Past Events - Desmoid Tumor Research Foundation

Past Events

Get "Big Red" to the Virginia State Fair's Demolition Derby!

July 10, 2016
A short story about a car, and a boy, by 2 sisters who love them both…   She is long, she is lean and most importantly she is big. She is Big Red. Many have seen, heard and smelled the living legend and some have even been fortunate enough to be engulfed in her magnificent…

Eighth Annual Lap4Life

June 18, 2016
For the 8th year in a row, the community of Newburgh, NY, along with volunteers, runners, teachers, fire fighters and sponsors came together for Lap4Life! This special event, created in memory of Angelo Casabianca, includes 3 events: a 4 mile walk or run and a 1/4 mile kids run! DTRF is honored to be a…

DTRF Golf Outing

June 13, 2016
DTRF hosted over 135 golfers and over 170 dinner attendees at the beautiful Tuxedo Club in Tuxedo, NY, on Monday, June 13th.  Attendees enjoyed the spectacular setting along with dinner on Tuxedo Lake. All funds will be donated to desmoid tumor research, and DTRF thanks the volunteer committee who worked countless hours to help organize this special event.…

Austin's Fibromatosis Research Fund's Used Clothing Drive & Chicken Dinner

June 11, 2016
Special thanks to Austin’s Fibromatosis Research Fund along with volunteers and participants at their annual Used Clothing Drive and Chicken Dinner. Both events took place place at the Lyons Fire Company in Lyons, PA, on June 11 & 12, 2016.

Thomas Paron to conquer Vermont City Marathon

May 30, 2016
Thomas Paron will be running the Vermont City Marathon on May 30th on behalf of DTRF. Thomas knows of 2 people affected by desmoid tumors, and this is put him into action! With a goal of $10,000, he is close to his goal! Special thank you to Compass Capital Management which will be providing a…

A Celebration of Hope

May 21, 2016
The Wilmarth and Gallagher families have got a big surprise for the Westmoreland County Fairgrounds in Pleasant Unity, PA on May 21st! This fun- filled day will include crafters, vendors, kids’ activities, door prizes and raffles! Please visit: for more information and updates on the event.  

Pong-a-Palooza: Charity Beer Pong Tournament on behalf of DTRF

May 14, 2016
Special thank you to Claudia Gomez, along with her family and friends for hosting Pong-A-Palooza, a charity beer pong tournament on May 14, 2016 in Philadelphia! This special event hosted over 50 teams in this double elimination tournament! Here are the rules she used below: Cost is $30/person ($60/team) and all proceeds go to DTRF-  Cost…

Vendor Bingo on March 20, 2016

March 10, 2016
Special thank you to Rochelle Miller and Corrine Conrad for organizing this event with their amazing volunteer committee which took place at the Kutztown Fire Company! This event benefited Austin’s Fibromatosis Research Foundation and DTRF!

Paint for a Purpose on November 19, 2015

November 19, 2015
Survivor Whitney Gramm hosted an evening of fun and creativity on November 19th at 6:30 at The Axis (prior Hancock Efree Church), 2 Fairview Lane, Hancock, MN. Food, snacks and beverages were provided, along with a silent auction to raise funds for DTRF!  

Chalet Au Moulin Arveyes Charity Evening on November 18, 2015

November 18, 2015
The Barrell family hosted a card and aloe vera sale in Switzerland on behalf of DTRF. Refreshments were served and they raised over $700 for desmoid tumor research! We are so grateful for their support!