Past Events - Desmoid Tumor Research Foundation

Past Events

A Lemonade Stand!

May 27, 2018
Jennifer S. has desmoid tumour in her right abdominal muscle. She and her family moved to Burlington, Ontario from Glasgow, Scotland in January 2016. Her desmoid tumour was diagnosed in March 2016, only 10 weeks after arriving in Canada.   In May 2018, her two daughters Katie (6) and Connie (4) along with their neighbourhood friend,…

Voorhees Middle School Walk-a-thon in honor of RFA participant, Christina K.

May 25, 2018
Christina K. was first diagnosed with a desmoid tumor in February 2018. Upon learning of her diagnosis, she began blogging about it.    She registered to join DTRF and the patient community at Running for Answers on September 23, 2018 and she quickly hit her 3 fundraising goals! She reached out to Voorhees Middle School,…

5th Annual Desmoid Dash on May 12, 2018

May 12, 2018
Mom was certainly the star on May 12, 2018, in Minneapolis where more than 200 participants at the 5th Annual Desmoid Dash 5K raised ~$80,000 for The Desmoid Tumor Research Foundation! Thank you to the attendees, volunteers, local sponsors, race committee members, and the Zechmann family for making this another successful and fun-filled event!

2018 DTRF Western Regional Patient Meeting

April 28, 2018
On Saturday, April 28th, DTRF hosted its first Western Regional Patient Meeting in Salt Lake City, Utah! More than 45 desmoid tumor patients and caregivers convened for a day of connecting and learning. The goal of DTRF’s patient meetings is to provide education and hope by presenting the latest research and treatment options, and by…

3rd Annual DTRF Beer Pong Tournament in NYC on December 3, 2017

December 3, 2017
Brittany Longenbach and Danielle Portnoy hosted the 3rd Annual Beer Pong Tournament to support DTRF research on Sunday, December 3rd from 12-3pm. Location: Brother Jimmy’s BBQ 181 Lexington Avenue, New York, NY 10016   Special thanks to these ladies for launching year 3 of this fun afternoon!   

Tucking for Tumors on November 28, 2017

November 28, 2017
Special thank you to Kelly Mercier and her hometown of Cary, North Carolina, for supporting research efforts by Tucking for Tumors! This event took place at 6:30 pm at Pure Barre at 1412 Village Market Pl, Morrisville, NC 27560. The suggested donation per person was $20.  Limited edition Tucking for Tumors shirts were for sale…

2nd Annual JoeStrong Volleyball Tournament

October 21, 2017
Special thank you to all who joined Joe Erickson for his volleyball tournament on October 21st in Austin, TX! Joe decided to fundraise as a virtual participant in RFA this year, since he wasn’t able to make it to Philadelphia for DTRF’s events.  Through the tournament and 12 basket charity raffle, this event raised over…

2017 Annual Patient Meeting & Running for Answers 5K

September 23, 2017
Date: September 23 & 24, 2017 Location: Philadelphia, PA   The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes…

2017 Awareness through Artprize

September 1, 2017
September 2017Location: Grand Rapids, MI   Artprize is an independently organized annual competition that takes place each fall for 19 days in Grand Rapids Michigan.  Monetary prizes are awarded by public vote as well as awards given by a jury of art experts.  Artists from many locations exhibit their art in various places throughout the…

Sophie's Walk for Reed on July 22, 2017

July 22, 2017
Sophie Hickok organized her 5th Annual Walk for Reed in memory of her father, Reed, who lost his battle against an abdominal desmoid in April 2010. This year, her walk will take place at the Sunken Garden in Mission Hills, Kansas. Sophie, along with her friends and family, raised over $5,000 this year! We are…