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Past Events

5th Annual Desmoid Dash on May 12, 2018

May 12, 2018
In the midwest and looking to connect with other patients/caregivers? Save the date for the 5th Annual Desmoid Dash at St. Thomas School on Saturday, May 12th. This 5K will take place the day before Mother’s Day.  Register today!

2018 DTRF Western Regional Patient Meeting

April 28, 2018
The DTRF Western Regional Patient Meeting convenes patients and family members in Salt Lake City for an afternoon of connecting with other desmoid tumor patients and participating in informative lectures and roundtables on desmoid tumors. Attendees will also have an opportunity to fundraise for the Foundation. Save the date to join us! Stay tuned for registration…

3rd Annual DTRF Beer Pong Tournament in NYC on December 3, 2017

December 3, 2017
Brittany Longenbach and Danielle Portnoy hosted the 3rd Annual Beer Pong Tournament to support DTRF research on Sunday, December 3rd from 12-3pm. Location: Brother Jimmy’s BBQ 181 Lexington Avenue, New York, NY 10016   Special thanks to these ladies for launching year 3 of this fun afternoon!   

Tucking for Tumors on November 28, 2017

November 28, 2017
Special thank you to Kelly Mercier and her hometown of Cary, North Carolina, for supporting research efforts by Tucking for Tumors! This event took place at 6:30 pm at Pure Barre at 1412 Village Market Pl, Morrisville, NC 27560. The suggested donation per person was $20.  Limited edition Tucking for Tumors shirts were for sale…

2nd Annual JoeStrong Volleyball Tournament

October 21, 2017
Special thank you to all who joined Joe Erickson for his volleyball tournament on October 21st in Austin, TX! Joe decided to fundraise as a virtual participant in RFA this year, since he wasn’t able to make it to Philadelphia for DTRF’s events.  Through the tournament and 12 basket charity raffle, this event raised over…

2017 Annual Patient Meeting & Running for Answers 5K

September 23, 2017
Date: September 23 & 24, 2017 Location: Philadelphia, PA   The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes…

2017 Awareness through Artprize

September 1, 2017
September 2017 Location: Grand Rapids, MI   Artprize is an independently organized annual competition that takes place each fall for 19 days in Grand Rapids Michigan.  Monetary prizes are awarded by public vote as well as awards given by a jury of art experts.  Artists from many locations exhibit their art in various places throughout…

Sophie's Walk for Reed on July 22, 2017

July 22, 2017
Sophie Hickok organized her 5th Annual Walk for Reed in memory of her father, Reed, who lost his battle against an abdominal desmoid in April 2010. This year, her walk will take place at the Sunken Garden in Mission Hills, Kansas. Sophie, along with her friends and family, raised over $5,000 this year! We are…

2017 Shuffle Out Cancer Event in Toronto

July 19, 2017
Date: July 19, 2017 Location: Toronto, Canada Special thank you to Emily Smith, who led a group of Sports & Event Marketing students in Toronto, Canada to organize a fundraiser for desmoid tumor research called Shuffle Out Cancer. This event was a fundraiser for the Desmoid Tumor Foundation of Canada (DFC). The event featured 3…

2017 Lap4Life in Newburgh, NY

June 17, 2017
Date: June 17, 2017 Location: Newburgh, NY Congratulations to the Casabianca & Reade families, along with the entire community of Newburgh, NY for their participation in the 9th annual Lap4Life! June 17, Lap4Life took place on June 17, 2017 at Chadwick Lake Park, 1702 Route 300, Newburgh, NY. This community event included a 4 Mile Walk…
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