A message from Marlene Portnoy & Jeanne Whiting, DTRF Co-Founders

September of 2020 marks the 15th anniversary of DTRF’s founding!  Fifteen years is a major milestone. While half of rare diseases don’t have a foundation or a research support group (source: Global Genes), we are grateful for the continued support that enables us to still be here fighting for you.  As always, our mission continues to be funding research toward a cure, and advocating for desmoid tumor patients.
Over the years, we’ve accelerated our progress through COLLABORATION.
Over the years, we’ve accelerated progress in supporting and strengthening our patient and caregiver COMMUNITY.
Over the years, we’ve accelerated research through PARTNERSHIPS.

While 2020 has brought challenges due to the pandemic, we are meeting these challenges and looking forward with strength and hope. DTRF is grateful every day for our passionate community that has rallied to support us, for our scientific and medical advisors and researchers, and for our generous donors who have stayed with us for the long haul and the new ones who join in the cause every year!

Together, we will find a cure!

~Marlene and Jeanne, DTRF Co-Founders