Past Events - Desmoid Tumor Research Foundation
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Past Events

5th JoeStrong Volleyball Tournament in Austin, Texas

October 23, 2021
Austin, TX
Project Serve Presents… The 5th Annual JoeStrong Volleyball Tournament benefiting the DTRF Blind Draw Coed 4’s Saturday, October 23rd 2021 Check in: 8:30 am Play starts: 9:00 am Location: 11100 Alterra Pkwy, Austin, TX 78758   The event is already sold out with a waitlist so it should be an excellent turnout! https://fb.me/e/18spOpgxj    

Grill Out (Burgers & Dogs for a Great Cause)

October 23, 2021
Cincinnati, OH
My husband and I will host a fundraiser on October 23, 2021 from 11am – 2pm for Desmoid Tumor Awareness.   My sister-in-law has a desmoid tumor and has struggled with this rare disease for about 4-5 years now, so we wanted to do something special for her, but also just to raise more awareness … Read More "Past Events"

2021 Swing for a Cure - Delaware

October 18, 2021
Wilmington, DE
Join DTRF Board Member, ex-NFL linebacker and desmoid tumor survivor Kevin Reilly on Monday, October 18th at the DuPont Country Club in Wilmington, DE, for his DTRF golf tourney! Register today!    

Unicorn Prance 5K for Desmoid Tumor Research

October 16, 2021
Minneapolis, MN
  Join Amy and her friends for a Unicorn Prance! Read the message below from her friend Nikki:   Friends…there is a crispness in the air that tells us it’s once again time to put on glitter and a unicorn costume and run around Lake Harriet. We need a HERD. A herd of magical beings … Read More "Past Events"

2021 Swing for a Cure - St. Louis

August 30, 2021
St. Louis, MO
Katie and Jason met the most beautiful angel on September 7th, 2017… their daughter Emma Rose. Hours before Emma’s arrival, they found out that Jason had a very large tumor in his abdomen.  The morning after Emma was born, Jason underwent a biopsy and after many tests discovered that he had desmoid tumors. It’s been … Read More "Past Events"

Athina's Ride

July 10, 2021
Virtual - join Athina from where you live!
Athina’s Ride is a virtual cycling event that you can participate in from anywhere in the world! It started with training rides on May 10th and culminates on July 10th & 11th with an epic, COVID-friendly ride by yourself or with your cycling bubble friends. To enter, you can either ride, walk, run, swim or … Read More "Past Events"

2021 DTRF Spring Patient Networking Event

April 29, 2021
Virtual via Zoom
  Join us for DTRF’s Spring Patient Networking Event which will take place via Zoom from 8:00- 9:00 pm ET on Thursday, April 29th.   We’ll have a new format where we’ll be able to promote even more conversation between attendees. Participants will have the opportunity to connect one-on-one with other patients and caregivers!    We … Read More "Past Events"

2020 Swing for a Cure - St. Louis

September 28, 2020
St. Louis, MO
Katie and Jason met the most beautiful angel on September 7th, 2017… their daughter Emma Rose. Hours before Emma’s arrival, they found out that Jason had a very large tumor in his abdomen.  The morning after Emma was born, Jason underwent a biopsy and after many tests discovered that he had desmoid tumors. It’s been … Read More "Past Events"

2020 Annual Patient Meeting & Running for Answers 5K

September 26, 2020
Please Touch Museum, Philadelphia
The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes place the day following our annual Patient Meeting. … Read More "Past Events"

Granfondo Axel Merckx in honor of Athina Merckx and DFC

July 15, 2020
Location: Okanagan, Canada Earlier this year, Athina Merckx was diagnosed with a desmoid tumor. She had surgery on her right knee in April to remove it and after having some challenges in her rehabilitation is now facing a recurrence. She will be doing chemotherapy for over the next two years.  Granfondo Axel Merckx will match … Read More "Past Events"
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