lynneh, Author at Desmoid Tumor Research Foundation

Fourth Annual Tucking for Tumors on November 27, 2018

Kelly Mercier and her hometown of Cary, North Carolina, will once again support research efforts by Tucking for Tumors! This event will take place at 6:30 pm at Pure Barre at 1412 Village Market Pl, Morrisville, NC 27560. The suggested donation per person is$20.  Limited edition Tucking for Tumors shirts were for sale online during […]

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3rd JoeStrong Volleyball Tournament in Austin, Texas

For the 3rd year in a row, Joe E. hosted the 3rd JoeStrong Volleyball Tournament in Austin, Texas, benefiting the DTRF. This volleyball tournament included a silent auction, raffles and swag for players.   The product and gift cards this year were awesome including Fixe, Taco Deli, Uchi, Alamo Drafthouse, Landry’s, Cover 3, Via 313, […]

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Beer, Bags and Boards Fundraiser benefiting DTRF

Attached is a picture of the fabulous group that attended Char L.’s Beer, Bags and Boards fundraiser benefiting the Foundation!  The day was gorgeous, the people fantastic and the fundraising epic!    After being diagnosed with a desmoid tumor after the birth of her son in 2010, Char has been trying to raise as much […]

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Annual Halloween Party!

This year, Devonne decided to host a Halloween party in honor of her husband who has been battling desmoid tumors for 22 years. They raised over $1,300! We are so grateful for their support.        

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Lap4Life Brewery Fundraiser

Lap4Life hosted their 3rd Annual Guest Bartenders Event on Sunday, November 18th! With a band, silent auction and guest bartenders, this fundraising event drew roughly 250 attendees!  Lap4Life is a non-profit organization created to raise money and awareness for desmoid tumors and organ transplant research.       

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A Lemonade Stand!

Jennifer S. has desmoid tumour in her right abdominal muscle. She and her family moved to Burlington, Ontario from Glasgow, Scotland in January 2016. Her desmoid tumour was diagnosed in March 2016, only 10 weeks after arriving in Canada.   In May 2018, her two daughters Katie (6) and Connie (4) along with their neighbourhood friend, […]

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A Closer Look: Current and Upcoming Clinical Trials

To view all clinical trials in desmoid tumors, visit here.   Below we’ve compiled additional information about a few open and upcoming clinical trials.     Open Clinical Trials Phase II DART Immunotherapy Despite their name, rare cancers make up more than 20 percent of cancers diagnosed worldwide. DART is a clinical trial testing new […]

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2019 DTRF Patient Meeting at Stanford University

A 2019 DTRF Patient Meeting will take place at Stanford University on April 13th for an afternoon of connecting with other desmoid tumor patients and participating in informative lectures and roundtables on desmoid tumors. Attendees will also have an opportunity to fundraise for the Foundation. Save the date to join us! Stay tuned for registration information […]

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5th Annual Desmoid Dash on May 12, 2018

Mom was certainly the star on May 12, 2018, in Minneapolis where more than 200 participants at the 5th Annual Desmoid Dash 5K raised ~$80,000 for The Desmoid Tumor Research Foundation! Thank you to the attendees, volunteers, local sponsors, race committee members, and the Zechmann family for making this another successful and fun-filled event!

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