In the Media
Videos
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Videos

Watch Lap4Life Founder Maddalena Casabianca Reade and DTRF Co-Founder Marlene discuss desmoid tumors, the incredible impact of volunteer fundraisers and Lap4Life, an annual 4 mile run/walk which takes place at Chadwick Lake in Newburgh, NY.
Articles
“To develop Grit, align with strong partners” With Marlene Portnoy and Phil Laboon. Interview on Thrive Global and Medium’s Authority Magazine
From Memorial Sloan Kettering: “Kirt’s Story: How a Clinical Trial for a Rare Tumor Gave Me a New Lease on Life”
New England Journal of Medicine Article “Sorafenib for Advanced and Refractory Desmoid Tumors” & DTRF Press Release

Episode of The Doctors – “Living with a Desmoid Tumor”
Audio
Listen to this Sarcoma Sisters podcast featuring Dr. Aaron Weiss, Chair of The DTRF’s Medical Advisory Board talking to the Sarcoma Sisters about desmoid tumors