Blog Listing - Desmoid Tumor Research Foundation

2020 Lap4Life in Newburgh, NY

Location: Newburgh, NY Join DTRF, the Casabianca & Reade families, along with the entire community of Newburgh, NY for the 12th annual Lap4Life at Chadwick Lake Park, 1702 Route 300, Newburgh, NY. This community event includes a 4 Mile Walk / 4 Mile Run / ¼ mile Kids Fun-Run and was created in memory of […]

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Granfondo Axel Merckx in honor of Athina Merckx and DFC

Location: Okanagan, Canada Earlier this year, Athina Merckx was diagnosed with a desmoid tumor. She had surgery on her right knee in April to remove it and after having some challenges in her rehabilitation is now facing a recurrence. She will be doing chemotherapy for over the next two years.  Granfondo Axel Merckx will match […]

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2020 Swing for a Cure – St. Louis

Katie and Jason met the most beautiful angel on September 7th, 2017… their daughter Emma Rose. Hours before Emma’s arrival, they found out that Jason had a very large tumor in his abdomen.  The morning after Emma was born, Jason underwent a biopsy and after many tests discovered that he had desmoid tumors. It’s been […]

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2019 Tour de Blax

Every year, the Blax family joins us at RFA as RFA Team, The Spenguins. They celebrate the memory of their beloved Spencer Black. This year, they’re putting on the Tour de Blax, a fundraiser for the DTRF. We are grateful to the Blax family for supporting the Foundation in memory of Spencer.  

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2020 Annual Patient Meeting & Running for Answers 5K

The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes place the day following our annual Patient Meeting. […]

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4th JoeStrong Volleyball Tournament in Austin, Texas

For the 4th year in a row, Joe E. hosted the JoeStrong Volleyball Tournament in Austin, Texas, benefiting the DTRF. This volleyball tournament included a silent auction, raffles and swag for players.   Aside from a heartfelt thanks to friends and family for supporting him, Joe thanks Bobby Jones with Project Serve for the venue space, Lj Luciano and […]

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Parents’ Night Out in May 2019

The parents of students at an elementary school in Ohio had a Friday night out this May! The school has a service club which organized a special fundraising event called “Parents’ Night Out” in honor of one of the club members who has a desmoid tumor in his thigh. He has been very brave facing […]

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