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DTSTART;VALUE=DATE:20250512
DTEND;VALUE=DATE:20251101
DTSTAMP:20250514T140610Z
CREATED:20250512T161848Z
LAST-MODIFIED:20250514T140610Z
UID:10000033-1747008000-1761955199@dtrf.org
SUMMARY:2025 RFA Virtual
DESCRIPTION:Running for Answers (RFA) is going VIRTUAL!\n\n\nEven though there won’t be an in-person run or walk this year\, help the DTRF carry on the RFA tradition and make a bigger impact by launching a virtual fundraiser today! \nRunning for Answers was founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009 and quickly became DTRF’s annual fundraising event. 2025 RFA Virtual offers something for everyone. You can build a team\, create an event or participate as an individual to spread awareness and fundraise for a cure! \n\n✨ Click here to make a difference and launch your fundraising page today. \nNote: RFA Virtual fundraising will conclude on October 31\, 2025. \n \n\n\n\nDon’t forget to register for the 2025 DTRF Together We Will Weekend!\nJoin us for the DTRF Together We Will Weekend in Chicago\, IL on September 12-13 (Fri/Sat)! Featured events include the DTRF International Research Workshop for medical and industry professionals\, along with the DTRF Annual Patient Meeting for all attendees. \nThe annual DTRF Together We Will Weekend brings together patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate\, and learn together. \nThank you to our Presenting Sponsor\, SpringWorks Therapeutics for supporting this annual event. \n✨ Register Here
URL:https://dtrf.org/event/2025-rfa-virtual/
CATEGORIES:5K,Awareness,Caregivers,Connection,Fundraising,Patients,Virtual,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/05/RFA-event-calendar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250324T180000
DTEND;TZID=America/New_York:20250324T190000
DTSTAMP:20250305T173101Z
CREATED:20250305T173101Z
LAST-MODIFIED:20250305T173101Z
UID:10000031-1742839200-1742842800@dtrf.org
SUMMARY:Ask the Radiologist: A Q+A about Imaging
DESCRIPTION:The DTRF is excited to try new and different ways of sharing knowledge with the desmoid patient community. Join us for “Ask the Radiologist”\, a unique opportunity to virtually – face-to-face – speak with a leading radiologist about your desmoid tumor questions on Monday\, March 24th at 6PM ET. This conversation will be an *unrecorded* Zoom meeting (not a webinar) in Q&A format. \nRegister Here \nSpecial guest: \nRobert Lefkowitz\, MD\, is an Associate Professor of Radiology at Weill Cornell Medical College\, and a Clinical Member at Memorial Sloan Kettering Cancer Center. Also a member of DTRF’s Medical Advisory Board\, Dr. Lefkowitz specializes in abdominal and musculoskeletal imaging and he has a particular interest in imaging of soft tissue tumors. Currently\, he is involved in several prospective and retrospective research projects evaluating the treatment response of desmoid tumors to medical therapy and the associated changes seen on MRI. \nInstructions:  \n1. Before attending this Q&A\, please watch Dr. Lefkowitz’s 2023 Patient Meeting presentation\, “Imaging of Desmoid Tumors\,” by clicking this link: https://vimeo.com/881532231. \n2. After watching the video\, submit your questions when you register for this Q&A event. Dr. Lefkowitz will answer your questions about all things radiology from imaging modalities to scans. \nPlease Note:  \nA DTRF team member will facilitate this Zoom Meeting as an open forum\, Q&A. The meeting will not be recorded to maintain the confidentiality of its attendees’ personal information. \nEach desmoid tumor case is different. These conversations are not intended as medical advice for any individual problem or as a diagnosis\, treatment plan\, or recommendation for a particular course of action and should not be used as a substitute for professional medical advice and services.
URL:https://dtrf.org/event/ask-the-radiologist-a-qa-about-imaging/
CATEGORIES:Caregivers,Connection,Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/03/Ask-the-radiologist.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250227T180000
DTEND;TZID=America/New_York:20250227T190000
DTSTAMP:20250212T191408Z
CREATED:20250212T191408Z
LAST-MODIFIED:20250212T191408Z
UID:10000029-1740679200-1740682800@dtrf.org
SUMMARY:Facebook Live with Desmoid Tumor Patient: Amy Beitz
DESCRIPTION:In honor of Rare Disease Day this year\, join us LIVE on Facebook on February 27th\, at 6 PM ET for a conversation with desmoid tumor patient\, Amy Beitz! You don’t want to miss Amy share her desmoid tumor story. To join the event and ask questions\, visit our Facebook Live Event link in our feed the week of the event. \nIf you would like to share your desmoid tumor journey with us\, please submit your story to be considered for a patient feature during this campaign: https://bit.ly/DTRF-submit-story \n \nTo make a significant impact on behalf of the patient community\, we invite you to attend this Facebook Live event\, share our social content\, and spread the word that desmoid tumors are NOT benign. \nLearn more about the World Health Organization’s (WHO) classification of desmoid tumors\, which is listed under Table II: Fibroblastic/Myofibroblastic Tumours: https://pmc.ncbi.nlm.nih.gov/articles/PMC8167394
URL:https://dtrf.org/event/facebook-live-with-desmoid-tumor-patient-amy-beitz/
CATEGORIES:Awareness,Caregivers,Connection,Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/02/Fb-live_banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250208T080000
DTEND;TZID=America/New_York:20250208T130000
DTSTAMP:20250207T135332Z
CREATED:20250102T170101Z
LAST-MODIFIED:20250207T135332Z
UID:10000028-1739001600-1739019600@dtrf.org
SUMMARY:Navigating Your Desmoid Tumor Diagnosis:  A 1/2 day patient education and networking opportunity
DESCRIPTION:Have questions about your desmoid tumor diagnosis?  \nWant to learn from sarcoma specialists who work with desmoid tumors? \nLooking to come face-to-face with other patients and caregivers who share your journey? \nJoin us on February 8th at Pennsylvania Hospital’s Zubrow Auditorium in Center City Philadelphia for an opportunity to connect with and learn from other desmoid tumor patients and Penn Medicine clinicians. Included will be educational talks\, a patient panel\, and an opportunity to meet other patients. \nOnline registration is now closed\, but on-site registration is still available. Major credit cards and checks are accepted at registration. \nPresented in partnership with Penn Medicine. Thank you to our event sponsor\, the Green Family Foundation.
URL:https://dtrf.org/event/navigating-your-desmoid-tumor-diagnosis-a-1-2-day-patient-education-and-networking-opportunity/
CATEGORIES:Caregivers,Connection,Education,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/01/Penn-Event_2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250207
DTEND;VALUE=DATE:20250209
DTSTAMP:20241127T142718Z
CREATED:20241127T142718Z
LAST-MODIFIED:20241127T142718Z
UID:10000027-1738886400-1739059199@dtrf.org
SUMMARY:3rd Annual Pink in the Rink
DESCRIPTION:The Pink in the Rink fundraiser will include games played by the Orchard Lake Hockey Association followed by three games featuring the Orchard Lake St. Mary’s (OLSM) hockey teams vs their rival – Brother Rice (BR)\, culminating with the Varsity game at 7:00pm.  \n Throughout the day there will be basket raffles\, 50/50 raffles as well as merchandise sales. All three OLSM vs BR hockey games will be Live Broadcast on The Prep\, which means they can be watched live or on demand- free of charge. The hosts of Pink on the Rink expect more than 1500 people in attendance and even more watching the event online. Contact pinkintherink1@gmail.com for more information or download the flyer below. \nDownload Event Flyer
URL:https://dtrf.org/event/3rd-annual-pink-in-the-rink/
CATEGORIES:Awareness,Connection,Fundraising
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/11/Screenshot-2024-11-27-at-7.20.00 AM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250129T130000
DTEND;TZID=America/New_York:20250129T140000
DTSTAMP:20241118T154922Z
CREATED:20241118T154830Z
LAST-MODIFIED:20241118T154922Z
UID:10000026-1738155600-1738159200@dtrf.org
SUMMARY:DTRF Lunch N' Learn: "Reproductive/fertility considerations for desmoid tumor patients"
DESCRIPTION:During this virtual event\, Dr. Laurie McKenzie will share how you can obtain a fertility assessment before and after treatment for desmoid tumors. She will share fertility preservation options available for both men and women. Also\, she’ll provide some additional reliable resources in terms of fertility preservation options and reproductive considerations. \nThis will be a recorded webinar. Dr. McKenzie will speak for roughly 15 minutes and there will be lots of time for Q&A. Bring your lunch and your questions for this important discussion. Special thank you to SpringWorks Therapeutics for sponsoring this event.  \nDr. Laurie J. McKenzie is an Associate Professor in the Department of Gynecologic Oncology and Reproductive Medicine at University of Texas MD Anderson Cancer Center\, and holds a joint appointment in the Division of Reproductive Endocrinology and Infertility at Baylor College of Medicine. She is former chair of the Scientific program for ACOG’s Annual Clinical Meeting\, board examiner for ABOG and serves on multiple national committees. She has authored numerous articles in peer-reviewed journals and serves as a reviewer for the Journal of Assisted Reproduction and Genetics and Fertility and Sterility. Dr. McKenzie’s primary research interest is assessing the ovarian toxicity of cancer therapeutics. Her clinical practice at MD Anderson Cancer Center encompasses fertility counseling and preservation prior to cancer treatment as well as family-building services for men and women. \nTo learn more\, register\, and submit a question in advance: https://bit.ly/DTRFlunchnlearn
URL:https://dtrf.org/event/dtrf-lunch-n-learn-reproductive-fertility-considerations-for-desmoid-tumor-patients/
CATEGORIES:Awareness,Caregivers,Connection,Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/11/Lunch-n-learn.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241027
DTEND;VALUE=DATE:20241028
DTSTAMP:20240830T170134Z
CREATED:20240830T170011Z
LAST-MODIFIED:20240830T170134Z
UID:10000023-1729987200-1730073599@dtrf.org
SUMMARY:8th Annual JoeStrong Halloween Charity Volleyball Tournament
DESCRIPTION:The JoeStrong Volleyball Tournament is back again! Scan the QR Code or click on the event website link below to register for this fun annual event in Austin\, TX. \n 
URL:https://dtrf.org/event/8th-annual-joestrong-halloween-charity-volleyball-tournament/
LOCATION:ATX Beach\, 11000 Middle Fiskville Rd\, Austin\, TX\, 78753\, United States
CATEGORIES:Awareness,Connection,Fundraising,Patients
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/10/2023-JoeStrong.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241023T120000
DTEND;TZID=America/New_York:20241023T130000
DTSTAMP:20241008T173418Z
CREATED:20241008T173418Z
LAST-MODIFIED:20241008T173418Z
UID:10000024-1729684800-1729688400@dtrf.org
SUMMARY:Educational Webinar: "Cryoablation: What We Know and Don't Know"
DESCRIPTION:Register today for the upcoming educational webinar hosted by the DTRF with special guests Bernd Kasper\, MD\, PhD\, Professor\, University of Heidelberg\, Mannheim University Medical Center in Germany and Jean-Emmanuel Kurtz\, MD\, PhD\, Professor of Medical Oncology from Strasbourg University- Hôpitaux Universitaires de Strasbourg in France. \nDuring this webinar\, Dr. Kurtz will talk about how cryoablation is performed and how it works. He’ll also cover what we do and don’t know about this targeted treatment option for desmoid tumors. Dr. Kasper will broaden the scope by touching on systemic therapeutic treatments. After these talks\, we’ll open up for questions from the community. \nRegister Here \n  \n 
URL:https://dtrf.org/event/educational-webinar-cryoablation-what-we-know-and-dont-know/
CATEGORIES:Awareness,Connection,Education,Fundraising,Patients,Research
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/10/zoom-webinar-banner_1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240925T150000
DTEND;TZID=America/New_York:20240925T160000
DTSTAMP:20240830T173100Z
CREATED:20240830T164942Z
LAST-MODIFIED:20240830T173100Z
UID:10000022-1727276400-1727280000@dtrf.org
SUMMARY:Desmoid Tumor Awareness Month: Facebook Live with Amanda MacKinnon
DESCRIPTION:Celebrate Desmoid Tumor Awareness Month with us! On Thursday\, September 25th at 3pm ET\, join us for a Facebook Live featuring Amanda MacKinnon\, caregiver of a desmoid tumor patient. The conversation will focus on Amanda’s caregiver journey.
URL:https://dtrf.org/event/desmoid-tumor-awareness-month-facebook-live-with-megan-barrell-2/
CATEGORIES:Awareness,Clinicians,Connection,Fundraising,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/08/Zoom_Banner_DTAM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240923
DTEND;VALUE=DATE:20240924
DTSTAMP:20240710T180019Z
CREATED:20240530T183941Z
LAST-MODIFIED:20240710T180019Z
UID:10000018-1727049600-1727135999@dtrf.org
SUMMARY:Swing for a Cure - St. Louis
DESCRIPTION:The Ortwerth family invites you to the 6th Annual Swing For A Cure – St. Louis to raise funds for desmoid tumor research! Register HERE for this special event.
URL:https://dtrf.org/event/swing-for-a-cure-st-louis-2/
CATEGORIES:Awareness,Connection,Fundraising,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/05/Swing-for-a-cure_blog.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240922T073000
DTEND;TZID=America/Chicago:20240922T103000
DTSTAMP:20240521T144819Z
CREATED:20240425T161510Z
LAST-MODIFIED:20240521T144819Z
UID:10000015-1726990200-1727001000@dtrf.org
SUMMARY:2024 RFA Walk
DESCRIPTION:The 2024 RFA Walk offers something for everyone; build a team\, participate as an individual\, create awareness\, and help fundraise for a cure!\nRunning for Answers (RFA)\, founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009\, is the annual DTRF signature fundraising event. This year\, the desmoid tumor patient community and supporters will come together for the first-ever walk at the Houston Zoo as a unified force against desmoid tumors. \nRegister today and claim your fundraising page to start raising awareness\, powering research\, and advocating for desmoid tumor patients! \nDon’t forget to register separately for the DTRF Together We Will Weekend!
URL:https://dtrf.org/event/2024-rfa-walk/
LOCATION:Houston Zoo\, 6200 Hermann Park Drive\, Houston\, TX\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Fundraising,Patients,Researchers,Virtual,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/04/RFA_EVENT_tile.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T124500
DTEND;TZID=America/New_York:20240921T180000
DTSTAMP:20240530T115210Z
CREATED:20240425T161428Z
LAST-MODIFIED:20240530T115210Z
UID:10000013-1726922700-1726941600@dtrf.org
SUMMARY:2024 Annual Patient Meeting
DESCRIPTION:Founded in 2007\, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend.\nIt always takes place on Saturday\, the day before our annual RFA Walk. The meeting includes educational presentations by clinicians and researchers\, with questions from the audience\, as well as a talk by a desmoid patient. \nContent is geared toward topics of interest to our patient and caregiver community. Physicians are also strongly encouraged to attend this foundational event of the Weekend. This meeting will be recorded and available on our website in the weeks following the event. \nThe Patient Meeting is part of the DTRF Together We Will Weekend. In order to attend the Meeting\, you need to register for the Weekend.
URL:https://dtrf.org/event/2024-annual-patient-meeting/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240920T110000
DTEND;TZID=America/Chicago:20240920T190000
DTSTAMP:20240530T115108Z
CREATED:20240425T161609Z
LAST-MODIFIED:20240530T115108Z
UID:10000014-1726830000-1726858800@dtrf.org
SUMMARY:2024 International Research Workshop
DESCRIPTION:The DTRF International Research Workshop features:\n\nScientific talks on current research and treatment\nA forum to share research findings\, develop new collaborations\, bring new scientists into the desmoid tumor research field\, and discuss innovations that will lead to new treatments\nLive questions/answers and discussions related to the scientific talks\nGroup discussions focusing on gaps in desmoid tumor science and how best to address them through high-impact collaborative research\n\nThe DTRF International Research Workshop is part of the DTRF Together We Will Weekend. In order to attend the Workshop\, you need to register for the Weekend.
URL:https://dtrf.org/event/2024-international-research-workshop/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240920
DTEND;VALUE=DATE:20240923
DTSTAMP:20240425T162406Z
CREATED:20240319T213442Z
LAST-MODIFIED:20240425T162406Z
UID:10000012-1726790400-1727049599@dtrf.org
SUMMARY:2024 Together We Will Weekend
DESCRIPTION:Together we will advance research\, empower our community with information\, foster connection\, and fundraise for a cure.\nWe are excited to announce the DTRF Together We Will Weekend and RFA Walk is moving to Houston\, TX on September 20-22\, 2024! \nEvents include the DTRF International Research Workshop for medical and industry professionals\, along with DTRF Patient Meeting for all attendees. \nThe annual DTRF Together We Will Weekend brings together patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate\, and learn! \nEarly bird registration is officially OPEN! Use code TWWHOUSTON20 at checkout for 20% off registration. REGISTER here!
URL:https://dtrf.org/event/2024-together-we-will-weekend/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240915
DTEND;VALUE=DATE:20240916
DTSTAMP:20240627T134157Z
CREATED:20240614T164435Z
LAST-MODIFIED:20240627T134157Z
UID:10000019-1726358400-1726444799@dtrf.org
SUMMARY:Golf For A Cure
DESCRIPTION:$100 – Per Player includes 18 holes w/cart\, reception\, drink tickets\, raffles \nAll proceeds go to support research for a cure through the Desmoid Tumor Research Foundation \nLocation: Crestview Golf Course \nLearn more by downloading the event guide here!
URL:https://dtrf.org/event/golf-for-a-cure/
LOCATION:Zeeland\, MI\, 49464
CATEGORIES:Awareness,Connection,Fundraising,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/06/Screenshot-2024-06-14-at-12.43.33 PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240911T150000
DTEND;TZID=America/New_York:20240911T160000
DTSTAMP:20240830T173120Z
CREATED:20240830T164622Z
LAST-MODIFIED:20240830T173120Z
UID:10000021-1726066800-1726070400@dtrf.org
SUMMARY:Desmoid Tumor Awareness Month: Facebook Live with Megan Barrell
DESCRIPTION:Celebrate Desmoid Tumor Awareness Month with us! On Thursday\, September 11th at 3pm ET\, join us for a Facebook Live featuring Megan Barrell\, Desmoid Tumor Patient Advocate. The conversation will focus on Megan’s lived experience and patient journey as a young adult with a desmoid tumor. \n \n 
URL:https://dtrf.org/event/desmoid-tumor-awareness-month-facebook-live-with-megan-barrell/
CATEGORIES:Awareness,Clinicians,Connection,Fundraising,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/08/Zoom_Banner_DTAM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240905T160000
DTEND;TZID=America/New_York:20240905T170000
DTSTAMP:20240822T144813Z
CREATED:20240822T144813Z
LAST-MODIFIED:20240822T144813Z
UID:10000020-1725552000-1725555600@dtrf.org
SUMMARY:Desmoid Tumor Awareness Month: Webinar with Dr. Dale Shepard
DESCRIPTION:On Thursday\, September 5th at 4pm ET\, join us for a webinar featuring Dr. Dale Shepard from the Cleveland Clinic. He will explain how impactful the testing of biomarkers is in the diagnosis and treatment of desmoid tumors. He will also touch on genetic testing in relation to CTNNB1 mutations. \nRegister Here \nDale R. Shepard MD\, PhD is the Director of the Taussig Phase I and Sarcoma programs at Cleveland Clinic. In this role\, Dr. Shepard oversees the early development of the new cancer therapies including the genomic-based treatments and immunotherapies that are revolutionizing the care of patients with cancer. He sees nearly 200 sarcoma consults annually with patients from across the country including patients with desmoid tumors. As a medical oncologist and clinical researcher\, he has been the principal investigator for dozens of clinical trials and has been a recipient of a National Cancer Institute Cancer Clinical Investigator Team Leadership Award. Dr. Shepard is a thought leader for management of sarcoma\, gastrointestinal and genitourinary cancers and has been a consultant for many pharmaceutical companies. He earned a PhD in Pharmacology and his MD at The Ohio State University and completed a Clinical Pharmacology fellowship at the University of Chicago. \nThank you to our DTAM Virtual Event sponsor\, Recursion\, for supporting this special awareness month. \n \n 
URL:https://dtrf.org/event/dtamwebinar/
CATEGORIES:Awareness,Clinicians,Connection,Fundraising,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/08/Zoom_Banner_DTAM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240713
DTEND;VALUE=DATE:20240714
DTSTAMP:20240530T115949Z
CREATED:20240530T115949Z
LAST-MODIFIED:20240530T115949Z
UID:10000016-1720828800-1720915199@dtrf.org
SUMMARY:Athina's Ride
DESCRIPTION:Athina’s Ride is a cycling event that starts with training rides in the spring and culminates on July 13/14th weekend. You can either complete the ride on your own\, with family & friends or join our ride led by Athina Merckx on the Saturday July 13th in Penticton\, British Columbia. Come join Athina and support her and other Desmoid patients in the fight to find a cure. \nDetails: This ride will be a casual 30 km route around Naramata bench. If you want more of a challenge raise $1000 and you will receive a free entry into the Okanagan Granfondo on Sunday July 14th and can choose from 4 distances. Ride by yourself\, with some friends or along with the Okanagan Granfondo ride. You can ride indoors on a trainer or outdoors (and manually log it or use platforms like Strava to automatically upload your rides). You’ll sign up\, choose your distance\, and start training anytime up until July 14th.
URL:https://dtrf.org/event/athinas-ride/
LOCATION:Penticton B.C.
CATEGORIES:Awareness,Connection,Fundraising,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/05/Athinas-ride_blog.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240511
DTEND;VALUE=DATE:20240512
DTSTAMP:20240530T120415Z
CREATED:20240530T120415Z
LAST-MODIFIED:20240530T120415Z
UID:10000017-1715385600-1715471999@dtrf.org
SUMMARY:WMK Classic: Lacrosse Tournament Fundraiser
DESCRIPTION:1st Annual WMK Classic (presented by WYL) \nCharity 3-on-3 Small Ball Lacrosse Tournament benefitting the DTRF in Winchester\, Massachusetts. Contact Chris Froeb for more information: chrisfroeb@gmail.com
URL:https://dtrf.org/event/wmk-classic-lacrosse-tournament-fundraiser/
CATEGORIES:Awareness,Connection,Fundraising,Patients
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/05/WMK-Classic-Lacrosse-blog.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230924T080000
DTEND;TZID=America/New_York:20230924T080000
DTSTAMP:20231106T175843Z
CREATED:20230915T204200Z
LAST-MODIFIED:20231106T175843Z
UID:10000005-1695542400-1695542400@dtrf.org
SUMMARY:RFA 5K & Fun Fun
DESCRIPTION:The RFA 5K & Fun Run\, founded by desmoid tumor patient Sera Snyder in 2010\, is our annual signature fundraising event and the celebratory finale of the annual DTRF Together We Will Weekend. The desmoid tumor community and supporters gather to walk\, run\, and roll on our accessible course together as a unified force against desmoid tumors. By participating in RFA\, anyone\, anywhere can build a team\, create awareness\, and help fundraise for a cure!
URL:https://dtrf.org/event/rfa-5k-fun-fun/
LOCATION:Fairmount Park\, 4231 Avenue of the Republic\, Philadelphia\, PA\, 19131\, United States
CATEGORIES:5K,Connection,Fundraising,Walk
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/RFA_GenImagery_10.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230923T000000
DTEND;TZID=America/New_York:20230923T000000
DTSTAMP:20231106T175714Z
CREATED:20230915T204159Z
LAST-MODIFIED:20231106T175714Z
UID:10000004-1695427200-1695427200@dtrf.org
SUMMARY:DTRF Community Networking Event (DTRF Together We Will Weekend event)
DESCRIPTION:Community connections can be transformative and are essential to the patient and caregiver journey. Our Community Networking Event is a wonderful opportunity to have one-on-one\, real-time conversations with fellow patients and caregivers. The event is structured to provide a natural way to get to know attendees and share experiences by connecting in small groups in a safe and private setting. Event structure has included group conversations and brief\, one-on-one conversations (called “Speed Desmoidian-ing”).
URL:https://dtrf.org/event/dtrf-community-networking-event-dtrf-together-we-will-weekend-event/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Connection,Patients
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/2019PM_Dakota-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230923T000000
DTEND;TZID=America/New_York:20230923T000000
DTSTAMP:20231106T175430Z
CREATED:20230915T204157Z
LAST-MODIFIED:20231106T175430Z
UID:10000002-1695427200-1695427200@dtrf.org
SUMMARY:DTRF Patient Meeting (DTRF Together We Will Weekend event)
DESCRIPTION:Founded in 2007\, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. The meeting includes educational presentations by clinicians and researchers\, with questions from the audience\, as well as a talk by a desmoid patient. Content is geared toward topics of interest to our patient and caregiver community. Physicians are also strongly encouraged to attend this foundational event of the Weekend.
URL:https://dtrf.org/event/dtrf-patient-meeting-dtrf-together-we-will-weekend-event/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Clinicians,Connection,Education,Patients,Research,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/PatientMtg_GenImagery_5.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230922T000000
DTEND;TZID=America/New_York:20230924T000000
DTSTAMP:20230915T205720Z
CREATED:20230915T204155Z
LAST-MODIFIED:20230915T205720Z
UID:10000001-1695340800-1695513600@dtrf.org
SUMMARY:DTRF Together We Will Weekend
DESCRIPTION:DTRF Together We Will Weekend convenes patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate and learn. Together We Will advance research\, empower ourselves with information\, and fundraise for a cure.
URL:https://dtrf.org/event/dtrf-together-we-will-weekend/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Clinicians,Connection,Education,Patients,Research,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/EventsCal_TWW-Weekend.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230922T000000
DTEND;TZID=America/New_York:20230922T000000
DTSTAMP:20231106T175608Z
CREATED:20230915T204158Z
LAST-MODIFIED:20231106T175608Z
UID:10000003-1695340800-1695340800@dtrf.org
SUMMARY:DTRF Int'l Research Workshop (DTRF Together We Will Weekend event)
DESCRIPTION:Designed for researchers and medical professionals\, the annual DTRF International Desmoid Tumor Research Workshop is a critically important\, collaborative event bringing together some of the brightest minds in the field of desmoid tumors from a variety of disciplines. It presents the latest information on desmoid treatments and research\, and facilitates new collaborations to move the science forward. The Workshop also helps us identify research priorities for the coming years. We are sincerely grateful to our attendees who play a key role in advancing the field.
URL:https://dtrf.org/event/dtrf-intl-research-workshop-dtrf-together-we-will-weekend-event/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Clinicians,Connection,Education,Research,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/DTRF-RW-2018-7.jpg
END:VEVENT
END:VCALENDAR