Regional Patient Meeting
2019 PATIENT MEETING ON SATURDAY, APRIL 13
The 2019 Regional Patient Meeting took place on Saturday, April 13th at the Embassy Suites- San Francisco Airport in South San Francisco, CA.
Registration opened at 11am and the meeting ran from 12-5pm.
Our presenters were:
Kristen Ganjoo, MD, Associate Professor of Medicine (Oncology) & Director, Stanford Sarcoma Program, Stanford University Medical Center.
“The Stanford Desmoid Tumor Board.”
Pejman Ghanouni, MD, PhD, Assistant Professor of Radiology, Stanford School of Medicine.
“Treatment of desmoid tumors with magnetic resonance imaging guided High Intensity Focused Ultrasound (HIFU) and cryoablation.”
Casey Cunningham, MD,, Chief Medical Officer, Iterion Therapeutics (formerly Beta Cat Pharmaceuticals, Inc.).
“Update on the recent launch of Phase I trial for Tegavivint.”
Shivaani Kummar, MD, FACP, Director of the Translational Oncology and Phase I Clinical Research Programs, Stanford University.
“Targeted treatments for desmoid tumors.”
L. Mary Smith, PhD, VP of Clinical Research & Development, SpringWorks Therapeutics.
“An update on Phase III trial of Nirogacestat.”
Matthew van de Rijn, MD, PhD, Professor, Department of Pathology, Stanford University Medical Center.
“The pathology of desmoid tumors.”
Jeanne Whiting, President and Co-Founder of DTRF
“The DTRF’s accomplishments.”
Breelyn Wilky, MD, Associate Professor & Director of Sarcoma Translational Research, University of Colorado School of Medicine.
“Desmoid tumors: Understanding treatment options in 2019.”
Chris Barry, FAP and desmoid tumor patient.