On Saturday, September 23rd, in Philadelphia, PA, DTRF held its Annual Patient Meeting. This event educates and empowers patients and caregivers by teaching them about the latest research & treatment options available. Attendees finished the weekend with friends and family at Running for Answers 5K & Kids’ Fun Run. Learn more »
Join the DTRF Patient Registry
DTRF encourages you to join the DTRF Patient Registry in order to facilitate research efforts. With access to your experience as a patient, researchers will be able to continue learning and making new discoveries in the field of desmoid tumors. If you have ever had a desmoid tumor, you can participate. Learn more »
If you have an upcoming desmoid tumor surgery or biopsy, you can potentially contribute to furthering research on the disease. The DTRF is partnering with Pattern.org to send tissue samples to the Broad Institute of MIT and Harvard (www.broadinstitute.org) for inclusion in their Cancer Cell Line Project. Learn more »
Frequently Asked Questions
Because desmoid tumors are so rare, they are often misunderstood. Review commonly asked questions about classification, pregnancy, recurrence and mutation types. This is a great resource for newly-diagnosed patients.
ANNUAL PATIENT MEETING
DTRF’s Annual Patient Meeting took place in September 2017.Learn more »