Past Events - Desmoid Tumor Research Foundation

Past Events

Granfondo Axel Merckx in honor of Athina Merckx and DFC

July 15, 2020
Location: Okanagan, Canada Earlier this year, Athina Merckx was diagnosed with a desmoid tumor. She had surgery on her right knee in April to remove it and after having some challenges in her rehabilitation is now facing a recurrence. She will be doing chemotherapy for over the next two years.  Granfondo Axel Merckx will match…

2020 Lap4Life in Newburgh, NY

June 20, 2020
Location: Newburgh, NY Join DTRF, the Casabianca & Reade families, along with the entire community of Newburgh, NY for the 12th annual Lap4Life at Chadwick Lake Park, 1702 Route 300, Newburgh, NY. This community event includes a 4 Mile Walk / 4 Mile Run / ¼ mile Kids Fun-Run and was created in memory of…

DFC- Desmoid Tumour Foundation of Canada's "Play It Forward For A Cure"

April 30, 2020
Location: Toronto, Canada Desmoid Tumour Foundation of Canada (DFC) will be hosting hosting their 4th annual fundraising event, “Play It Forward for a cure,” in Toronto on April 30th!   Once again, this year will feature a live and silent auction and delicious food. Musical performances by Karen LeBlanc as Tina Turner! Karen is a…

Lap4Life's 2019 "Guest Bartender" Event

November 24, 2019
Newburgh, NY
Once again, Lap4Life will host their Guest Bartenders event in Newburgh, NY! Read more below about the competing bartenders, giveaways and what happens when you wear your Lap4Life tshirt…  

2019 Tour de Blax

November 16, 2019
Every year, the Blax family joins us at RFA as RFA Team, The Spenguins. They celebrate the memory of their beloved Spencer Black. This year, they’re putting on the Tour de Blax, a fundraiser for the DTRF. We are grateful to the Blax family for supporting the Foundation in memory of Spencer.  

4th JoeStrong Volleyball Tournament in Austin, Texas

November 2, 2019
Austin, TX
For the 4th year in a row, Joe E. hosted the JoeStrong Volleyball Tournament in Austin, Texas, benefiting the DTRF. This volleyball tournament included a silent auction, raffles and swag for players.   Aside from a heartfelt thanks to friends and family for supporting him, Joe thanks Bobby Jones with Project Serve for the venue space, Lj Luciano and…

6th Annual Desmoid Dash on September 29, 2019

September 29, 2019
Minneapolis, MN
Save the date for the 6th Annual Desmoid Dash in Minneapolis, MN (Mendota Heights) on September 29th! Annually, this event has welcomed over 200 participants, including desmoid tumor patients and their caregivers. In 2013, the first annual Desmoid Dash was hosted by the Zechmann family, along with their closest friends and family. We hope you’ll…

2019 Annual Patient Meeting & Running for Answers 5K

September 21, 2019
Please Touch Museum, Philadelphia
Date: September 21 & 22, 2019 Location: Philadelphia, PA The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes place…

2019 Swing for a Cure - St. Louis

September 9, 2019
St. Louis, MO
Katie and Jason met the most beautiful angel on September 7th, 2017… their daughter Emma Rose. Hours before Emma’s arrival, they found out that Jason had a very large tumor in his abdomen.  The morning after Emma was born, Jason underwent a biopsy and after many tests discovered that he had desmoid tumors. It’s been…

Natalie's 2019 T-shirt Campaign Raises $2,000+

September 1, 2019
Date: August, 2019 Location: Raleigh, NC Natalie was hoping to host a fundraiser this year, but between chemo and a new baby, it was just too much. Instead, she designed a t-shirt, and sold over 140 shirts between her friends and family! Order one of Natalie’s shirts here.