Past Events - Desmoid Tumor Research Foundation
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Past Events

Annual Halloween Party!

October 27, 2018
This year, Devonne decided to host a Halloween party in honor of her husband who has been battling desmoid tumors for 22 years. They raised over $1,300! We are so grateful for their support.        

3rd JoeStrong Volleyball Tournament in Austin, Texas

October 27, 2018
For the 3rd year in a row, Joe E. hosted the 3rd JoeStrong Volleyball Tournament in Austin, Texas, benefiting the DTRF. This volleyball tournament included a silent auction, raffles and swag for players.   The product and gift cards this year were awesome including Fixe, Taco Deli, Uchi, Alamo Drafthouse, Landry’s, Cover 3, Via 313,…

2018 DTRF Annual Patient Meeting in Philadelphia

September 22, 2018
Save the date for our 2018 Annual Patient Meeting on September 22 & 23rd in Philadelphia.  The annual DTRF Patient Meeting, founded in 2007, is the DTRF signature patient support event. Held in Philadelphia, Pennsylvania, it always takes place on a Saturday, the day before our annual Running for Answers 5K Run/Walk. This allows patients, family members and…

Beer, Bags and Boards Fundraiser benefiting DTRF

September 22, 2018
Attached is a picture of the fabulous group that attended Char L.’s Beer, Bags and Boards fundraiser benefiting the Foundation!  The day was gorgeous, the people fantastic and the fundraising epic!    After being diagnosed with a desmoid tumor after the birth of her son in 2010, Char has been trying to raise as much…

10th Annual Lap4Life

June 16, 2018
Newburgh, NY
The Casabianca and Reade families, along with the community of Newburgh, NY, hosted another incredibly successful event once again! (Team DTRF was present in orange.) This run/walk/community health fair is dedicated to the memory of Dr. Angelo Casabianca who lost his battle to desmoid tumors. Proceeds support desmoid tumor research and organ donation. As always, this…

A Lemonade Stand!

May 27, 2018
Jennifer S. has desmoid tumour in her right abdominal muscle. She and her family moved to Burlington, Ontario from Glasgow, Scotland in January 2016. Her desmoid tumour was diagnosed in March 2016, only 10 weeks after arriving in Canada.   In May 2018, her two daughters Katie (6) and Connie (4) along with their neighbourhood friend,…

Voorhees Middle School Walk-a-thon in honor of RFA participant, Christina K.

May 25, 2018
Christina K. was first diagnosed with a desmoid tumor in February 2018. Upon learning of her diagnosis, she began blogging about it.    She registered to join DTRF and the patient community at Running for Answers on September 23, 2018 and she quickly hit her 3 fundraising goals! She reached out to Voorhees Middle School,…

5th Annual Desmoid Dash on May 12, 2018

May 12, 2018
Mom was certainly the star on May 12, 2018, in Minneapolis where more than 200 participants at the 5th Annual Desmoid Dash 5K raised ~$80,000 for The Desmoid Tumor Research Foundation! Thank you to the attendees, volunteers, local sponsors, race committee members, and the Zechmann family for making this another successful and fun-filled event!

2018 DTRF Western Regional Patient Meeting

April 28, 2018
On Saturday, April 28th, DTRF hosted its first Western Regional Patient Meeting in Salt Lake City, Utah! More than 45 desmoid tumor patients and caregivers convened for a day of connecting and learning. The goal of DTRF’s patient meetings is to provide education and hope by presenting the latest research and treatment options, and by…

3rd Annual DTRF Beer Pong Tournament in NYC on December 3, 2017

December 3, 2017
Brittany Longenbach and Danielle Portnoy hosted the 3rd Annual Beer Pong Tournament to support DTRF research on Sunday, December 3rd from 12-3pm. Location: Brother Jimmy’s BBQ 181 Lexington Avenue, New York, NY 10016   Special thanks to these ladies for launching year 3 of this fun afternoon!   
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