Past Events - Desmoid Tumor Research Foundation
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Past Events

EVENING AT THE WEMBLEY CLUB

Event Date
Benefitting the Desmoid Tumor Research Foundation (DTRF) August 24, 2013 from 5:00 pm – 10:00 pm Please join Faith Dalton for a fun filled evening at the Wembley Club in Chagrin Falls, Ohio! Located just 40 short minutes from Cleveland, Ohio the Wembley Club provides a family friendly environment on 10 beautiful acres. Your ticket…

FIRST ANNUAL UTAH SURVIVOR CELEBRATION ON AUGUST 10, 2013

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At the Utah Survivor Celebration, DeAnn Sorenson and her volunteers focused just as much on the support of getting together as they did the fundraising. DeAnn states, "It was fantastic to meet each other to share stories and support. We had 5 desmoid survivors, 2 desmoid/FAP survivors and 2 FAP survivors." They raised over $1200…

2013 LAP4LIFE IN NEWBURGH, NEW YORK

Event Date
June 22, 2013 marked the 5th annual Lap4Life event on Chadwick Lake in Newburgh, New York.  The event drew over 1,000 enthusiastic participants in a 4 mile run, walk and kids' fun run.  Organized by Maddalena Casabianca-Reade, this event raises research funding and awareness for demoid tumors and organ transplants. Eleven years ago, at the…

2013 ANNUAL DTRF GOLF CLASSIC IN MAHWAH, NJ

Event Date
On June 17, 2013, Richie and Nan Klein held a golf outing fundraiser for DTRF. It was a beautiful day at the Apple Ridge Country Club in Mahway, New Jersey. The 130 golfers vied for hole-in-one prizes of a Maserati, a Ford Mustang and a $50,000 hole. There were also many great raffle prizes and…

2013 Wine Tasting Fundraiser

Event Date
Comedienne and media personality Rosie O'Donnell was the honored guest at our June 5th fundraiser in Piermont, New York. Rosie delighted the crowd of 180 attendees with a stand-up comedy routine. Then she stunned everyone by offering to match all donation proceeds for the event. One by one, enthusiastic donors stood to pledge donations which…

2013 LIVE WITHOUT LIMITS CHICAGO FUNDRAISER FOR DESMOID TUMOR RESEARCH FOUNDATION

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Patients, family and friends came together to support desmoid tumor research. A special thank you to Beth and Drew Bialko in helping DTRF find a cure for desmoid tumors. To learn more about Beth and Drew, watch their story HERE. May 14, 2013 from 6- 9pm Mastro's Steakhouse, 520 N Dearborn St, Chicago, IL 60654 Special…

2013 BAKE SALES IN THE PHILADELPHIA AREA SUPPORTING RUNNING FOR ANSWERS (RFA) TEAM, MIGHTY MAX’S ANGELS!

Event Date
The Veeck family held bake sales in Narberth and Phoenixville on May 4, 2013. Both bake sales raised $850.00 for DTRF! Click here for a picture of Mom, Kathy, and her mighty survivor, Max. See Max below!

MADE IN THE USA CHALLENGE RECOGNIZES DTRF

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Sarah Mazzone believes that change starts at home. That's why she's recommended a number of nonprofits that she deems fit to support. Check out her homemade site here! Sarah states, "As a Registered Nurse, I have cared for patients with many types of conditions. So I was shocked when my good friend Kathy shared that…

2012 Patient Symposium, Running for Answers 5K & Brunch

Event Date
On October 20, 2012, 160 patients, family members and friends attended our 6th Annual Patient Meeting at the Philadelphia Marriott Courtyard Downtown.  Our distinguished speakers were Raphael E. Pollock, MD, PhD (MD Anderson Cancer Center), Mrinal Gounder, MD (Memorial Sloan-Kettering Cancer Center), Dina C. Lev, MD (MD Anderson Cancer Center), James Church, MD (Cleveland Clinic) and…

2012 FUNDRAISER AT SHARKY’S IN HOUSTON TX IN PARTNERSHIP WITH AUSTIN’S FIBROMATOSIS RESEARCH FUND

Event Date
On, September 29, 2012, 10% of each bill was donated when you mention the Fundraiser or Pilar!
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