lynneh, Author at Desmoid Tumor Research Foundation

A Lemonade Stand!

Jennifer S. has desmoid tumour in her right abdominal muscle. She and her family moved to Burlington, Ontario from Glasgow, Scotland in January 2016. Her desmoid tumour was diagnosed in March 2016, only 10 weeks after arriving in Canada.   In May 2018, her two daughters Katie (6) and Connie (4) along with their neighbourhood friend, […]

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A Closer Look: Current and Upcoming Clinical Trials

To view all clinical trials in desmoid tumors, visit here.   Below we’ve compiled additional information about a few open and upcoming clinical trials.     Open Clinical Trials Phase II DART Immunotherapy Despite their name, rare cancers make up more than 20 percent of cancers diagnosed worldwide. DART is a clinical trial testing new […]

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2019 DTRF Patient Meeting at Stanford University

A 2019 DTRF Patient Meeting will take place at Stanford University on April 13th for an afternoon of connecting with other desmoid tumor patients and participating in informative lectures and roundtables on desmoid tumors. Attendees will also have an opportunity to fundraise for the Foundation. Save the date to join us! Stay tuned for registration information […]

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5th Annual Desmoid Dash on May 12, 2018

Mom was certainly the star on May 12, 2018, in Minneapolis where more than 200 participants at the 5th Annual Desmoid Dash 5K raised ~$80,000 for The Desmoid Tumor Research Foundation! Thank you to the attendees, volunteers, local sponsors, race committee members, and the Zechmann family for making this another successful and fun-filled event!

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2018 DTRF Western Regional Patient Meeting

On Saturday, April 28th, DTRF hosted its first Western Regional Patient Meeting in Salt Lake City, Utah! More than 45 desmoid tumor patients and caregivers convened for a day of connecting and learning. The goal of DTRF’s patient meetings is to provide education and hope by presenting the latest research and treatment options, and by […]

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Tucking for Tumors on November 28, 2017

Special thank you to Kelly Mercier and her hometown of Cary, North Carolina, for supporting research efforts by Tucking for Tumors! This event took place at 6:30 pm at Pure Barre at 1412 Village Market Pl, Morrisville, NC 27560. The suggested donation per person was $20.  Limited edition Tucking for Tumors shirts were for sale […]

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2nd Annual JoeStrong Volleyball Tournament

Special thank you to all who joined Joe Erickson for his volleyball tournament on October 21st in Austin, TX! Joe decided to fundraise as a virtual participant in RFA this year, since he wasn’t able to make it to Philadelphia for DTRF’s events.  Through the tournament and 12 basket charity raffle, this event raised over […]

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Upcoming Clinical Trials

Phase III Trial for Nirogacestat A new company named SpringWorks Therapeutics has been formed as a spinoff of Pfizer to focus on investigational therapies that hold  significant promise for underserved populations.  SpringWorks will now take the gamma-secretase inhibitor that showed promising results in treating desmoid tumors in Phase I and Phase II trials, into a Phase III trial. Formerly known […]

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