DTRF Speed-Desmoidian-ing Event - Desmoid Tumor Research Foundation

"Speed Desmoidian-ing" Event

At this year’s Patient Meeting, share your desmoid experience in brief, one-on-one timely tumor talks at "Speed Desmoidian-ing"!

This free workshop is modeled after speed dating (sans romance). Our “speed chatting” is facilitated by fellow desmoidian and patient advocate, Dakota Fisher-Vance. Attendees will have several 4 minute conversations, rotating conversation partners with each new desmoid discussion topic. The goal is to allow attendees to learn more about each other and make connections before the DTRF event weekend.

Everyone, whether you have a diagnosis or your loved ones and/or patients do, is welcome to join in the conversation.

When: 10AM-11AM, Saturday, September 21, 2019 (morning of the Annual Patient Meeting at the DoubleTree Hotel- Center City)

We all share the weight of this diagnosis, so let's share our experiences before our big weekend together!

**Registration (below) is required.** Feel free to reach out to lynne@dtrf.org with questions. We will be in touch with final details as we get closer.

  • For example: Harvey Smith, Lynn Harson, Mark Hanson