BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Desmoid Tumor Research Foundation - ECPv6.17.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://dtrf.org
X-WR-CALDESC:Events for The Desmoid Tumor Research Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Chicago
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20230312T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20231105T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20240310T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20241103T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20250309T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20251102T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250324T180000
DTEND;TZID=America/New_York:20250324T190000
DTSTAMP:20250305T173101Z
CREATED:20250305T173101Z
LAST-MODIFIED:20250305T173101Z
UID:10000031-1742839200-1742842800@dtrf.org
SUMMARY:Ask the Radiologist: A Q+A about Imaging
DESCRIPTION:The DTRF is excited to try new and different ways of sharing knowledge with the desmoid patient community. Join us for “Ask the Radiologist”\, a unique opportunity to virtually – face-to-face – speak with a leading radiologist about your desmoid tumor questions on Monday\, March 24th at 6PM ET. This conversation will be an *unrecorded* Zoom meeting (not a webinar) in Q&A format. \nRegister Here \nSpecial guest: \nRobert Lefkowitz\, MD\, is an Associate Professor of Radiology at Weill Cornell Medical College\, and a Clinical Member at Memorial Sloan Kettering Cancer Center. Also a member of DTRF’s Medical Advisory Board\, Dr. Lefkowitz specializes in abdominal and musculoskeletal imaging and he has a particular interest in imaging of soft tissue tumors. Currently\, he is involved in several prospective and retrospective research projects evaluating the treatment response of desmoid tumors to medical therapy and the associated changes seen on MRI. \nInstructions:  \n1. Before attending this Q&A\, please watch Dr. Lefkowitz’s 2023 Patient Meeting presentation\, “Imaging of Desmoid Tumors\,” by clicking this link: https://vimeo.com/881532231. \n2. After watching the video\, submit your questions when you register for this Q&A event. Dr. Lefkowitz will answer your questions about all things radiology from imaging modalities to scans. \nPlease Note:  \nA DTRF team member will facilitate this Zoom Meeting as an open forum\, Q&A. The meeting will not be recorded to maintain the confidentiality of its attendees’ personal information. \nEach desmoid tumor case is different. These conversations are not intended as medical advice for any individual problem or as a diagnosis\, treatment plan\, or recommendation for a particular course of action and should not be used as a substitute for professional medical advice and services.
URL:https://dtrf.org/event/ask-the-radiologist-a-qa-about-imaging/
CATEGORIES:Caregivers,Connection,Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/03/Ask-the-radiologist.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250227T180000
DTEND;TZID=America/New_York:20250227T190000
DTSTAMP:20250212T191408Z
CREATED:20250212T191408Z
LAST-MODIFIED:20250212T191408Z
UID:10000029-1740679200-1740682800@dtrf.org
SUMMARY:Facebook Live with Desmoid Tumor Patient: Amy Beitz
DESCRIPTION:In honor of Rare Disease Day this year\, join us LIVE on Facebook on February 27th\, at 6 PM ET for a conversation with desmoid tumor patient\, Amy Beitz! You don’t want to miss Amy share her desmoid tumor story. To join the event and ask questions\, visit our Facebook Live Event link in our feed the week of the event. \nIf you would like to share your desmoid tumor journey with us\, please submit your story to be considered for a patient feature during this campaign: https://bit.ly/DTRF-submit-story \n \nTo make a significant impact on behalf of the patient community\, we invite you to attend this Facebook Live event\, share our social content\, and spread the word that desmoid tumors are NOT benign. \nLearn more about the World Health Organization’s (WHO) classification of desmoid tumors\, which is listed under Table II: Fibroblastic/Myofibroblastic Tumours: https://pmc.ncbi.nlm.nih.gov/articles/PMC8167394
URL:https://dtrf.org/event/facebook-live-with-desmoid-tumor-patient-amy-beitz/
CATEGORIES:Awareness,Caregivers,Connection,Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/02/Fb-live_banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250208T080000
DTEND;TZID=America/New_York:20250208T130000
DTSTAMP:20250207T135332Z
CREATED:20250102T170101Z
LAST-MODIFIED:20250207T135332Z
UID:10000028-1739001600-1739019600@dtrf.org
SUMMARY:Navigating Your Desmoid Tumor Diagnosis:  A 1/2 day patient education and networking opportunity
DESCRIPTION:Have questions about your desmoid tumor diagnosis?  \nWant to learn from sarcoma specialists who work with desmoid tumors? \nLooking to come face-to-face with other patients and caregivers who share your journey? \nJoin us on February 8th at Pennsylvania Hospital’s Zubrow Auditorium in Center City Philadelphia for an opportunity to connect with and learn from other desmoid tumor patients and Penn Medicine clinicians. Included will be educational talks\, a patient panel\, and an opportunity to meet other patients. \nOnline registration is now closed\, but on-site registration is still available. Major credit cards and checks are accepted at registration. \nPresented in partnership with Penn Medicine. Thank you to our event sponsor\, the Green Family Foundation.
URL:https://dtrf.org/event/navigating-your-desmoid-tumor-diagnosis-a-1-2-day-patient-education-and-networking-opportunity/
CATEGORIES:Caregivers,Connection,Education,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/01/Penn-Event_2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250129T130000
DTEND;TZID=America/New_York:20250129T140000
DTSTAMP:20241118T154922Z
CREATED:20241118T154830Z
LAST-MODIFIED:20241118T154922Z
UID:10000026-1738155600-1738159200@dtrf.org
SUMMARY:DTRF Lunch N' Learn: "Reproductive/fertility considerations for desmoid tumor patients"
DESCRIPTION:During this virtual event\, Dr. Laurie McKenzie will share how you can obtain a fertility assessment before and after treatment for desmoid tumors. She will share fertility preservation options available for both men and women. Also\, she’ll provide some additional reliable resources in terms of fertility preservation options and reproductive considerations. \nThis will be a recorded webinar. Dr. McKenzie will speak for roughly 15 minutes and there will be lots of time for Q&A. Bring your lunch and your questions for this important discussion. Special thank you to SpringWorks Therapeutics for sponsoring this event.  \nDr. Laurie J. McKenzie is an Associate Professor in the Department of Gynecologic Oncology and Reproductive Medicine at University of Texas MD Anderson Cancer Center\, and holds a joint appointment in the Division of Reproductive Endocrinology and Infertility at Baylor College of Medicine. She is former chair of the Scientific program for ACOG’s Annual Clinical Meeting\, board examiner for ABOG and serves on multiple national committees. She has authored numerous articles in peer-reviewed journals and serves as a reviewer for the Journal of Assisted Reproduction and Genetics and Fertility and Sterility. Dr. McKenzie’s primary research interest is assessing the ovarian toxicity of cancer therapeutics. Her clinical practice at MD Anderson Cancer Center encompasses fertility counseling and preservation prior to cancer treatment as well as family-building services for men and women. \nTo learn more\, register\, and submit a question in advance: https://bit.ly/DTRFlunchnlearn
URL:https://dtrf.org/event/dtrf-lunch-n-learn-reproductive-fertility-considerations-for-desmoid-tumor-patients/
CATEGORIES:Awareness,Caregivers,Connection,Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/11/Lunch-n-learn.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240922T073000
DTEND;TZID=America/Chicago:20240922T103000
DTSTAMP:20240521T144819Z
CREATED:20240425T161510Z
LAST-MODIFIED:20240521T144819Z
UID:10000015-1726990200-1727001000@dtrf.org
SUMMARY:2024 RFA Walk
DESCRIPTION:The 2024 RFA Walk offers something for everyone; build a team\, participate as an individual\, create awareness\, and help fundraise for a cure!\nRunning for Answers (RFA)\, founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009\, is the annual DTRF signature fundraising event. This year\, the desmoid tumor patient community and supporters will come together for the first-ever walk at the Houston Zoo as a unified force against desmoid tumors. \nRegister today and claim your fundraising page to start raising awareness\, powering research\, and advocating for desmoid tumor patients! \nDon’t forget to register separately for the DTRF Together We Will Weekend!
URL:https://dtrf.org/event/2024-rfa-walk/
LOCATION:Houston Zoo\, 6200 Hermann Park Drive\, Houston\, TX\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Fundraising,Patients,Researchers,Virtual,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/04/RFA_EVENT_tile.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T124500
DTEND;TZID=America/New_York:20240921T180000
DTSTAMP:20240530T115210Z
CREATED:20240425T161428Z
LAST-MODIFIED:20240530T115210Z
UID:10000013-1726922700-1726941600@dtrf.org
SUMMARY:2024 Annual Patient Meeting
DESCRIPTION:Founded in 2007\, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend.\nIt always takes place on Saturday\, the day before our annual RFA Walk. The meeting includes educational presentations by clinicians and researchers\, with questions from the audience\, as well as a talk by a desmoid patient. \nContent is geared toward topics of interest to our patient and caregiver community. Physicians are also strongly encouraged to attend this foundational event of the Weekend. This meeting will be recorded and available on our website in the weeks following the event. \nThe Patient Meeting is part of the DTRF Together We Will Weekend. In order to attend the Meeting\, you need to register for the Weekend.
URL:https://dtrf.org/event/2024-annual-patient-meeting/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240920T110000
DTEND;TZID=America/Chicago:20240920T190000
DTSTAMP:20240530T115108Z
CREATED:20240425T161609Z
LAST-MODIFIED:20240530T115108Z
UID:10000014-1726830000-1726858800@dtrf.org
SUMMARY:2024 International Research Workshop
DESCRIPTION:The DTRF International Research Workshop features:\n\nScientific talks on current research and treatment\nA forum to share research findings\, develop new collaborations\, bring new scientists into the desmoid tumor research field\, and discuss innovations that will lead to new treatments\nLive questions/answers and discussions related to the scientific talks\nGroup discussions focusing on gaps in desmoid tumor science and how best to address them through high-impact collaborative research\n\nThe DTRF International Research Workshop is part of the DTRF Together We Will Weekend. In order to attend the Workshop\, you need to register for the Weekend.
URL:https://dtrf.org/event/2024-international-research-workshop/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240920
DTEND;VALUE=DATE:20240923
DTSTAMP:20240425T162406Z
CREATED:20240319T213442Z
LAST-MODIFIED:20240425T162406Z
UID:10000012-1726790400-1727049599@dtrf.org
SUMMARY:2024 Together We Will Weekend
DESCRIPTION:Together we will advance research\, empower our community with information\, foster connection\, and fundraise for a cure.\nWe are excited to announce the DTRF Together We Will Weekend and RFA Walk is moving to Houston\, TX on September 20-22\, 2024! \nEvents include the DTRF International Research Workshop for medical and industry professionals\, along with DTRF Patient Meeting for all attendees. \nThe annual DTRF Together We Will Weekend brings together patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate\, and learn! \nEarly bird registration is officially OPEN! Use code TWWHOUSTON20 at checkout for 20% off registration. REGISTER here!
URL:https://dtrf.org/event/2024-together-we-will-weekend/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230923T000000
DTEND;TZID=America/New_York:20230923T000000
DTSTAMP:20231106T175714Z
CREATED:20230915T204159Z
LAST-MODIFIED:20231106T175714Z
UID:10000004-1695427200-1695427200@dtrf.org
SUMMARY:DTRF Community Networking Event (DTRF Together We Will Weekend event)
DESCRIPTION:Community connections can be transformative and are essential to the patient and caregiver journey. Our Community Networking Event is a wonderful opportunity to have one-on-one\, real-time conversations with fellow patients and caregivers. The event is structured to provide a natural way to get to know attendees and share experiences by connecting in small groups in a safe and private setting. Event structure has included group conversations and brief\, one-on-one conversations (called “Speed Desmoidian-ing”).
URL:https://dtrf.org/event/dtrf-community-networking-event-dtrf-together-we-will-weekend-event/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Connection,Patients
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/2019PM_Dakota-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230923T000000
DTEND;TZID=America/New_York:20230923T000000
DTSTAMP:20231106T175430Z
CREATED:20230915T204157Z
LAST-MODIFIED:20231106T175430Z
UID:10000002-1695427200-1695427200@dtrf.org
SUMMARY:DTRF Patient Meeting (DTRF Together We Will Weekend event)
DESCRIPTION:Founded in 2007\, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. The meeting includes educational presentations by clinicians and researchers\, with questions from the audience\, as well as a talk by a desmoid patient. Content is geared toward topics of interest to our patient and caregiver community. Physicians are also strongly encouraged to attend this foundational event of the Weekend.
URL:https://dtrf.org/event/dtrf-patient-meeting-dtrf-together-we-will-weekend-event/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Clinicians,Connection,Education,Patients,Research,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/PatientMtg_GenImagery_5.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230922T000000
DTEND;TZID=America/New_York:20230924T000000
DTSTAMP:20230915T205720Z
CREATED:20230915T204155Z
LAST-MODIFIED:20230915T205720Z
UID:10000001-1695340800-1695513600@dtrf.org
SUMMARY:DTRF Together We Will Weekend
DESCRIPTION:DTRF Together We Will Weekend convenes patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate and learn. Together We Will advance research\, empower ourselves with information\, and fundraise for a cure.
URL:https://dtrf.org/event/dtrf-together-we-will-weekend/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Clinicians,Connection,Education,Patients,Research,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/EventsCal_TWW-Weekend.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230901T000000
DTEND;TZID=America/New_York:20230930T000000
DTSTAMP:20230915T205734Z
CREATED:20230915T204205Z
LAST-MODIFIED:20230915T205734Z
UID:10000007-1693526400-1696032000@dtrf.org
SUMMARY:Desmoid Tumor Awareness Month
DESCRIPTION:Desmoid Tumor Awareness Month is an annual\, worldwide DTRF campaign that builds upon the work of our community to create awareness for desmoid tumors. Every September\, the DTRF and the global patient and caregiver community share stories and information\, and rally support to advance desmoid tumor research. Wherever you are\, we encourage you to participate and help us raise #DesmoidAwareness!
URL:https://dtrf.org/event/desmoid-tumor-awareness-month/
CATEGORIES:Awareness,Caregivers,Clinicians,Fundraising,Patients,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/EventsCal_DesmoidTumorAwarenessMonth.jpg
END:VEVENT
END:VCALENDAR