A partnership forms between patient advocate, Marlene Portnoy, and Dr. Mrinal Gounder to bring about one of the most important rare cancer discoveries in recent years.
Public Service Announcement supporting Running For Answers 5K
Public Service Announcement supporting Lap4Life Foundation
‘Unbreakable’ Alex Powell battles to continue college soccer career
“To develop Grit, align with strong partners” With Marlene Portnoy and Phil Laboon. Interview on Thrive Global and Medium’s Authority Magazine
From Memorial Sloan Kettering: “Kirt’s Story: How a Clinical Trial for a Rare Tumor Gave Me a New Lease on Life”
New England Journal of Medicine Article “Sorafenib for Advanced and Refractory Desmoid Tumors” & DTRF Press Release
Episode of The Doctors – “Living with a Desmoid Tumor”
DTRF Co-Founders accept the Abby S. Meyers Leadership award on behalf of the Foundation at NORD’s 2021 Rare Impact Award Ceremony
Ex-Eagles Linebacker Kevin Reilly’s PSA supporting 2017 Running for Answers 5K in Philadelphia
Episode of The Doctors – Dr. Neeta Somaiah explains how a desmoid tumor develops and the potential health risks they pose
Listen to patients and caregivers discuss the mission of DTRF
Dr. Oz is teaming up with Rosie O’Donnell to help raise awareness for DTRF
See what race day is like and listen to patients and friends of patients talk about what DTRF means to them and why they run or walk for a desmoid cure.
Running For Answers had an incredible upswing in publicity thanks to the support of NFL player Kevin Reilly, talk show host and actress Rosie O’Donnell and her wife Michelle Rounds and even Dr. Oz.