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DTSTART;TZID=America/New_York:20260512T180000
DTEND;TZID=America/New_York:20260512T190000
DTSTAMP:20260408T131955Z
CREATED:20260407T131620Z
LAST-MODIFIED:20260408T131955Z
UID:10000049-1778608800-1778612400@dtrf.org
SUMMARY:Navigating Desmoid Tumor Treatment Options & Insights on Zolucatetide (FOG-001)
DESCRIPTION:Join us for our upcoming webinar\, “Navigating Desmoid Tumor Treatment Options & Insights on Zolucatetide (FOG-001)” with Dr. Gregory Cote\, DTRF Medical Advisory Board Member and medical oncologist at Mass General Brigham Cancer Institute to explore current treatment options for people living with desmoid tumors.  \nThis session will include a high-level overview of today’s treatment landscape\, including gamma secretase inhibitor therapies (GSIs)\, sorafenib\, chemotherapy and non-drug treatment options\, as well as emerging clinical trials. Dr. Cote will share early updates on zolucatetide (formerly known as FOG-001)\, including how it works within the Wnt/β-catenin pathway and how it differs from other available treatments. Together\, we’ll walk through what is currently known about the trial\, including how the study is structured\, early signals of effectiveness\, and what patients should understand about potential side effects and tradeoffs. \nThe discussion will also highlight how patients and their care teams can approach decision-making around experimental therapies\, balancing potential benefits\, risks\, and access considerations. This webinar is designed to help patients and caregivers better understand their options and feel more informed when discussing treatment decisions with their medical team. \nWe’ll reserve dedicated time for an in-depth Q&A\, giving you the opportunity to ask Dr. Cote your questions and hear directly from a leading expert. \nRegister today!
URL:https://dtrf.org/event/navigating-desmoid-tumor-treatment-options-insights-on-zolucatetide-fog-001/
CATEGORIES:Caregivers,Clinicians,Connection,Education,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2026/04/Cote_webinar_2026.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260425T080000
DTEND;TZID=America/New_York:20260425T140000
DTSTAMP:20260309T161819Z
CREATED:20260202T211756Z
LAST-MODIFIED:20260309T161819Z
UID:10000045-1777104000-1777125600@dtrf.org
SUMMARY:Living with Desmoid Tumors: A DTRF Patient Education Experience
DESCRIPTION:Living with Desmoid Tumors: A DTRF Education Experience is a one day\, in-person event designed for patients and caregivers seeking trusted information about desmoid tumors and connection with a community that understands their lived experiences.\nWhat can you expect?\nThis event is designed with YOU in mind. Every session of this special\, one day event is purposefully curated to inform\, empower\, and connect desmoid tumor patients and caregivers. Expert clinicians provide insight and guidance in an accessible\, patient-centered way that supports real-life decision making. \nEvent Schedule: 8AM-2PM ET \nList of topics\, presenters\, and full event schedule coming soon. \nLocation: Columbus State Community College \nCost: $25 per person (lunch included) \nIf you are unable to attend due to the cost of this event\, please reach out to info@dtrf.org to connect with a DTRF team member. \nWhy should you attend?\nThis event is designed for every stage of the desmoid journey\, from newly diagnosed patients to long term survivors\, offering a shared space for patients and caregivers to learn together. \n✨ You’ll hear presentations from clinical experts that will translate complex research and practice into understandable\, actionable insights. \n✨ Knowledge is power. Staying educated helps reduce fear and uncertainty after diagnosis\, during treatment\, and post-treatment management/monitoring/surveillance\, etc. \n✨ Take time to connect with patients\, caregivers\, and clinicians in a comforting\, non-clinical environment. \n✨ Learn more about how you can get involved in ongoing DTRF programs and fundraising opportunities. \nHow do I register for the upcoming event in Ohio?\nRegistration is officially OPEN. Although there will be onsite registration the morning of the event\, please note that online registration closes on Tuesday\, April 21st at midnight ET. \nRegister Now \nSign up for The DTRF Newsletter and follow our social channels to be notified about any future events.
URL:https://dtrf.org/event/living-with-desmoid-tumors-a-dtrf-patient-education-experience/
CATEGORIES:Caregivers,Clinicians,Connection,Education,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2026/02/2026_Patient-Ed-Events.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260324T180000
DTEND;TZID=America/New_York:20260324T190000
DTSTAMP:20260302T154053Z
CREATED:20260302T154053Z
LAST-MODIFIED:20260302T154053Z
UID:10000047-1774375200-1774378800@dtrf.org
SUMMARY:Spread the Word: Educational Webinar
DESCRIPTION:Help us Spread the Word by joining the Desmoid Tumor Research Foundation on March 24th from 6-7 PM ET for an educational webinar exploring desmoid tumor diagnosis\, pathology classification\, and the real-world impact these distinctions have on treatment decisions and patient wellbeing. \nThis multidisciplinary discussion will examine how desmoid tumors are identified and categorized\, what that means for planning treatment and care\, and how classification can shape the patient experience from diagnosis forward. \nThe program will feature special guests:  \n\nMrinal Gounder\, PhD\, medical oncologist at Memorial Sloan Kettering Cancer Center\, presenting from the oncology perspective\nAshley Williams\, LCSW\, CTTP-II\, Co-Founder of The Desmoid Project\, addressing the psychosocial implications of diagnosis and treatment\nNarasimhan Agaram\, PhD\, sarcoma pathologist at Memorial Sloan Kettering Cancer Center\, sharing insights on how desmoid tumors are evaluated and classified at the tissue level.\n\nThe conversation will be moderated by Katie Doyle Myers\, DTRF Executive Director\, with guiding questions informed by DTRF Ambassadors and the broader desmoid community. \nThank you to our webinar sponsor\, SpringWorks Therapeutics\, for their continuous support of desmoid tumor educational content. \nRegister and submit your questions today!
URL:https://dtrf.org/event/spread-the-word-educational-webinar/
CATEGORIES:Awareness,Caregivers,Connection,Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2026/02/STW_event-calendar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260226T170000
DTEND;TZID=America/New_York:20260226T180000
DTSTAMP:20260302T154143Z
CREATED:20260202T210802Z
LAST-MODIFIED:20260302T154143Z
UID:10000044-1772125200-1772128800@dtrf.org
SUMMARY:Facebook/Instagram Live with Desmoid Warrior: Morgan B.
DESCRIPTION:Join us LIVE on Facebook and Instagram in honor of Rare Disease Day! \nOn Thursday\, February 26th at 5 PM ET\, Morgan will share her personal journey living with a desmoid tumor. She’ll discuss the challenges\, uncertainties\, and resilience that so many in the desmoid community know firsthand. \nThis live event is an opportunity to listen\, connect\, and ask questions in real time! Visit the Facebook Live link in our feed or watch our Instagram stories at the date & time of the event to tune in and hear from Morgan. \nTo make a significant impact on behalf of the patient community\, we invite you to attend this virtual event\, share our social content\, and Spread the Word with us! \nLearn more about the World Health Organization’s (WHO) classification of desmoid tumors\, which is listed under Table II – Fibroblastic/Myofibroblastic Tumours: https://pmc.ncbi.nlm.nih.gov/articles/PMC8167394 \nIf you would like to share your desmoid tumor journey with us\, please submit your story to be considered for a social media feature: https://bit.ly/DTRF-submit-story
URL:https://dtrf.org/event/facebook-instagram-live-with-desmoid-warrior-morgan-b/
CATEGORIES:Awareness,Caregivers,Connection,Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2026/02/FB-Live_2-26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251206T080000
DTEND;TZID=America/New_York:20251206T130000
DTSTAMP:20251027T173623Z
CREATED:20251015T144015Z
LAST-MODIFIED:20251027T173623Z
UID:10000042-1765008000-1765026000@dtrf.org
SUMMARY:Navigating Your Desmoid Tumor Diagnosis:  A 1/2 day patient education and networking opportunity
DESCRIPTION:Reserve your spot at our upcoming patient education event in collaboration with Stanford School of Medicine to connect with and learn from other desmoid tumor patients and clinicians. A variety of educational talks and a networking opportunity will be included in this half day patient-centered event. \nEvent Schedule:  \n\nRegistration: 8-8:30AM\nEducational Meeting: 8:30AM-12PM\nLunch & Networking: 12-1PM\n\nCost: $25 per person (lunch included) \nIf you are unable attend due to the cost of this event\, please reach out to info@dtrf.org to connect with a DTRF team member. \nHere is a sample of desmoid tumor topics that will be covered by our distinguished presenters: \n\nReview of radiology procedures like HIFU and cryoablation\nUpdate on systemic treatments and clinical trials\nSurgical management of desmoid tumors\nMock Tumor Board desmoid tumor case discussion\n\nPlease note this educational and networking event is designed for desmoid tumor patients and caregivers. \nAlthough there will be onsite registration the morning of the event\, please note that online registration closes on Thursday\, December 4th at midnight. \nRegister Here \nShare this event with your networks: Download Event Flyer
URL:https://dtrf.org/event/navigating-your-desmoid-tumor-diagnosis-a-1-2-day-patient-education-and-networking-opportunity-2/
CATEGORIES:Caregivers,Clinicians,Connection,Education,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/01/Penn-Event_2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251010T120000
DTEND;TZID=America/New_York:20251010T130000
DTSTAMP:20250901T133759Z
CREATED:20250901T133759Z
LAST-MODIFIED:20250901T133759Z
UID:10000040-1760097600-1760101200@dtrf.org
SUMMARY:DTRF Educational Webinar: Pregnancy and Desmoid Tumors
DESCRIPTION:The understanding of pregnancy-associated desmoids has increased significantly over the past several years. In this virtual educational webinar\, the panel will discuss the literature and their approach to desmoids. Management of desmoids in the setting of pregnancy should be tailored to the patient and specific clinical situation and typically results in a healthy pregnancy and delivery. \nThis will be a recorded webinar. Our expert panelists from Dana Farber Cancer Institute and The Brigham and Women’s Hospital will speak for roughly 45 minutes and the remaining 15 minutes will be for Q&A. Bring your lunch and your questions for this important discussion. \nRegister Here
URL:https://dtrf.org/event/dtrf-educational-webinar-pregnancy-and-desmoid-tumors/
CATEGORIES:Caregivers,Connection,Patients,Research
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/09/Pregnancy_webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250912
DTEND;VALUE=DATE:20250914
DTSTAMP:20250908T173503Z
CREATED:20250220T161638Z
LAST-MODIFIED:20250908T173503Z
UID:10000030-1757635200-1757807999@dtrf.org
SUMMARY:2025 DTRF "Together We Will" Weekend
DESCRIPTION:Online registration is closed. In-person registration is still available at event check-in. \nJoin us for the 2025 DTRF Together We Will Weekend in Chicago\, IL on September 12-13 (Fri/Sat)! Featured events include the DTRF International Research Workshop for medical and industry professionals\, along with the DTRF Annual Patient Meeting for all attendees. \nThe annual DTRF Together We Will Weekend brings together patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate\, and learn together. \nThank you to our Presenting Sponsor\, SpringWorks Therapeutics for supporting this annual event. \n  \n\n\nDon’t forget to sign-up for RFA Virtual too!\nStart your fundraising journey and follow the steps to claim your fundraising page today. Even though we won’t be hosting an in-person walk or run this year\, keep the RFA fun going by creating a walk\, run\, challenge or special event help us fund a cure for desmoid tumors! \nTake a look at our RFA Fundraising Toolkit to get ideas and help you along the way! We encourage you to start a walk\, run\, challenge or other special event in your community to gather friends and family to support desmoid tumor research\, education\, and advocacy. \n✨ Claim Your Fundraising Page \n 
URL:https://dtrf.org/event/2025-dtrf-together-we-will-weekend/
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Patients,Research,Researchers
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/02/Zoom-Registration_Banner-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250528T123000
DTEND;TZID=America/New_York:20250528T133000
DTSTAMP:20250515T132632Z
CREATED:20250515T132501Z
LAST-MODIFIED:20250515T132632Z
UID:10000034-1748435400-1748439000@dtrf.org
SUMMARY:"Understanding the Classification of Desmoid Tumors"
DESCRIPTION:Join us for a conversation about the classification and language used to describe desmoid tumors. We’ll hear about the challenges in communication faced by both patients and doctors\, and what we – and you! – can do moving forward to help alleviate misunderstandings about this rare disease. \nSpecial Guests include: \n✨️ Ravin Ratan\, MD\, Associate Professor\, Sarcoma\, MD Anderson Cancer Center⁠ ⁠ \n✨️ DeAnn Sorenson\, Administrator of The Desmoidian\, Desmoid Tumor Patient\, and Patient Advocate ⁠ ⁠ \n✨️ Alexander Ommaya\, DSc\, Desmoid Tumor Patient and Patient Advocate⁠ \nRegister Here \n\nAt the DTRF\, we want to “Spread the Word” far and wide that desmoid tumors are NOT benign.\nThe medical community\, research publications\, and other sources often use differing terms when describing desmoid tumors; one of those terms is the word “benign.” Over the years\, we’ve heard countless stories that this is confusing to patients as well as clinicians. This confusion can lead to misunderstandings about treatment and minimizes the potentially serious consequences of this rare disease. \nHow are desmoid tumors classified?\nDesmoid tumors (also known as aggressive fibromatosis\, desmoid fibromatosis\, and desmoid-type fibromatosis) do not metastasize. They are classified by the World Health Organization (WHO) as  “Intermediate (locally aggressive)” soft tissue tumors. They do not fall under “Benign” or “Malignant” classifications. \nLearn more about the World Health Organization’s (WHO) classification of desmoid tumors\, which is listed under Table II: Fibroblastic/Myofibroblastic Tumours. \nTo make a significant impact on behalf of the patient community\, we invite you to connect with the DTRF\, share our social content\, and spread the word that desmoid tumors are NOT benign. \nThank you for helping raise awareness and educate the community about the classification of desmoid tumors!
URL:https://dtrf.org/event/understanding-the-classification-of-desmoid-tumors/
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Patients,Research,Researchers
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/05/STW_banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250512T180000
DTEND;TZID=America/New_York:20250512T190000
DTSTAMP:20250428T194708Z
CREATED:20250428T194509Z
LAST-MODIFIED:20250428T194708Z
UID:10000032-1747072800-1747076400@dtrf.org
SUMMARY:A New Clinical Trial for Desmoid Tumor Patients:  FOG-001
DESCRIPTION:Register today for the upcoming webinar on May 12th @ 6PM ET entitled\, “A New Clinical Trial for Desmoid Tumor Patients:  FOG-001.” This webinar is hosted by the DTRF with special guest Gregory Cote\, MD\, PhD\, Physician at Massachusetts General Hospital and Associate Professor at Harvard Medical School. \nJoin us to ask questions in real time! During this educational webinar\, Dr. Cote will discuss the challenges of developing drugs\, the basics of clinical trials\, and a new clinical trial for adults living with desmoid tumors. ⁠ \nSpecial thank you to Parabilis Medicines for sponsoring this event. \nLearn more about this webinar and register here.
URL:https://dtrf.org/event/a-new-clinical-trial-for-desmoid-tumor-patients-fog-001/
CATEGORIES:Caregivers,Connection,Patients,Research
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/04/FOG-001_event-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250512
DTEND;VALUE=DATE:20251101
DTSTAMP:20250514T140610Z
CREATED:20250512T161848Z
LAST-MODIFIED:20250514T140610Z
UID:10000033-1747008000-1761955199@dtrf.org
SUMMARY:2025 RFA Virtual
DESCRIPTION:Running for Answers (RFA) is going VIRTUAL!\n\n\nEven though there won’t be an in-person run or walk this year\, help the DTRF carry on the RFA tradition and make a bigger impact by launching a virtual fundraiser today! \nRunning for Answers was founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009 and quickly became DTRF’s annual fundraising event. 2025 RFA Virtual offers something for everyone. You can build a team\, create an event or participate as an individual to spread awareness and fundraise for a cure! \n\n✨ Click here to make a difference and launch your fundraising page today. \nNote: RFA Virtual fundraising will conclude on October 31\, 2025. \n \n\n\n\nDon’t forget to register for the 2025 DTRF Together We Will Weekend!\nJoin us for the DTRF Together We Will Weekend in Chicago\, IL on September 12-13 (Fri/Sat)! Featured events include the DTRF International Research Workshop for medical and industry professionals\, along with the DTRF Annual Patient Meeting for all attendees. \nThe annual DTRF Together We Will Weekend brings together patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate\, and learn together. \nThank you to our Presenting Sponsor\, SpringWorks Therapeutics for supporting this annual event. \n✨ Register Here
URL:https://dtrf.org/event/2025-rfa-virtual/
CATEGORIES:5K,Awareness,Caregivers,Connection,Fundraising,Patients,Virtual,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/05/RFA-event-calendar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250324T180000
DTEND;TZID=America/New_York:20250324T190000
DTSTAMP:20250305T173101Z
CREATED:20250305T173101Z
LAST-MODIFIED:20250305T173101Z
UID:10000031-1742839200-1742842800@dtrf.org
SUMMARY:Ask the Radiologist: A Q+A about Imaging
DESCRIPTION:The DTRF is excited to try new and different ways of sharing knowledge with the desmoid patient community. Join us for “Ask the Radiologist”\, a unique opportunity to virtually – face-to-face – speak with a leading radiologist about your desmoid tumor questions on Monday\, March 24th at 6PM ET. This conversation will be an *unrecorded* Zoom meeting (not a webinar) in Q&A format. \nRegister Here \nSpecial guest: \nRobert Lefkowitz\, MD\, is an Associate Professor of Radiology at Weill Cornell Medical College\, and a Clinical Member at Memorial Sloan Kettering Cancer Center. Also a member of DTRF’s Medical Advisory Board\, Dr. Lefkowitz specializes in abdominal and musculoskeletal imaging and he has a particular interest in imaging of soft tissue tumors. Currently\, he is involved in several prospective and retrospective research projects evaluating the treatment response of desmoid tumors to medical therapy and the associated changes seen on MRI. \nInstructions:  \n1. Before attending this Q&A\, please watch Dr. Lefkowitz’s 2023 Patient Meeting presentation\, “Imaging of Desmoid Tumors\,” by clicking this link: https://vimeo.com/881532231. \n2. After watching the video\, submit your questions when you register for this Q&A event. Dr. Lefkowitz will answer your questions about all things radiology from imaging modalities to scans. \nPlease Note:  \nA DTRF team member will facilitate this Zoom Meeting as an open forum\, Q&A. The meeting will not be recorded to maintain the confidentiality of its attendees’ personal information. \nEach desmoid tumor case is different. These conversations are not intended as medical advice for any individual problem or as a diagnosis\, treatment plan\, or recommendation for a particular course of action and should not be used as a substitute for professional medical advice and services.
URL:https://dtrf.org/event/ask-the-radiologist-a-qa-about-imaging/
CATEGORIES:Caregivers,Connection,Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/03/Ask-the-radiologist.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250227T180000
DTEND;TZID=America/New_York:20250227T190000
DTSTAMP:20250212T191408Z
CREATED:20250212T191408Z
LAST-MODIFIED:20250212T191408Z
UID:10000029-1740679200-1740682800@dtrf.org
SUMMARY:Facebook Live with Desmoid Tumor Patient: Amy Beitz
DESCRIPTION:In honor of Rare Disease Day this year\, join us LIVE on Facebook on February 27th\, at 6 PM ET for a conversation with desmoid tumor patient\, Amy Beitz! You don’t want to miss Amy share her desmoid tumor story. To join the event and ask questions\, visit our Facebook Live Event link in our feed the week of the event. \nIf you would like to share your desmoid tumor journey with us\, please submit your story to be considered for a patient feature during this campaign: https://bit.ly/DTRF-submit-story \n \nTo make a significant impact on behalf of the patient community\, we invite you to attend this Facebook Live event\, share our social content\, and spread the word that desmoid tumors are NOT benign. \nLearn more about the World Health Organization’s (WHO) classification of desmoid tumors\, which is listed under Table II: Fibroblastic/Myofibroblastic Tumours: https://pmc.ncbi.nlm.nih.gov/articles/PMC8167394
URL:https://dtrf.org/event/facebook-live-with-desmoid-tumor-patient-amy-beitz/
CATEGORIES:Awareness,Caregivers,Connection,Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/02/Fb-live_banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250208T080000
DTEND;TZID=America/New_York:20250208T130000
DTSTAMP:20250207T135332Z
CREATED:20250102T170101Z
LAST-MODIFIED:20250207T135332Z
UID:10000028-1739001600-1739019600@dtrf.org
SUMMARY:Navigating Your Desmoid Tumor Diagnosis:  A 1/2 day patient education and networking opportunity
DESCRIPTION:Have questions about your desmoid tumor diagnosis?  \nWant to learn from sarcoma specialists who work with desmoid tumors? \nLooking to come face-to-face with other patients and caregivers who share your journey? \nJoin us on February 8th at Pennsylvania Hospital’s Zubrow Auditorium in Center City Philadelphia for an opportunity to connect with and learn from other desmoid tumor patients and Penn Medicine clinicians. Included will be educational talks\, a patient panel\, and an opportunity to meet other patients. \nOnline registration is now closed\, but on-site registration is still available. Major credit cards and checks are accepted at registration. \nPresented in partnership with Penn Medicine. Thank you to our event sponsor\, the Green Family Foundation.
URL:https://dtrf.org/event/navigating-your-desmoid-tumor-diagnosis-a-1-2-day-patient-education-and-networking-opportunity/
CATEGORIES:Caregivers,Connection,Education,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/01/Penn-Event_2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250129T130000
DTEND;TZID=America/New_York:20250129T140000
DTSTAMP:20241118T154922Z
CREATED:20241118T154830Z
LAST-MODIFIED:20241118T154922Z
UID:10000026-1738155600-1738159200@dtrf.org
SUMMARY:DTRF Lunch N' Learn: "Reproductive/fertility considerations for desmoid tumor patients"
DESCRIPTION:During this virtual event\, Dr. Laurie McKenzie will share how you can obtain a fertility assessment before and after treatment for desmoid tumors. She will share fertility preservation options available for both men and women. Also\, she’ll provide some additional reliable resources in terms of fertility preservation options and reproductive considerations. \nThis will be a recorded webinar. Dr. McKenzie will speak for roughly 15 minutes and there will be lots of time for Q&A. Bring your lunch and your questions for this important discussion. Special thank you to SpringWorks Therapeutics for sponsoring this event.  \nDr. Laurie J. McKenzie is an Associate Professor in the Department of Gynecologic Oncology and Reproductive Medicine at University of Texas MD Anderson Cancer Center\, and holds a joint appointment in the Division of Reproductive Endocrinology and Infertility at Baylor College of Medicine. She is former chair of the Scientific program for ACOG’s Annual Clinical Meeting\, board examiner for ABOG and serves on multiple national committees. She has authored numerous articles in peer-reviewed journals and serves as a reviewer for the Journal of Assisted Reproduction and Genetics and Fertility and Sterility. Dr. McKenzie’s primary research interest is assessing the ovarian toxicity of cancer therapeutics. Her clinical practice at MD Anderson Cancer Center encompasses fertility counseling and preservation prior to cancer treatment as well as family-building services for men and women. \nTo learn more\, register\, and submit a question in advance: https://bit.ly/DTRFlunchnlearn
URL:https://dtrf.org/event/dtrf-lunch-n-learn-reproductive-fertility-considerations-for-desmoid-tumor-patients/
CATEGORIES:Awareness,Caregivers,Connection,Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/11/Lunch-n-learn.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240922T073000
DTEND;TZID=America/Chicago:20240922T103000
DTSTAMP:20240521T144819Z
CREATED:20240425T161510Z
LAST-MODIFIED:20240521T144819Z
UID:10000015-1726990200-1727001000@dtrf.org
SUMMARY:2024 RFA Walk
DESCRIPTION:The 2024 RFA Walk offers something for everyone; build a team\, participate as an individual\, create awareness\, and help fundraise for a cure!\nRunning for Answers (RFA)\, founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009\, is the annual DTRF signature fundraising event. This year\, the desmoid tumor patient community and supporters will come together for the first-ever walk at the Houston Zoo as a unified force against desmoid tumors. \nRegister today and claim your fundraising page to start raising awareness\, powering research\, and advocating for desmoid tumor patients! \nDon’t forget to register separately for the DTRF Together We Will Weekend!
URL:https://dtrf.org/event/2024-rfa-walk/
LOCATION:Houston Zoo\, 6200 Hermann Park Drive\, Houston\, TX\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Fundraising,Patients,Researchers,Virtual,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/04/RFA_EVENT_tile.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T124500
DTEND;TZID=America/New_York:20240921T180000
DTSTAMP:20240530T115210Z
CREATED:20240425T161428Z
LAST-MODIFIED:20240530T115210Z
UID:10000013-1726922700-1726941600@dtrf.org
SUMMARY:2024 Annual Patient Meeting
DESCRIPTION:Founded in 2007\, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend.\nIt always takes place on Saturday\, the day before our annual RFA Walk. The meeting includes educational presentations by clinicians and researchers\, with questions from the audience\, as well as a talk by a desmoid patient. \nContent is geared toward topics of interest to our patient and caregiver community. Physicians are also strongly encouraged to attend this foundational event of the Weekend. This meeting will be recorded and available on our website in the weeks following the event. \nThe Patient Meeting is part of the DTRF Together We Will Weekend. In order to attend the Meeting\, you need to register for the Weekend.
URL:https://dtrf.org/event/2024-annual-patient-meeting/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240920T110000
DTEND;TZID=America/Chicago:20240920T190000
DTSTAMP:20240530T115108Z
CREATED:20240425T161609Z
LAST-MODIFIED:20240530T115108Z
UID:10000014-1726830000-1726858800@dtrf.org
SUMMARY:2024 International Research Workshop
DESCRIPTION:The DTRF International Research Workshop features:\n\nScientific talks on current research and treatment\nA forum to share research findings\, develop new collaborations\, bring new scientists into the desmoid tumor research field\, and discuss innovations that will lead to new treatments\nLive questions/answers and discussions related to the scientific talks\nGroup discussions focusing on gaps in desmoid tumor science and how best to address them through high-impact collaborative research\n\nThe DTRF International Research Workshop is part of the DTRF Together We Will Weekend. In order to attend the Workshop\, you need to register for the Weekend.
URL:https://dtrf.org/event/2024-international-research-workshop/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240920
DTEND;VALUE=DATE:20240923
DTSTAMP:20240425T162406Z
CREATED:20240319T213442Z
LAST-MODIFIED:20240425T162406Z
UID:10000012-1726790400-1727049599@dtrf.org
SUMMARY:2024 Together We Will Weekend
DESCRIPTION:Together we will advance research\, empower our community with information\, foster connection\, and fundraise for a cure.\nWe are excited to announce the DTRF Together We Will Weekend and RFA Walk is moving to Houston\, TX on September 20-22\, 2024! \nEvents include the DTRF International Research Workshop for medical and industry professionals\, along with DTRF Patient Meeting for all attendees. \nThe annual DTRF Together We Will Weekend brings together patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate\, and learn! \nEarly bird registration is officially OPEN! Use code TWWHOUSTON20 at checkout for 20% off registration. REGISTER here!
URL:https://dtrf.org/event/2024-together-we-will-weekend/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230923T000000
DTEND;TZID=America/New_York:20230923T000000
DTSTAMP:20231106T175714Z
CREATED:20230915T204159Z
LAST-MODIFIED:20231106T175714Z
UID:10000004-1695427200-1695427200@dtrf.org
SUMMARY:DTRF Community Networking Event (DTRF Together We Will Weekend event)
DESCRIPTION:Community connections can be transformative and are essential to the patient and caregiver journey. Our Community Networking Event is a wonderful opportunity to have one-on-one\, real-time conversations with fellow patients and caregivers. The event is structured to provide a natural way to get to know attendees and share experiences by connecting in small groups in a safe and private setting. Event structure has included group conversations and brief\, one-on-one conversations (called “Speed Desmoidian-ing”).
URL:https://dtrf.org/event/dtrf-community-networking-event-dtrf-together-we-will-weekend-event/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Connection,Patients
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/2019PM_Dakota-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230923T000000
DTEND;TZID=America/New_York:20230923T000000
DTSTAMP:20231106T175430Z
CREATED:20230915T204157Z
LAST-MODIFIED:20231106T175430Z
UID:10000002-1695427200-1695427200@dtrf.org
SUMMARY:DTRF Patient Meeting (DTRF Together We Will Weekend event)
DESCRIPTION:Founded in 2007\, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. The meeting includes educational presentations by clinicians and researchers\, with questions from the audience\, as well as a talk by a desmoid patient. Content is geared toward topics of interest to our patient and caregiver community. Physicians are also strongly encouraged to attend this foundational event of the Weekend.
URL:https://dtrf.org/event/dtrf-patient-meeting-dtrf-together-we-will-weekend-event/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Clinicians,Connection,Education,Patients,Research,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/PatientMtg_GenImagery_5.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230922T000000
DTEND;TZID=America/New_York:20230924T000000
DTSTAMP:20230915T205720Z
CREATED:20230915T204155Z
LAST-MODIFIED:20230915T205720Z
UID:10000001-1695340800-1695513600@dtrf.org
SUMMARY:DTRF Together We Will Weekend
DESCRIPTION:DTRF Together We Will Weekend convenes patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate and learn. Together We Will advance research\, empower ourselves with information\, and fundraise for a cure.
URL:https://dtrf.org/event/dtrf-together-we-will-weekend/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Clinicians,Connection,Education,Patients,Research,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/EventsCal_TWW-Weekend.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230901T000000
DTEND;TZID=America/New_York:20230930T000000
DTSTAMP:20230915T205734Z
CREATED:20230915T204205Z
LAST-MODIFIED:20230915T205734Z
UID:10000007-1693526400-1696032000@dtrf.org
SUMMARY:Desmoid Tumor Awareness Month
DESCRIPTION:Desmoid Tumor Awareness Month is an annual\, worldwide DTRF campaign that builds upon the work of our community to create awareness for desmoid tumors. Every September\, the DTRF and the global patient and caregiver community share stories and information\, and rally support to advance desmoid tumor research. Wherever you are\, we encourage you to participate and help us raise #DesmoidAwareness!
URL:https://dtrf.org/event/desmoid-tumor-awareness-month/
CATEGORIES:Awareness,Caregivers,Clinicians,Fundraising,Patients,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/EventsCal_DesmoidTumorAwarenessMonth.jpg
END:VEVENT
END:VCALENDAR