Blog Listing - Desmoid Tumor Research Foundation

2019 Swing for a Cure – St. Louis

Register here! Katie and Jason met the most beautiful angel on September 7th, 2017… their daughter Emma Rose. Hours before Emma’s arrival, they found out that Jason had a very large tumor in his abdomen.  The morning after Emma was born, Jason underwent a biopsy and after many tests discovered that he had desmoid tumors. […]

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2019 Lap4Life in Newburgh, NY

Date: June 15, 2019 Location: Newburgh, NY Join DTRF, the Casabianca & Reade families, along with the entire community of Newburgh, NY for the 11th annual Lap4Life at Chadwick Lake Park, 1702 Route 300, Newburgh, NY. This community event includes a 4 Mile Walk / 4 Mile Run / ¼ mile Kids Fun-Run and was created […]

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2019 DTRF Golf Outing

Date: June 3, 2019 Location: Tuxedo, NY Guests are invited to attend DTRF’s third Golf Outing at the beautiful Tuxedo Club in Tuxedo, NY, on Monday, June 3rd.  Afterwards, attendees can join us for dinner on Tuxedo Lake. All funds raised will be donated to desmoid tumor research. Register here!

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2019 Annual Patient Meeting & Running for Answers 5K

Date: September 21 & 22, 2019 Location: Philadelphia, PA The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes place […]

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Fourth Annual Tucking for Tumors on November 27, 2018

Kelly Mercier and her hometown of Cary, North Carolina, will once again support research efforts by Tucking for Tumors! This event will take place at 6:30 pm at Pure Barre at 1412 Village Market Pl, Morrisville, NC 27560. The suggested donation per person is$20.  Limited edition Tucking for Tumors shirts were for sale online during […]

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3rd JoeStrong Volleyball Tournament in Austin, Texas

For the 3rd year in a row, Joe E. hosted the 3rd JoeStrong Volleyball Tournament in Austin, Texas, benefiting the DTRF. This volleyball tournament included a silent auction, raffles and swag for players.   The product and gift cards this year were awesome including Fixe, Taco Deli, Uchi, Alamo Drafthouse, Landry’s, Cover 3, Via 313, […]

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Beer, Bags and Boards Fundraiser benefiting DTRF

Attached is a picture of the fabulous group that attended Char L.’s Beer, Bags and Boards fundraiser benefiting the Foundation!  The day was gorgeous, the people fantastic and the fundraising epic!    After being diagnosed with a desmoid tumor after the birth of her son in 2010, Char has been trying to raise as much […]

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Annual Halloween Party!

This year, Devonne decided to host a Halloween party in honor of her husband who has been battling desmoid tumors for 22 years. They raised over $1,300! We are so grateful for their support.        

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