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X-WR-CALNAME:The Desmoid Tumor Research Foundation
X-ORIGINAL-URL:https://dtrf.org
X-WR-CALDESC:Events for The Desmoid Tumor Research Foundation
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DTSTART;VALUE=DATE:20250512
DTEND;VALUE=DATE:20251101
DTSTAMP:20260530T110737
CREATED:20250512T161848Z
LAST-MODIFIED:20250514T140610Z
UID:10000033-1747008000-1761955199@dtrf.org
SUMMARY:2025 RFA Virtual
DESCRIPTION:Running for Answers (RFA) is going VIRTUAL!\n\n\nEven though there won’t be an in-person run or walk this year\, help the DTRF carry on the RFA tradition and make a bigger impact by launching a virtual fundraiser today! \nRunning for Answers was founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009 and quickly became DTRF’s annual fundraising event. 2025 RFA Virtual offers something for everyone. You can build a team\, create an event or participate as an individual to spread awareness and fundraise for a cure! \n\n✨ Click here to make a difference and launch your fundraising page today. \nNote: RFA Virtual fundraising will conclude on October 31\, 2025. \n \n\n\n\nDon’t forget to register for the 2025 DTRF Together We Will Weekend!\nJoin us for the DTRF Together We Will Weekend in Chicago\, IL on September 12-13 (Fri/Sat)! Featured events include the DTRF International Research Workshop for medical and industry professionals\, along with the DTRF Annual Patient Meeting for all attendees. \nThe annual DTRF Together We Will Weekend brings together patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate\, and learn together. \nThank you to our Presenting Sponsor\, SpringWorks Therapeutics for supporting this annual event. \n✨ Register Here
URL:https://dtrf.org/event/2025-rfa-virtual/
CATEGORIES:5K,Awareness,Caregivers,Connection,Fundraising,Patients,Virtual,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2025/05/RFA-event-calendar.png
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240922T073000
DTEND;TZID=America/Chicago:20240922T103000
DTSTAMP:20260530T110737
CREATED:20240425T161510Z
LAST-MODIFIED:20240521T144819Z
UID:10000015-1726990200-1727001000@dtrf.org
SUMMARY:2024 RFA Walk
DESCRIPTION:The 2024 RFA Walk offers something for everyone; build a team\, participate as an individual\, create awareness\, and help fundraise for a cure!\nRunning for Answers (RFA)\, founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009\, is the annual DTRF signature fundraising event. This year\, the desmoid tumor patient community and supporters will come together for the first-ever walk at the Houston Zoo as a unified force against desmoid tumors. \nRegister today and claim your fundraising page to start raising awareness\, powering research\, and advocating for desmoid tumor patients! \nDon’t forget to register separately for the DTRF Together We Will Weekend!
URL:https://dtrf.org/event/2024-rfa-walk/
LOCATION:Houston Zoo\, 6200 Hermann Park Drive\, Houston\, TX\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Fundraising,Patients,Researchers,Virtual,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/04/RFA_EVENT_tile.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T124500
DTEND;TZID=America/New_York:20240921T180000
DTSTAMP:20260530T110737
CREATED:20240425T161428Z
LAST-MODIFIED:20240530T115210Z
UID:10000013-1726922700-1726941600@dtrf.org
SUMMARY:2024 Annual Patient Meeting
DESCRIPTION:Founded in 2007\, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend.\nIt always takes place on Saturday\, the day before our annual RFA Walk. The meeting includes educational presentations by clinicians and researchers\, with questions from the audience\, as well as a talk by a desmoid patient. \nContent is geared toward topics of interest to our patient and caregiver community. Physicians are also strongly encouraged to attend this foundational event of the Weekend. This meeting will be recorded and available on our website in the weeks following the event. \nThe Patient Meeting is part of the DTRF Together We Will Weekend. In order to attend the Meeting\, you need to register for the Weekend.
URL:https://dtrf.org/event/2024-annual-patient-meeting/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240920T110000
DTEND;TZID=America/Chicago:20240920T190000
DTSTAMP:20260530T110737
CREATED:20240425T161609Z
LAST-MODIFIED:20240530T115108Z
UID:10000014-1726830000-1726858800@dtrf.org
SUMMARY:2024 International Research Workshop
DESCRIPTION:The DTRF International Research Workshop features:\n\nScientific talks on current research and treatment\nA forum to share research findings\, develop new collaborations\, bring new scientists into the desmoid tumor research field\, and discuss innovations that will lead to new treatments\nLive questions/answers and discussions related to the scientific talks\nGroup discussions focusing on gaps in desmoid tumor science and how best to address them through high-impact collaborative research\n\nThe DTRF International Research Workshop is part of the DTRF Together We Will Weekend. In order to attend the Workshop\, you need to register for the Weekend.
URL:https://dtrf.org/event/2024-international-research-workshop/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240920
DTEND;VALUE=DATE:20240923
DTSTAMP:20260530T110737
CREATED:20240319T213442Z
LAST-MODIFIED:20240425T162406Z
UID:10000012-1726790400-1727049599@dtrf.org
SUMMARY:2024 Together We Will Weekend
DESCRIPTION:Together we will advance research\, empower our community with information\, foster connection\, and fundraise for a cure.\nWe are excited to announce the DTRF Together We Will Weekend and RFA Walk is moving to Houston\, TX on September 20-22\, 2024! \nEvents include the DTRF International Research Workshop for medical and industry professionals\, along with DTRF Patient Meeting for all attendees. \nThe annual DTRF Together We Will Weekend brings together patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate\, and learn! \nEarly bird registration is officially OPEN! Use code TWWHOUSTON20 at checkout for 20% off registration. REGISTER here!
URL:https://dtrf.org/event/2024-together-we-will-weekend/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230924T080000
DTEND;TZID=America/New_York:20230924T080000
DTSTAMP:20260530T110737
CREATED:20230915T204200Z
LAST-MODIFIED:20231106T175843Z
UID:10000005-1695542400-1695542400@dtrf.org
SUMMARY:RFA 5K & Fun Fun
DESCRIPTION:The RFA 5K & Fun Run\, founded by desmoid tumor patient Sera Snyder in 2010\, is our annual signature fundraising event and the celebratory finale of the annual DTRF Together We Will Weekend. The desmoid tumor community and supporters gather to walk\, run\, and roll on our accessible course together as a unified force against desmoid tumors. By participating in RFA\, anyone\, anywhere can build a team\, create awareness\, and help fundraise for a cure!
URL:https://dtrf.org/event/rfa-5k-fun-fun/
LOCATION:Fairmount Park\, 4231 Avenue of the Republic\, Philadelphia\, PA\, 19131\, United States
CATEGORIES:5K,Connection,Fundraising,Walk
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/RFA_GenImagery_10.jpg
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