Past Events - Desmoid Tumor Research Foundation

Past Events

4th JoeStrong Volleyball Tournament in Austin, Texas

November 2, 2019
Austin, TX
For the 4th year in a row, Joe E. hosted the JoeStrong Volleyball Tournament in Austin, Texas, benefiting the DTRF. This volleyball tournament included a silent auction, raffles and swag for players.   Aside from a heartfelt thanks to friends and family for supporting him, Joe thanks Bobby Jones with Project Serve for the venue space, Lj Luciano and…

6th Annual Desmoid Dash on September 29, 2019

September 29, 2019
Minneapolis, MN
Save the date for the 6th Annual Desmoid Dash in Minneapolis, MN (Mendota Heights) on September 29th! Annually, this event has welcomed over 200 participants, including desmoid tumor patients and their caregivers. In 2013, the first annual Desmoid Dash was hosted by the Zechmann family, along with their closest friends and family. We hope you’ll…

2019 Annual Patient Meeting & Running for Answers 5K

September 21, 2019
Please Touch Museum, Philadelphia
Date: September 21 & 22, 2019 Location: Philadelphia, PA The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes place…

2019 Swing for a Cure - St. Louis

September 9, 2019
St. Louis, MO
Katie and Jason met the most beautiful angel on September 7th, 2017… their daughter Emma Rose. Hours before Emma’s arrival, they found out that Jason had a very large tumor in his abdomen.  The morning after Emma was born, Jason underwent a biopsy and after many tests discovered that he had desmoid tumors. It’s been…

Natalie's 2019 T-shirt Campaign Raises $2,000+

September 1, 2019
Date: August, 2019 Location: Raleigh, NC Natalie was hoping to host a fundraiser this year, but between chemo and a new baby, it was just too much. Instead, she designed a t-shirt, and sold over 140 shirts between her friends and family! Order one of Natalie’s shirts here.

2019 Lap4Life in Newburgh, NY

June 15, 2019
Date: June 15, 2019 Location: Newburgh, NY Join DTRF, the Casabianca & Reade families, along with the entire community of Newburgh, NY for the 11th annual Lap4Life at Chadwick Lake Park, 1702 Route 300, Newburgh, NY. This community event includes a 4 Mile Walk / 4 Mile Run / ¼ mile Kids Fun-Run and was created…

2019 DTRF Golf Outing

June 3, 2019
Tuxedo, NY
Date: June 3, 2019 Location: Tuxedo, NY DTRF hosted about 200 attendees at its Annual Golf Classic and Dinner on Monday, June 3rd, at the Tuxedo Club in Tuxedo Park, NY. The day began with guests arriving around 10am to enjoy brunch overlooking Tuxedo Lake. After a full day of golf, and perfect weather, attendees…

Parents' Night Out in May 2019

May 10, 2019
The parents of students at an elementary school in Ohio had a Friday night out this May! The school has a service club which organized a special fundraising event called “Parents’ Night Out” in honor of one of the club members who has a desmoid tumor in his thigh. He has been very brave facing…

DFC- Desmoid Tumour Foundation of Canada 3rd Annual Patient Networking & Fundraising Event

May 2, 2019
Date: May 2, 2019 Location: Toronto, Canada Congratulations to the Desmoid Tumour Foundation of Canada (DFC) for hosting their 3rd annual fundraising event, “Play It Forward for a cure,” in Toronto on May 2nd. Over 270 attendees enjoyed a live and silent auction, delicious food, the music of Blues Soloist Shakura S’Aida and the Burlington/Hamilton Band, Slow Monday.…

2019 DTRF Patient Meeting at Stanford University

April 13, 2019
A 2019 DTRF Patient Meeting will take place at Stanford University on April 13th for an afternoon of connecting with other desmoid tumor patients and participating in informative lectures and roundtables on desmoid tumors. Attendees will also have an opportunity to fundraise for the Foundation. Visit our event webpage for hotel information, our speaker list…