Purchase Awareness Bracelets

Introduce DTRF to family and friends with DTRF awareness bracelets!
Here’s how it works:
  1. Click here to make a donation, in the minimum amount of $40.
  2. Email development@dtrf.org to let us know how many bracelets you’d like. (We can send you up to 20 bracelets per $40 donated as an acknowledgment of your donation.)
  3. We’ll send them out to you ASAP!

Celebrate Desmoid Tumor Awareness Month in September

Desmoid Tumor Awareness Month was originally founded in 2016 by Desmoid Survivor, Angela F.. Seeking to raise awareness about this rare disease, Angela launched a Facebook page in September to publicly feature patients’ video stories and raise funds for desmoid tumor research. We are grateful to Angela, and all of the patients and caregivers who took the time and energy to participate and share their stories. Now, every September, The Desmoid Tumor Research Foundation will continue building upon the work of our community by initiating a worldwide annual campaign to create awareness for desmoid tumors. Join us as we designate every September, from this year forward, as Desmoid Tumor Awareness Month. Wherever you are on the globe, we encourage you to participate and help us raise #DesmoidAwareness! To share your story, and learn about other ways to celebrate, educate, and raise funds for a cure this September, please visit DTRF.org/awareness.

Tell Your Story

Because desmoid tumors is such a rare disease, everyone’s help is needed to make a difference! Contacting the local media with your desmoid story or fundraiser and you can help educate your community about desmoid tumors.
Contact us here if you plan to approach the media- we can provide you with talking points and helpful resources! Thank you!