PATIENT SUPPORT
Annual Patient Meeting
WE WILL FIND A CURE!
Patients are no longer fighting this disease alone. From firsthand experience we know what it is like to hear “you have a desmoid tumor.” The key to starting this journey with confidence is information! You’ll find this website to be a clearing house of important information.
Most of all, we seek to support patients by giving them hope through funding research for a cure.
Learn more about Desmoid tumors and what they are here.
If you are diagnosed with a desmoid tumor, it is recommended that you be seen in a major, academic hospital with experts in sarcoma.
Our annual newsletters keep you updated on research and important DTRF advancements and activities.
Register now.
Learn about resources that might be helpful to you here.
View clinical trials involving desmoid tumors here.