In the Media
Videos
Articles
Audio
Videos
Watch Lap4Life Founder Maddalena Casabianca Reade and DTRF Co-Founder Marlene discuss desmoid tumors, the incredible impact of volunteer fundraisers and Lap4Life, an annual 4 mile run/walk which takes place at Chadwick Lake in Newburgh, NY.
Articles
“To develop Grit, align with strong partners” With Marlene Portnoy and Phil Laboon. Interview on Thrive Global and Medium’s Authority Magazine
From Memorial Sloan Kettering: “Kirt’s Story: How a Clinical Trial for a Rare Tumor Gave Me a New Lease on Life”
New England Journal of Medicine Article “Sorafenib for Advanced and Refractory Desmoid Tumors” & DTRF Press Release
Episode of The Doctors – “Living with a Desmoid Tumor”
Audio
A partnership forms between patient advocate, Marlene Portnoy, and Dr. Mrinal Gounder to bring about one of the most important rare cancer discoveries in recent years.
Public Service Announcement supporting Running For Answers 5K
Public Service Announcement supporting Lap4Life Foundation
Listen to this Sarcoma Sisters podcast featuring Dr. Aaron Weiss, Chair of The DTRF’s Medical Advisory Board talking to the Sarcoma Sisters about desmoid tumors
