The Desmoid Tumor Research Foundation
Support Nick Plant on his DTRF fundraising journey. A Note from Nick: This year, I’ve decided to take on the Lakeland Trails 100km Ultra run in support of the Desmoid Tumour Research Foundation (DTRF). This charity does incredible work, they aggressively fund desmoid tumor research, accelerate the development of improved therapies, drive collaborations among clinicians and researchers worldwide, and […]
$100 - Per Player includes 18 holes with golf cart, reception, drink tickets & raffles All proceeds of this event go to support research for a cure through the Desmoid Tumor Research Foundation! Location: Crestview Golf Course - Zeeland, Michigan Learn more by downloading the event guide here!
Online registration is closed. In-person registration is still available at event check-in. Join us for the 2025 DTRF Together We Will Weekend in Chicago, IL on September 12-13 (Fri/Sat)! Featured events include the DTRF International Research Workshop for medical and industry professionals, along with the DTRF Annual Patient Meeting for all attendees. The annual DTRF Together We Will Weekend brings together patients, caregivers, researchers, clinicians and […]
The Ortwerth family invites you to the 7th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Register HERE for this special event.
The understanding of pregnancy-associated desmoids has increased significantly over the past several years. In this virtual educational webinar, the panel will discuss the literature and their approach to desmoids. Management of desmoids in the setting of pregnancy should be tailored to the patient and specific clinical situation and typically results in a healthy pregnancy and […]
TRIBE is organizing the first annual “Rock for a Cure” concert featuring Batterhead and Tom Fills for an amazing charity near and dear to our hearts - Desmoid Tumor Research Foundation. DTRF is funding grants for groundbreaking research into why desmoid tumors spontaneously regress--without any treatment--at a rate nearly 10 times as frequently as with […]
Reserve your spot at our upcoming patient education event in collaboration with Stanford School of Medicine to connect with and learn from other desmoid tumor patients and clinicians. A variety of educational talks and a networking opportunity will be included in this half day patient-centered event. Event Schedule: Registration: 8-8:30AM Educational Meeting: 8:30AM-12PM Lunch & Networking: 12-1PM […]
Join us LIVE on Facebook and Instagram in honor of Rare Disease Day! On Thursday, February 26th at 5 PM ET, Morgan will share her personal journey living with a desmoid tumor. She’ll discuss the challenges, uncertainties, and resilience that so many in the desmoid community know firsthand. This live event is an opportunity to […]
Help us Spread the Word by joining the Desmoid Tumor Research Foundation on March 24th from 6-7 PM ET for an educational webinar exploring desmoid tumor diagnosis, pathology classification, and the real-world impact these distinctions have on treatment decisions and patient wellbeing. This multidisciplinary discussion will examine how desmoid tumors are identified and categorized, what […]
Living with Desmoid Tumors: A DTRF Education Experience is a one day, in-person event designed for patients and caregivers seeking trusted information about desmoid tumors and connection with a community that understands their lived experiences. What can you expect? This event is designed with YOU in mind. Every session of this special, one day event is purposefully curated […]
Join us for our upcoming webinar, "Navigating Desmoid Tumor Treatment Options & Insights on Zolucatetide (FOG-001)" with Dr. Gregory Cote, DTRF Medical Advisory Board Member and medical oncologist at Mass General Brigham Cancer Institute to explore current treatment options for people living with desmoid tumors. This session will include a high-level overview of today’s treatment […]
The Okanagan Graveller cycling event benefits the Desmoid Tumour Foundation of Canada (DFC), a long-standing partner of DTRF. Participate or register for the event by clicking visiting the registration page. The DTRF and DFC are currently collaborating and co-funding two multi-year research grants focused on spontaneous regression in desmoid tumors to help advance shared scientific […]
The presentation of the RINGSIDE trial data in May marked an important moment for the desmoid tumor community. Join the DTRF and Dr. Rashmi Chugh, MD, of University of Michigan Health, for a timely discussion of the latest findings from the clinical study evaluating varegacestat, an investigational gamma secretase inhibitor (GSI) being studied for the […]
In honor of Sarcoma Awareness Month, the Desmoid Tumor Research Foundation (DTRF) invites you to a new story-sharing event featuring Amanda is an artist and keynote speaker who is both an Ewing’s sarcoma survivor and currently living with a desmoid tumor. This special virtual event will offer a comforting and supportive space to hear Amanda’s […]
