Unbelievable! Follow the Desmoid Dash on Facebook here.

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DTRF’s Natural History Study

A natural history study is a type of study/registry that follows a group of people over time who have, or are at risk of developing, a specific medical condition or disease. The Desmoid Tumor Research Foundation has been selected as one of 20 rare disease patient groups who will develop a natural history study with the assistance of the […]

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DTRF Golf Outing

DTRF hosted over 135 golfers and over 170 dinner attendees at the beautiful Tuxedo Club in Tuxedo, NY, on Monday, June 13th.  Attendees enjoyed the spectacular setting along with dinner on Tuxedo Lake. All funds will be donated to desmoid tumor research, and DTRF thanks the volunteer committee who worked countless hours to help organize this special event. […]

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Donating Tissue Samples

If you’re contemplating surgery, the Alman Lab at the Hospital for Sick Children in Toronto, Canada, is asking for freshly-resected desmoid tumor samples. These will be used for ongoing DTRF-funded research. If you’re interested or for more information, please contact Mushriq Al-Jazrawe at mushriq.al.jazrawe@mail.utoronto.ca (416-813- 7210) or Val Cabral at val.cabral@sickkids.ca (416-813-2178).

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