Past Events - Desmoid Tumor Research Foundation

Past Events

Thomas Paron to conquer Vermont City Marathon

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Thomas Paron will be running the Vermont City Marathon on May 30th on behalf of DTRF. Thomas knows of 2 people affected by desmoid tumors, and this is put him into action! With a goal of $10,000, he is close to his goal! Special thank you to Compass Capital Management which will be providing a…

A Celebration of Hope 

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The Wilmarth and Gallagher families have got a big surprise for the Westmoreland County Fairgrounds in Pleasant Unity, PA on May 21st! This fun- filled day will include crafters, vendors, kids' activities, door prizes and raffles! Please visit: for more information and updates on the event.  

Pong-a-Palooza: Charity Beer Pong Tournament on behalf of DTRF

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Special thank you to Claudia Gomez, along with her family and friends for hosting Pong-A-Palooza, a charity beer pong tournament on May 14, 2016 in Philadelphia! This special event hosted over 50 teams in this double elimination tournament! Here are the rules she used below: Cost is $30/person ($60/team) and all proceeds go to DTRF-  Cost…

Vendor Bingo on March 20, 2016

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Special thank you to Rochelle Miller and Corrine Conrad for organizing this event with their amazing volunteer committee which took place at the Kutztown Fire Company! This event benefited Austin's Fibromatosis Research Foundation and DTRF!

Paint for a Purpose on November 19, 2015

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Survivor Whitney Gramm hosted an evening of fun and creativity on November 19th at 6:30 at The Axis (prior Hancock Efree Church), 2 Fairview Lane, Hancock, MN. Food, snacks and beverages were provided, along with a silent auction to raise funds for DTRF!  

Chalet Au Moulin Arveyes Charity Evening on November 18, 2015

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The Barrell family hosted a card and aloe vera sale in Switzerland on behalf of DTRF. Refreshments were served and they raised over $700 for desmoid tumor research! We are so grateful for their support!  

Pop-Up Party on October 23, 2015

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On October 23, Faith Zucker invited friends and family to a special event in her home featuring a silent auction including Browns memorabilia, photos, a house cleaning package, chiropractic package, free Great Big Home and Garden Show tickets, a free oil change, tickets to a rock event, baked goods and holiday baskets. Tickets were $40…

Beer Pong Tournament on October 4, 2015

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Brittany and Danielle Portnoy hosted their own Beer Pong Tournament at Gael Pub in Manhattan on Saturday, October 4th! With over 80 of their closest friends, they played and gave awards to the top winners. They can't wait to organize another event next year!  

Kutztown Fall Festival on October 4, 2015

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Special thanks to Corinne Conrad, Rochelle Miller, the volunteers and crafters who hosted the Kutztown Fall Festival at the Kutztown Fairgrounds in Kutztown, PA! This special event was hosted by Austin's Fibromatosis Research Foundation and benefited DTRF.  

Third Annual Desmoid Dash on September 19, 2015

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Over 300 runners and walkers attended the Desmoid Dash this year in Mendota Heights, Minnesota, just outside of Minneapolis! This special event is held in honor of Matt Zechmann, but this year, he welcomed approximately 15 other survivors from the area to rally their teams! Thank you to the Zechmann family, the race planning committee,…