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DTRF has established a very successful annual fall Patient Meeting which brings patients, physicians and researchers together for education, support and collaboration.

Our 2014 weekend in Philadelphia included the first International Desmoid Tumor Research Workshop. This event brings together a diverse group of scientists including the brightest minds in desmoid tumor research, human genetics, drug development and related fields. The Workshop facilitates an enthusiastic and collegial atmosphere as researchers across disciplines and institutions collaborate around the shared goal of improving treatments for desmoid tumor patients, establishing research priorities and moving the field forward toward a cure.