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Upcoming Events

2019 Swing for a Cure - St. Louis

September 9, 2019
St. Louis, MO
Katie and Jason met the most beautiful angel on September 7th, 2017… their daughter Emma Rose. Hours before Emma’s arrival, they found out that Jason had a very large tumor in his abdomen.  The morning after Emma was born, Jason underwent a biopsy and after many tests discovered that he had desmoid tumors. It’s been…

2019 Annual Patient Meeting & Running for Answers 5K

September 21, 2019
Please Touch Museum, Philadelphia
Date: September 21 & 22, 2019 Location: Philadelphia, PA The DTRF Patient Meeting and Running For Answers 5K Run/ Walk and Kids’ Fun Run occur annually in the fall. Running for Answers, founded in 2009, is the annual DTRF signature fundraising event. Held in Philadelphia, Pennsylvania, on the 4th Sunday in September, this special event takes place…

6th Annual Desmoid Dash on September 29, 2019

September 29, 2019
Minneapolis, MN
Save the date for the 6th Annual Desmoid Dash in Minneapolis, MN (Mendota Heights) on September 29th! Annually, this event has welcomed over 200 participants, including desmoid tumor patients and their caregivers. In 2013, the first annual Desmoid Dash was hosted by the Zechmann family, along with their closest friends and family. We hope you’ll…
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