Founded in 2007, the Patient Meeting is our signature patient support event and the centerpiece of the DTRF Together We Will Weekend. It includes educational lectures by leading clinicians, researchers, and other stakeholders. Content is geared toward topics of interest to our patient and caregiver community, but physicians are also encouraged to attend this foundational meeting. We are proud to announce this year’s presenters:
Jeanne Whiting
President and Co-Founder, Desmoid Tumor Research Foundation
Welcome & Introduction
Candace Haddox, MD
Medical oncologist, Dana-Farber Cancer Center
Desmoid Tumors 101/ Getting the most from your consultation and treatment plan
Bernd Kasper, MD, PhD
Professor, University of Heidelberg, Mannheim University Medical Center, Mannheim Cancer Center, Sarcoma Unit (Germany)
Latest edition of the global management consensus from ‘The Desmoid Tumor Working Group’
Alessandro Gronchi, MD
Chair, Sarcoma Service, Department of Surgery, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano (Italy)
Active Surveillance as a Desmoid Tumor Treatment/
Mock Tumor Board (Panelist)
Ryan Brunsing, MD, PhD
Clinical Assistant Professor of Radiology, Director of MRI, Stanford University
MRI-guided cryoablation and HIFU in the treatment of desmoid tumors
Eldad Elnekave, MD
Director, Kahn Unit for Interventional Oncology, Shaare Tzedek Medical Center (Jerusalem, Israel)
Arterial doxorubicin eluting embolization as a Desmoid Tumor Treatment/
Mock Tumor Board (Panelist)
Bernd Kasper, MD, PhD
Professor, University of Heidelberg, Mannheim University Medical Center, Mannheim Cancer Center, Sarcoma Unit (Germany)
DeFi: A phase 3 study of nirogacestat in adults with desmoid tumors.
Mrinal Gounder, MD
Associate Professor, Sarcoma Medical Oncologist and Early Phase Drug Development (Phase I), Memorial Sloan Kettering Cancer Center, New York
RINGSIDE Phase 2/3 Trial of AL102 for Treatment of Desmoid Tumors (DT): Updated Phase 2 Results
Gabe Augdahl
Desmoid Tumor Patient
Palma Dileo, MD
Sarcoma Medical Oncologist, University College London Hospitals
Mock Tumor Board (Co-Moderator)
Aaron Weiss, DO
Associate Professor, Department of Pediatrics, Division Chief, Pediatric Hematology-Oncology, Maine Medical Center
Mock Tumor Board (Co-Moderator)
Robert Lefkowitz, MD
Attending Radiologist, Memorial Sloan Kettering Cancer Center
Imaging of Desmoid Tumors
Kelly Mercier, PhD
Principal Investigator, DTRF Patient Registry, Desmoid Tumor Research Foundation
An Update on the DTRF Patient Registry – September 2023
Marco Fiore, MD, FACS
Sarcoma Service, Department of Surgery, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano (Italy)
What We’ve Learned from the International Pregnancy Study
Ravin Ratan, MD
Associate Professor, Sarcoma Medical Oncology, MD Anderson Cancer Center
Mock Tumor Board (Panelist)
