Past Events - Desmoid Tumor Research Foundation

Past Events


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The neighbors of Chetland Road gathered to celebrate Giuseppe Pisani, a very young desmoid survivor! Special thanks to this community for their support of the Pisani family and DTRF!  


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Congratulations to the Sidebottom family for raising $8,000 during their Bowl-a-thon at Prescott Plaza Bowl in Prescott, AZ! Each bowler was encouraged to find sponsers (by July 19th) to commit to a flat donation. They sold raffle tickets and had some great prizes: 2 box seats for the Phoenix Suns including food, wine and beer…

I Love Someone Rare- A Celebration of Warriors on August 9, 2014

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This special event featured speakers from the Huntsman Cancer Institute on FAP and desmoid tumors in the afternoon, and music and celebration in the evening. Located at Boothe Brothers Performing Arts Center in Spanish Fork, Utah, this celebration brought together desmoid tumor and FAP survivors!  

Sophie’s Walk for Reed on August 20, 2014

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Sophie hosted another walk, honoring her dad who lost his battle with an abdominal Desmoid in April of 2010. Her 3rd annual walk took place in Mission Hills, Kansas, on August 20th and raised just over $5,000! Check out pictures here! We congratulate Sophie on her great conviction in memorializing her dad and supporting desmoid research.…

Beef N’ Beer on September 6, 2014

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A special thank you to Anthony Fiore and the Desmoid Destroyers for hosting a BEEF & BEER at the Holy Savior Club (436 E.Main St. Norristown, PA. 19401) on Saturday, September 6th from 6pm-11pm. The menu featured roast beef sandwiches, beer (Coors Light), spaghetti and homemade Italian meatballs, tomato pie, dessert and coffee. Tickets were $30…

Kutztown Fall Festival on September 20, 2014

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This special event was held at Kutztown Fairgrounds in Kutztown, PA, in support of DTRF and Austin's Fibromatosis Research Fund. The Fall Festival will included a Car & Motorcycle Show; Craft & Home Show booths; Food & Homemade Bake Sale; Children's Entertainment & Crafts; Carnival Games; a Raffle, Silent Auction and more! Congratulations on an…

Fundraising Dinner in Switzerland on September 20, 2014

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Congratulations to the Barrell's for organizing a lovely dinner in the Swiss Alps in support of DTRF. The function raised over $20,000. On arrival at Bretaye, there were canapés and an aperitif outside. The second course of the evening was sit down meal inside prepared by Cookie chefs, followed by dessert. Beer, wine and soft…

Cornhole Tournament on September 26, 2014

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On September 26, 2014, desmoid tumor survivor Char Dumas hosted a cornhole tournament at her home in Charlotte, NC to raise funds for the DTRF. The event was attended by over 75 very generous adults and children. As you can see from the picture, a good time was had by all. The event raised more…

Second Annual Desmoid Dash on October 11, 2014

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Congratulations to the supporters, volunteers and finishers of the 2014 Desmoid Dash in Medota Heights, MN! With approximately 300 finishers, this race was extremely successful, raising over $88K in support of DTRF! Read more about Matt Zechmann's personal efforts to raise funds and awareness for desmoid tumor research here. Check out pictures of this special event…

A Night for the Fight on February 21, 2015

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The Main Line Chapter of the Board of Associates for Fox Chase Cancer Center hosted their first annual Night for the Fight formal event in the Philadelphia area on 2/21/15. The event featured an evening of dinner, dancing, music, and philanthropy, including live music, a silent auction and open giving. The silent auction will featured…
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