In the Media - Desmoid Tumor Research Foundation

In the Media

A partnership forms between patient advocate, Marlene Portnoy, and Dr. Mrinal Gounder to bring about one of the most important rare cancer discoveries in recent years.

Kevin Reilly

Public Service Announcement supporting Running For Answers 5K

Public Service Announcement supporting Lap4Life Foundation

‘Unbreakable’ Alex Powell battles to continue college soccer career

“To develop Grit, align with strong partners” With Marlene Portnoy and Phil Laboon. Interview on Thrive Global and Medium’s Authority Magazine

From Memorial Sloan Kettering: “Kirt’s Story: How a Clinical Trial for a Rare Tumor Gave Me a New Lease on Life”

New England Journal of Medicine Article “Sorafenib for Advanced and Refractory Desmoid Tumors” & DTRF Press Release

Video 1

Episode of The Doctors – “Living with a Desmoid Tumor”

DTRF Co-Founders accept the Abby S. Meyers Leadership award on behalf of the Foundation at NORD’s 2021 Rare Impact Award Ceremony

Ex-Eagles Linebacker Kevin Reilly’s PSA supporting 2017 Running for Answers 5K in Philadelphia

Watch Lap4Life Founder Maddalena Casabianca Reade and DTRF Co-Founder Marlene discuss desmoid tumors, the incredible impact of volunteer fundraisers and Lap4Life, an annual 4 mile run/walk which takes place at Chadwick Lake in Newburgh, NY.

Video 2

Episode of The Doctors – Dr. Neeta Somaiah explains how a desmoid tumor develops and the potential health risks they pose

Video 4

Listen to patients and caregivers discuss the mission of DTRF

Dr Oz & Rosie

Dr. Oz is teaming up with Rosie O’Donnell to help raise awareness for DTRF

video 7

See what race day is like and listen to patients and friends of patients talk about what DTRF means to them and why they run or walk for a desmoid cure.

Kevin Reilly

Running For Answers had an incredible upswing in publicity thanks to the support of NFL player Kevin Reilly, talk show host and actress Rosie O’Donnell and her wife Michelle Rounds and even Dr. Oz.