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X-WR-CALNAME:The Desmoid Tumor Research Foundation
X-ORIGINAL-URL:https://dtrf.org
X-WR-CALDESC:Events for The Desmoid Tumor Research Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240922T073000
DTEND;TZID=America/Chicago:20240922T103000
DTSTAMP:20240521T144819Z
CREATED:20240425T161510Z
LAST-MODIFIED:20240521T144819Z
UID:10000015-1726990200-1727001000@dtrf.org
SUMMARY:2024 RFA Walk
DESCRIPTION:The 2024 RFA Walk offers something for everyone; build a team\, participate as an individual\, create awareness\, and help fundraise for a cure!\nRunning for Answers (RFA)\, founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009\, is the annual DTRF signature fundraising event. This year\, the desmoid tumor patient community and supporters will come together for the first-ever walk at the Houston Zoo as a unified force against desmoid tumors. \nRegister today and claim your fundraising page to start raising awareness\, powering research\, and advocating for desmoid tumor patients! \nDon’t forget to register separately for the DTRF Together We Will Weekend!
URL:https://dtrf.org/event/2024-rfa-walk/
LOCATION:Houston Zoo\, 6200 Hermann Park Drive\, Houston\, TX\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Fundraising,Patients,Researchers,Virtual,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/04/RFA_EVENT_tile.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T124500
DTEND;TZID=America/New_York:20240921T180000
DTSTAMP:20240530T115210Z
CREATED:20240425T161428Z
LAST-MODIFIED:20240530T115210Z
UID:10000013-1726922700-1726941600@dtrf.org
SUMMARY:2024 Annual Patient Meeting
DESCRIPTION:Founded in 2007\, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend.\nIt always takes place on Saturday\, the day before our annual RFA Walk. The meeting includes educational presentations by clinicians and researchers\, with questions from the audience\, as well as a talk by a desmoid patient. \nContent is geared toward topics of interest to our patient and caregiver community. Physicians are also strongly encouraged to attend this foundational event of the Weekend. This meeting will be recorded and available on our website in the weeks following the event. \nThe Patient Meeting is part of the DTRF Together We Will Weekend. In order to attend the Meeting\, you need to register for the Weekend.
URL:https://dtrf.org/event/2024-annual-patient-meeting/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240920T110000
DTEND;TZID=America/Chicago:20240920T190000
DTSTAMP:20240530T115108Z
CREATED:20240425T161609Z
LAST-MODIFIED:20240530T115108Z
UID:10000014-1726830000-1726858800@dtrf.org
SUMMARY:2024 International Research Workshop
DESCRIPTION:The DTRF International Research Workshop features:\n\nScientific talks on current research and treatment\nA forum to share research findings\, develop new collaborations\, bring new scientists into the desmoid tumor research field\, and discuss innovations that will lead to new treatments\nLive questions/answers and discussions related to the scientific talks\nGroup discussions focusing on gaps in desmoid tumor science and how best to address them through high-impact collaborative research\n\nThe DTRF International Research Workshop is part of the DTRF Together We Will Weekend. In order to attend the Workshop\, you need to register for the Weekend.
URL:https://dtrf.org/event/2024-international-research-workshop/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240920
DTEND;VALUE=DATE:20240923
DTSTAMP:20240425T162406Z
CREATED:20240319T213442Z
LAST-MODIFIED:20240425T162406Z
UID:10000012-1726790400-1727049599@dtrf.org
SUMMARY:2024 Together We Will Weekend
DESCRIPTION:Together we will advance research\, empower our community with information\, foster connection\, and fundraise for a cure.\nWe are excited to announce the DTRF Together We Will Weekend and RFA Walk is moving to Houston\, TX on September 20-22\, 2024! \nEvents include the DTRF International Research Workshop for medical and industry professionals\, along with DTRF Patient Meeting for all attendees. \nThe annual DTRF Together We Will Weekend brings together patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate\, and learn! \nEarly bird registration is officially OPEN! Use code TWWHOUSTON20 at checkout for 20% off registration. REGISTER here!
URL:https://dtrf.org/event/2024-together-we-will-weekend/
LOCATION:Marriott\, 6580 Fannin Street\, Houston\, 77030\, United States
CATEGORIES:Awareness,Caregivers,Clinicians,Connection,Education,Fundraising,Patients,Research,Researchers,Walk
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/TWW_Event-and-Blog_Featured-Photos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240417T193000
DTEND;TZID=America/New_York:20240417T210000
DTSTAMP:20240319T194121Z
CREATED:20240319T194121Z
LAST-MODIFIED:20240319T194121Z
UID:10000010-1713382200-1713387600@dtrf.org
SUMMARY:DTRF "Speed Desmoidian-ing" Virtual Networking Event for Adolescents & Young Adults
DESCRIPTION:Join the DTRF for the second night of the two-part event: “Times Are A-Changin’: Heading into Young Adulthood with a Desmoid Tumor.” \nTune in for a special “Speed Desmoidian-ing” virtual networking event just for young adults with desmoid tumors facilitated by two of their peers. \nIncludes: 1-on-1 Breakout Rooms and Group Discussion to connect with other participants \nFacilitators & Patient Advocates: Dakota Fisher-Vance and Chad Guzzi \nClick here to register today!  \nNOTE: To promote connectedness and trust throughout the networking event\, this meeting will not be recorded. Throughout this special event\, our hope is that you will feel a sense of belonging and community as you discuss your unique journey with fellow desmoid tumor patients.
URL:https://dtrf.org/event/dtrf-speed-desmoidian-ing-virtual-networking-event-for-adolescents-young-adults/
CATEGORIES:Education,Patients,Virtual
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/Zoom_Banner_AYA-copy.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240416T193000
DTEND;TZID=America/New_York:20240416T203000
DTSTAMP:20240319T194142Z
CREATED:20240319T194142Z
LAST-MODIFIED:20240319T194142Z
UID:10000011-1713295800-1713299400@dtrf.org
SUMMARY:DTRF Informational Zoom Webinar for Adolescents & Young Adults
DESCRIPTION:Join the DTRF for the first night of the two-part special event: “Times Are A-Changin’: Heading into Young Adulthood with a Desmoid Tumor.” This event is exclusively designed for young adults with desmoid tumors (ages 18-39). \nPart One: Informational Zoom Webinar \nHave you been the youngest person in the oncology waiting room? Learn tips and tricks for navigating the unique challenges and milestones young adults face like dating\, moving out\, and starting a career while taking ownership over your medical care. This webinar will be led by Dakota Fisher-Vance\, a patient advocate and young adult living with a desmoid tumor. \nFacilitators & Patient Advocates: Dakota Fisher-Vance and Chad Guzzi \nClick here to register today!
URL:https://dtrf.org/event/dtrf-informational-zoom-webinar-for-adolescents-young-adults/
ATTACH;FMTTYPE=image/png:https://dtrf.org/wp-content/uploads/2024/03/Zoom_Banner_AYA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230924T080000
DTEND;TZID=America/New_York:20230924T080000
DTSTAMP:20231106T175843Z
CREATED:20230915T204200Z
LAST-MODIFIED:20231106T175843Z
UID:10000005-1695542400-1695542400@dtrf.org
SUMMARY:RFA 5K & Fun Fun
DESCRIPTION:The RFA 5K & Fun Run\, founded by desmoid tumor patient Sera Snyder in 2010\, is our annual signature fundraising event and the celebratory finale of the annual DTRF Together We Will Weekend. The desmoid tumor community and supporters gather to walk\, run\, and roll on our accessible course together as a unified force against desmoid tumors. By participating in RFA\, anyone\, anywhere can build a team\, create awareness\, and help fundraise for a cure!
URL:https://dtrf.org/event/rfa-5k-fun-fun/
LOCATION:Fairmount Park\, 4231 Avenue of the Republic\, Philadelphia\, PA\, 19131\, United States
CATEGORIES:5K,Connection,Fundraising,Walk
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/RFA_GenImagery_10.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230923T000000
DTEND;TZID=America/New_York:20230923T000000
DTSTAMP:20231106T175714Z
CREATED:20230915T204159Z
LAST-MODIFIED:20231106T175714Z
UID:10000004-1695427200-1695427200@dtrf.org
SUMMARY:DTRF Community Networking Event (DTRF Together We Will Weekend event)
DESCRIPTION:Community connections can be transformative and are essential to the patient and caregiver journey. Our Community Networking Event is a wonderful opportunity to have one-on-one\, real-time conversations with fellow patients and caregivers. The event is structured to provide a natural way to get to know attendees and share experiences by connecting in small groups in a safe and private setting. Event structure has included group conversations and brief\, one-on-one conversations (called “Speed Desmoidian-ing”).
URL:https://dtrf.org/event/dtrf-community-networking-event-dtrf-together-we-will-weekend-event/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Connection,Patients
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/2019PM_Dakota-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230923T000000
DTEND;TZID=America/New_York:20230923T000000
DTSTAMP:20231106T175430Z
CREATED:20230915T204157Z
LAST-MODIFIED:20231106T175430Z
UID:10000002-1695427200-1695427200@dtrf.org
SUMMARY:DTRF Patient Meeting (DTRF Together We Will Weekend event)
DESCRIPTION:Founded in 2007\, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. The meeting includes educational presentations by clinicians and researchers\, with questions from the audience\, as well as a talk by a desmoid patient. Content is geared toward topics of interest to our patient and caregiver community. Physicians are also strongly encouraged to attend this foundational event of the Weekend.
URL:https://dtrf.org/event/dtrf-patient-meeting-dtrf-together-we-will-weekend-event/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Clinicians,Connection,Education,Patients,Research,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/PatientMtg_GenImagery_5.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230922T000000
DTEND;TZID=America/New_York:20230924T000000
DTSTAMP:20230915T205720Z
CREATED:20230915T204155Z
LAST-MODIFIED:20230915T205720Z
UID:10000001-1695340800-1695513600@dtrf.org
SUMMARY:DTRF Together We Will Weekend
DESCRIPTION:DTRF Together We Will Weekend convenes patients\, caregivers\, researchers\, clinicians and industry professionals to connect\, collaborate and learn. Together We Will advance research\, empower ourselves with information\, and fundraise for a cure.
URL:https://dtrf.org/event/dtrf-together-we-will-weekend/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Caregivers,Clinicians,Connection,Education,Patients,Research,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/EventsCal_TWW-Weekend.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230922T000000
DTEND;TZID=America/New_York:20230922T000000
DTSTAMP:20231106T175608Z
CREATED:20230915T204158Z
LAST-MODIFIED:20231106T175608Z
UID:10000003-1695340800-1695340800@dtrf.org
SUMMARY:DTRF Int'l Research Workshop (DTRF Together We Will Weekend event)
DESCRIPTION:Designed for researchers and medical professionals\, the annual DTRF International Desmoid Tumor Research Workshop is a critically important\, collaborative event bringing together some of the brightest minds in the field of desmoid tumors from a variety of disciplines. It presents the latest information on desmoid treatments and research\, and facilitates new collaborations to move the science forward. The Workshop also helps us identify research priorities for the coming years. We are sincerely grateful to our attendees who play a key role in advancing the field.
URL:https://dtrf.org/event/dtrf-intl-research-workshop-dtrf-together-we-will-weekend-event/
LOCATION:Wyndham Philadelphia Historic District\, 400 Arch St\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Clinicians,Connection,Education,Research,Researchers
ATTACH;FMTTYPE=image/jpeg:https://dtrf.org/wp-content/uploads/2023/09/DTRF-RW-2018-7.jpg
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