Updates Archives - Desmoid Tumor Research Foundation

Granfondo Axel Merckx in honor of Athina Merckx and DFC

Location: Okanagan, Canada Earlier this year, Athina Merckx was diagnosed with a desmoid tumor. She had surgery on her right knee in April to remove it and after having some challenges in her rehabilitation is now facing a recurrence. She will be doing chemotherapy for over the next two years.  Granfondo Axel Merckx will match […]

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DFC- Desmoid Tumour Foundation of Canada 3rd Annual Patient Networking & Fundraising Event

Date: May 2, 2019 Location: Toronto, Canada Congratulations to the Desmoid Tumour Foundation of Canada (DFC) for hosting their 3rd annual fundraising event, “Play It Forward for a cure,” in Toronto on May 2nd. Over 270 attendees enjoyed a live and silent auction, delicious food, the music of Blues Soloist Shakura S’Aida and the Burlington/Hamilton Band, Slow Monday. […]

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A Closer Look: Current and Upcoming Clinical Trials

To view all clinical trials in desmoid tumors, visit here.   Below we’ve compiled additional information about a few open and upcoming clinical trials.     Open Clinical Trials Phase II DART Immunotherapy Despite their name, rare cancers make up more than 20 percent of cancers diagnosed worldwide. DART is a clinical trial testing new […]

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Upcoming Clinical Trials

Visit our clinical trials page to find information on all desmoid tumor clinical trials.   Phase III Trial for Nirogacestat A new company named SpringWorks Therapeutics has been formed as a spinoff of Pfizer to focus on investigational therapies that hold  significant promise for underserved populations.  SpringWorks will now take the gamma-secretase inhibitor that showed promising results in […]

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Clinical Trials for Immunotherapy & HIFU

Clinical Trial:  Phase II DART Immunotherapy Despite their name, rare cancers make up more than 20 percent of cancers diagnosed worldwide. DART is a clinical trial testing new treatments for dozens of rare cancers. Desmoid tumor is one of the tumor types included in this trial. The two drugs under study are new FDA-approved immunotherapies. […]

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2017 DTRF Golf Outing

Date: June 12, 2017 Location: Tuxedo, NY Over 125 guests enjoyed DTRF’s second Golf Outing at the beautiful Tuxedo Club in Tuxedo, NY, on Monday, June 12th.  Afterwards, attendees enjoyed a cool breeze with dinner on Tuxedo Lake. All funds raised were donated to desmoid tumor research. Registration brochure here.        

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2016 Patient Meeting Presentations

Below you will find slides from some of the presentations at our September 24th Patient Meeting. Save the date for next year’s meeting on Saturday, September 23rd in Philadelphia.   Benjamin Alman, MD, Department Chair, Orthopedic Surgery, Duke University. Slide Presentation: “Collaboration for a Cure: what we’ve learned so far.” VIDEO of Patient Meeting Presentation   […]

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Fourth Annual Desmoid Dash

The DTRF thanks (and congratulates) the donors, participants, sponsors and organizers of the 4th annual Desmoid Dash in Mendota Heights, Minnesota. This 5K event, created in honor of survivor Matt Zechmann, raised over $91K this morning and has raised over $332K since inception in 2013! Unbelievable! Follow the Desmoid Dash on Facebook here.

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