lynneh, Author at Desmoid Tumor Research Foundation

Parents’ Night Out in May 2019

The parents of students at an elementary school in Ohio had a Friday night out this May! The school has a service club which organized a special fundraising event called “Parents’ Night Out” in honor of one of the club members who has a desmoid tumor in his thigh. He has been very brave facing […]

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6th Annual Desmoid Dash on September 29, 2019

Save the date for the 6th Annual Desmoid Dash in Minneapolis, MN (Mendota Heights) on September 29th! Annually, this event has welcomed over 200 participants, including desmoid tumor patients and their caregivers. In 2013, the first annual Desmoid Dash was hosted by the Zechmann family, along with their closest friends and family. We hope you’ll […]

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2019 Swing for a Cure – St. Louis

Katie and Jason met the most beautiful angel on September 7th, 2017… their daughter Emma Rose. Hours before Emma’s arrival, they found out that Jason had a very large tumor in his abdomen.  The morning after Emma was born, Jason underwent a biopsy and after many tests discovered that he had desmoid tumors. It’s been […]

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2019 Lap4Life in Newburgh, NY

Date: June 15, 2019 Location: Newburgh, NY Join DTRF, the Casabianca & Reade families, along with the entire community of Newburgh, NY for the 11th annual Lap4Life at Chadwick Lake Park, 1702 Route 300, Newburgh, NY. This community event includes a 4 Mile Walk / 4 Mile Run / ¼ mile Kids Fun-Run and was created […]

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2019 DTRF Golf Outing

Date: June 3, 2019 Location: Tuxedo, NY DTRF hosted about 200 attendees at its Annual Golf Classic and Dinner on Monday, June 3rd, at the Tuxedo Club in Tuxedo Park, NY. The day began with guests arriving around 10am to enjoy brunch overlooking Tuxedo Lake. After a full day of golf, and perfect weather, attendees […]

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2019 Annual Patient Meeting & Running for Answers 5K

Date: September 21 & 22, 2019 Location: Philadelphia, PA The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes place […]

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DFC- Desmoid Tumour Foundation of Canada 3rd Annual Patient Networking & Fundraising Event

Date: May 2, 2019 Location: Toronto, Canada Congratulations to the Desmoid Tumour Foundation of Canada (DFC) for hosting their 3rd annual fundraising event, “Play It Forward for a cure,” in Toronto on May 2nd. Over 270 attendees enjoyed a live and silent auction, delicious food, the music of Blues Soloist Shakura S’Aida and the Burlington/Hamilton Band, Slow Monday. […]

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Fourth Annual Tucking for Tumors on November 27, 2018

Kelly Mercier and her hometown of Cary, North Carolina, will once again support research efforts by Tucking for Tumors! This event will take place at 6:30 pm at Pure Barre at 1412 Village Market Pl, Morrisville, NC 27560. The suggested donation per person is$20.  Limited edition Tucking for Tumors shirts were for sale online during […]

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