Past Events - Desmoid Tumor Research Foundation
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Past Events

Organized by Community Member: 5th JoeStrong Volleyball Tournament in Austin, Texas

October 23, 2021
Austin, TX
Project Serve Presents… The 5th Annual JoeStrong Volleyball Tournament benefiting the DTRF Blind Draw Coed 4’s Saturday, October 23rd 2021 Check in: 8:30 am Play starts: 9:00 am Location: 11100 Alterra Pkwy, Austin, TX 78758   The event is already sold out with a waitlist so it should be an excellent turnout! https://fb.me/e/18spOpgxj    

Organized by Community Member: Grill Out (Burgers & Dogs for a Great Cause)

October 23, 2021
Cincinnati, OH
My husband and I will host a fundraiser on October 23, 2021 from 11am – 2pm for Desmoid Tumor Awareness.   My sister-in-law has a desmoid tumor and has struggled with this rare disease for about 4-5 years now, so we wanted to do something special for her, but also just to raise more awareness … Read More "Past Events"

Organized by Community Member: 2021 Swing for a Cure - Delaware

October 18, 2021
Wilmington, DE
Join DTRF Board Member, ex-NFL linebacker and desmoid tumor survivor Kevin Reilly on Monday, October 18th at the DuPont Country Club in Wilmington, DE, for his DTRF golf tourney!    

Organized by Community Member: Unicorn Prance 5K for Desmoid Tumor Research

October 16, 2021
Minneapolis, MN
  Join Amy and her friends for a Unicorn Prance! Read the message below from her friend Nikki:   Friends…there is a crispness in the air that tells us it’s once again time to put on glitter and a unicorn costume and run around Lake Harriet. We need a HERD. A herd of magical beings … Read More "Past Events"

Chitra takes the 2021 RFA Virtual Challenge!

September 23, 2021
Virtual
  “2020 has turned out to be an odd year for me, just like it was for everyone, changing my perspective of life completely with over 40 visits to hospitals, countless tests, scans, biopsies, multiple different chemotherapies, and treatments that did not work for me. I wish there were more and better options available for … Read More "Past Events"

Kate H. takes the 2021 RFA Virtual Challenge!

September 23, 2021
Virtual
“The slowest walk of my life, with two of the loves of my life. Joint pain is unpleasant today, so quite challenging with all the hand holding/tugging, but we are doing it!” – Kate H. The rapid return of Kate’s tumor left her seeking answers, driving her to take the 2021 #RFAVirtualChallenge and go the #Distance4Desmoids…little ones … Read More "Past Events"

Kate V. takes the 2021 RFA Virtual Challenge!

September 23, 2021
Virtual
“I’ve been on three different chemotherapy treatments in under a year. Desmoid tumors effect each patient so differently and we need to find a cure.” – Kate V., #RFAChallenger Last year, Kate was diagnosed with a desmoid tumor in her thigh. She quickly learned that she could play a part in helping fund a cure for … Read More "Past Events"

DeAnn takes the 2021 RFA Virtual Challenge!

September 23, 2021
Virtual
“See that storm coming in behind me? It’s nothing that I can’t handle because I am all decked out in my teal kayak, teal glasses, and my DTRF hat.” – DeAnn, #RFAChallenger DeAnn has been battling desmoid tumors in her leg for nearly 30 years. But 15 years ago, the ability to fundraise for critical research … Read More "Past Events"

Organized by Community Member: 2021 Swing for a Cure - St. Louis

August 30, 2021
St. Louis, MO
Katie and Jason met the most beautiful angel on September 7th, 2017… their daughter Emma Rose. Hours before Emma’s arrival, they found out that Jason had a very large tumor in his abdomen.  The morning after Emma was born, Jason underwent a biopsy and after many tests discovered that he had desmoid tumors. It’s been … Read More "Past Events"

Organized by Community Member: Athina's Ride

July 10, 2021
Virtual - join Athina from where you live!
Athina’s Ride is a virtual cycling event that you can participate in from anywhere in the world! It started with training rides on May 10th and culminates on July 10th & 11th with an epic, COVID-friendly ride by yourself or with your cycling bubble friends. To enter, you can either ride, walk, run, swim or … Read More "Past Events"
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