Past Events - Desmoid Tumor Research Foundation

Past Events

Fourth Annual Tucking for Tumors on November 27, 2018

November 27, 2018
Kelly Mercier and her hometown of Cary, North Carolina, will once again support research efforts by Tucking for Tumors! This event will take place at 6:30 pm at Pure Barre at 1412 Village Market Pl, Morrisville, NC 27560. The suggested donation per person is$20.  Limited edition Tucking for Tumors shirts were for sale online during…

Lap4Life Brewery Fundraiser

November 18, 2018
Lap4Life hosted their 3rd Annual Guest Bartenders Event on Sunday, November 18th! With a band, silent auction and guest bartenders, this fundraising event drew roughly 250 attendees!  Lap4Life is a non-profit organization created to raise money and awareness for desmoid tumors and organ transplant research.       

Annual Halloween Party!

October 27, 2018
This year, Devonne decided to host a Halloween party in honor of her husband who has been battling desmoid tumors for 22 years. They raised over $1,300! We are so grateful for their support.        

3rd JoeStrong Volleyball Tournament in Austin, Texas

October 27, 2018
For the 3rd year in a row, Joe E. hosted the 3rd JoeStrong Volleyball Tournament in Austin, Texas, benefiting the DTRF. This volleyball tournament included a silent auction, raffles and swag for players.   The product and gift cards this year were awesome including Fixe, Taco Deli, Uchi, Alamo Drafthouse, Landry’s, Cover 3, Via 313,…

2018 DTRF Annual Patient Meeting in Philadelphia

September 22, 2018
Save the date for our 2018 Annual Patient Meeting on September 22 & 23rd in Philadelphia.  The annual DTRF Patient Meeting, founded in 2007, is the DTRF signature patient support event. Held in Philadelphia, Pennsylvania, it always takes place on a Saturday, the day before our annual Running for Answers 5K Run/Walk. This allows patients, family members and…

Beer, Bags and Boards Fundraiser benefiting DTRF

September 22, 2018
Attached is a picture of the fabulous group that attended Char L.’s Beer, Bags and Boards fundraiser benefiting the Foundation!  The day was gorgeous, the people fantastic and the fundraising epic!    After being diagnosed with a desmoid tumor after the birth of her son in 2010, Char has been trying to raise as much…

10th Annual Lap4Life

June 16, 2018
Newburgh, NY
The Casabianca and Reade families, along with the community of Newburgh, NY, hosted another incredibly successful event once again! (Team DTRF was present in orange.) This run/walk/community health fair is dedicated to the memory of Dr. Angelo Casabianca who lost his battle to desmoid tumors. Proceeds support desmoid tumor research and organ donation. As always, this…

A Lemonade Stand!

May 27, 2018
Jennifer S. has desmoid tumour in her right abdominal muscle. She and her family moved to Burlington, Ontario from Glasgow, Scotland in January 2016. Her desmoid tumour was diagnosed in March 2016, only 10 weeks after arriving in Canada.   In May 2018, her two daughters Katie (6) and Connie (4) along with their neighbourhood friend,…

Voorhees Middle School Walk-a-thon in honor of RFA participant, Christina K.

May 25, 2018
Christina K. was first diagnosed with a desmoid tumor in February 2018. Upon learning of her diagnosis, she began blogging about it.    She registered to join DTRF and the patient community at Running for Answers on September 23, 2018 and she quickly hit her 3 fundraising goals! She reached out to Voorhees Middle School,…

5th Annual Desmoid Dash on May 12, 2018

May 12, 2018
Mom was certainly the star on May 12, 2018, in Minneapolis where more than 200 participants at the 5th Annual Desmoid Dash 5K raised ~$80,000 for The Desmoid Tumor Research Foundation! Thank you to the attendees, volunteers, local sponsors, race committee members, and the Zechmann family for making this another successful and fun-filled event!