DTRF Patient Advocacy Committee


In May of 2021, DTRF formed a Patient Advocacy Committee (PAC).
Through this initiative, desmoid tumor patients and caregivers will collaborate directly with the DTRF to include the patient voice in our work.
The DTRF PAC will be working directly with DTRF in the following areas:

Committee member recruitment is currently OPEN for the June 2023 – June 2024 term. Complete this form to participate in a curiosity call to learn more about how you can contribute to our advocacy efforts.

If you have any questions about this committee, please email us at info@dtrf.org. Thank you!