RFA 5K & Fun Run


Join us for our first official race day since 2019! 

The RFA 5K & Kids Fun Run, founded by desmoid tumor patient Sera Snyder in 2009, is our annual signature fundraising event and the celebratory finale of the annual DTRF Together We Will Weekend. The desmoid tumor community and supporters gather to walk, run, and roll on our accessible course together as a unified force against desmoid tumors. By participating in RFA, anyone, anywhere can build a team, create awareness, and help fundraise for a cure!


2023 RFA 5K & Kids Fun Run (In Person)

Sunday, Sept. 24, 2023

Onsite registration opens at 7am

Fairmount Park (Across from The Please Touch Museum)

Philadelphia, Pennsylvania


RFA Fundraising – Be an RFA Champion!

Whether you’re joining us in Philly on September 24th, or participating in RFA virtually, be an RFA Champion and fundraise for desmoid tumor research this summer. We encourage you to choose your own unique way to work towards a fundraising goal. 

New resources to make your summer fundraising EASY! This year, we are offering fundraising goal incentives, including t-shirts, insulated mugs, totes and backpacks. Anyone registered for RFA – in-person, virtual, as a team or individual, is eligible for these awesome prizes! Just raise $100 and you’ll be eligible for the first incentive – a super-soft Desmoid Tumor Awareness T-shirt! More incentives below.


Fundraising Incentives

Desmoid Awareness T-Shirt

 Raise $100 and get our signature Desmoid Tumor Awareness T-shirt!

Super-soft, tri-blend, unisex, side-seamed, tear away label pre-shrunk

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Raise $250 and get the t-shirt plus a large insulated mug!

Stainless steel, matte finish, vacuum-insulated, double-walled, clear screw-on lid with a high-wall leak resistant feature, 3-position black swivel top, black plastic straw with ring to keep it inside, black plastic handle, BPA free

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Raise $500 and get the t-shirt, insulated mug and the Desmoid Tumor Awareness Tote!

Convenient front pocket, side mesh pockets, pen loop, carabiner

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Raise $1000 and get the t-shirt, insulated mug, tote and a DTRF Laptop Backpack!

RFID Pocket, reinforced hardshell casing & backing for better rigidity and durability, built-in/retractable water bottle holder, zipper pockets on each shoulder strap, upgraded premium interior liner, built-in trolly strap


Past Fundraiser Ideas for Inspiration


  • DeAnn traveled 2,100+ miles “to Philly” virtually, recruiting donors as her team members and sharing a U.S. map showing her progress.
  • Dana did a 5K hike in elevation change (16,404 feet) using hand crutches, and used that as her fundraising goal of $16,404. She shared photos and videos of her journey.
  • Lynne vowed to shave her head and donate her hair if she reached her goal of $5,000. Although she didn’t hit her goal, she did inspire loved ones to give.
  • Lisa created a fundraising page for Desmoid United UK, and worked with her community to hit their fundraising goal of $1,000.
  • Margie encouraged friends and family to do their own 5Ks at home and to make donations to match them.
  • Jackie shot a wacky lip sync video for every $200 raised and shared the videos online.


Fundraising Resources


Social Media Post Graphics

We’ve created social media graphics to make your own fundraising campaign easy to promote. Right-click and choose “save image as” to download any post you’d like to use. Or download the whole pack. Be sure to use #RFA23 and #RFAchampion when you post!


Read our blog for updates about RFA

2019 RFA 5K & Fun Run

Year 10 of Running for Answers 5K is in the books, and what a wonderful celebration it was!

625 people joined us on race day for a beautiful race course, free ice cream and cheesesteaks, yoga, Zumba…and, most importantly, to raise funds for desmoid tumor research!

Our Kids’ Fun Run kicked off the beautiful fall morning with lots of tiny, fast feet, loud cheers and fans lining the out-and-back course. Afterwards, we were inspired by the welcome speeches of board members and desmoid tumor survivors Rachel Sitta and Kevin Reilly. Our #DesmoidSurvivor photo featured lots of color and we sang “Happy Birthday” on behalf of RFA’s 10th year, such a big milestone for our community. Then, Nicole Pelullo led us in Zumba to get warmed up for the 5K and Jill Cummings cooled us down with post-race yoga.

Thank you to all attendees, fundraisers and donors for rallying around this patient-founded event for the past decade and helping us *SURPASS* our fundraising goal this year!! We are so grateful to the 26 RFA teams who brought so much energy to the event with their colorful attire and commitment to fundraising!

We would also like to take a moment to express our gratitude to our dedicated RFA Race Committee members, the race day volunteers, and our Food Sponsor Conner Catering who make this event a wonderful experience for all who attend each year!


We are now one step closer to a cure for desmoid tumors.