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6th Annual Desmoid Dash on September 29, 2019

Save the date for the 6th Annual Desmoid Dash in Minneapolis, MN (Mendota Heights) on September 29th! Annually, this event has welcomed over 200 participants, including desmoid tumor patients and their caregivers. In 2013, the first annual Desmoid Dash was hosted by the Zechmann family, along with their closest friends and family. We hope you’ll […]

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2019 Swing for a Cure – St. Louis

Katie and Jason met the most beautiful angel on September 7th, 2017… their daughter Emma Rose. Hours before Emma’s arrival, they found out that Jason had a very large tumor in his abdomen.  The morning after Emma was born, Jason underwent a biopsy and after many tests discovered that he had desmoid tumors. It’s been […]

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2019 Lap4Life in Newburgh, NY

Date: June 15, 2019 Location: Newburgh, NY Join DTRF, the Casabianca & Reade families, along with the entire community of Newburgh, NY for the 11th annual Lap4Life at Chadwick Lake Park, 1702 Route 300, Newburgh, NY. This community event includes a 4 Mile Walk / 4 Mile Run / ¼ mile Kids Fun-Run and was created […]

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2019 DTRF Golf Outing

Date: June 3, 2019 Location: Tuxedo, NY DTRF hosted about 200 attendees at its Annual Golf Classic and Dinner on Monday, June 3rd, at the Tuxedo Club in Tuxedo Park, NY. The day began with guests arriving around 10am to enjoy brunch overlooking Tuxedo Lake. After a full day of golf, and perfect weather, attendees […]

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2019 Annual Patient Meeting & Running for Answers 5K

Date: September 21 & 22, 2019 Location: Philadelphia, PA The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes place […]

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3rd JoeStrong Volleyball Tournament in Austin, Texas

For the 3rd year in a row, Joe E. hosted the 3rd JoeStrong Volleyball Tournament in Austin, Texas, benefiting the DTRF. This volleyball tournament included a silent auction, raffles and swag for players.   The product and gift cards this year were awesome including Fixe, Taco Deli, Uchi, Alamo Drafthouse, Landry’s, Cover 3, Via 313, […]

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Beer, Bags and Boards Fundraiser benefiting DTRF

Attached is a picture of the fabulous group that attended Char L.’s Beer, Bags and Boards fundraiser benefiting the Foundation!  The day was gorgeous, the people fantastic and the fundraising epic!    After being diagnosed with a desmoid tumor after the birth of her son in 2010, Char has been trying to raise as much […]

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Annual Halloween Party!

This year, Devonne decided to host a Halloween party in honor of her husband who has been battling desmoid tumors for 22 years. They raised over $1,300! We are so grateful for their support.        

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Lap4Life Brewery Fundraiser

Lap4Life hosted their 3rd Annual Guest Bartenders Event on Sunday, November 18th! With a band, silent auction and guest bartenders, this fundraising event drew roughly 250 attendees!  Lap4Life is a non-profit organization created to raise money and awareness for desmoid tumors and organ transplant research.       

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