On Saturday, September 23rd, in Philadelphia, PA, DTRF held its Annual Patient Meeting. This event educates and empowers patients and caregivers by teaching them about the latest research & treatment options available. Attendees finished the weekend with friends and family at Running for Answers 5K & Kids’ Fun Run. Learn more »
Patients driving research
Patients are making a difference by sharing their tumor and treatment experience. Patient input has been critical to the development of DTRF’s PRO tool, and will be key in DTRF’s Desmoid Tumor Natural History Study. Our thanks go out to those who are taking the time to participate in these critical research studies.
If you have an upcoming desmoid tumor surgery or biopsy, you can potentially contribute to furthering research on the disease. The DTRF is partnering with Pattern.org to send tissue samples to the Broad Institute of MIT and Harvard (www.broadinstitute.org) for inclusion in their Cancer Cell Line Project. Learn more »
Frequently Asked Questions
Because desmoid tumors are so rare, they are often misunderstood. Review commonly asked questions about classification, pregnancy, recurrence and mutation types. This is a great resource for newly-diagnosed patients.
ANNUAL PATIENT MEETING
DTRF’s Annual Patient Meeting took place in September 2017.Learn more »