They have remained an inseparable team working together tirelessly in this cause. Their work in the foundation turned them from being victims to being advocates for a cure. Getting involved brings a strength and hope that anyone who becomes engaged in supporting the mission of the foundation can experience.
The DTRF Scientific and Medical Advisory Boards are comprised of top desmoid tumor researchers and clinicians from around the world. DTRF has raised millions to fund cutting-edge research that is developing treatment options, supporting clinical trials and leading to important new disease insights. In the community of rare diseases, DTRF is an example of how patient advocates can drive research, drive collaboration, drive governmental impact and drive patient hope and involvement.