Featured
Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.
The Desmoid Tumor Research Foundation
Desmoid Tumor Awareness Month: Facebook Live with Amanda MacKinnon
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Clinicians
DTRF Int’l Research Workshop (DTRF Together We Will Weekend event)
Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United StatesDesigned for researchers and medical professionals, the annual DTRF International Desmoid Tumor Research Workshop is a critically important, collaborative event bringing together some of the brightest minds in the field of desmoid tumors from a variety of disciplines. It presents the latest information on desmoid treatments and research, and facilitates new collaborations to move the […]
Featured
DTRF Together We Will Weekend
Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United StatesThis weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Patient Meeting, DTRF Int’l Research Workshop, RFA 5K & Fun Run, and DTRF Community Networking Event.
DTRF Patient Meeting (DTRF Together We Will Weekend event)
Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United StatesFounded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. The meeting includes educational presentations by clinicians and researchers, with questions from the audience, as well as a talk by a desmoid patient. Content is geared toward topics of interest to our patient and […]
Desmoid Tumor Awareness Month: Webinar with Dr. Dale Shepard
On Thursday, September 5th at 4pm ET, join us for a webinar featuring Dr. Dale Shepard from the Cleveland Clinic. He will explain how impactful the testing of biomarkers is in the diagnosis and treatment of desmoid tumors. He will also touch on genetic testing in relation to CTNNB1 mutations. Register Here Dale R. Shepard […]
Desmoid Tumor Awareness Month: Facebook Live with Megan Barrell
Celebrate Desmoid Tumor Awareness Month with us! On Thursday, September 11th at 3pm ET, join us for a Facebook Live featuring Megan Barrell, Desmoid Tumor Patient Advocate. The conversation will focus on Megan's lived experience and patient journey as a young adult with a desmoid tumor.
