DTRF’s Annual Patient Meeting educates and empowers patients and caregivers by teaching them about the latest research & treatment options available. This year, we’ll be holding our Patient Meeting, in conjunction with the 7th Annual Running for Answers 5K & Kids’ Fun Run on 9/24 and 9/25 in Philadelphia! Learn more »
If you’re contemplating surgery, the Alman Lab at the Hospital for Sick Children in Toronto, Canada, is asking for freshly-resected desmoid tumor samples. These will be used for ongoing DTRF-funded research. Learn more »
Patients driving research
Patients are making a difference by sharing their tumor and treatment experience. Patient input is critical to the development of DTRF’s PRO tool, and will be key in DTRF’s Desmoid Tumor Natural History Study. Our thanks go out to those who are taking the time to participate in these critical research studies.
ANNUAL PATIENT MEETING
Get educated and empowered at DTRF’s Annual Patient Meeting. Learn more »
If you’re contemplating surgery, the Alman Lab at the Hospital. Learn more »
PATIENTS DRIVING RESEARCH
The patient experience is shaping the development of DTRF’s PRO Tool. Learn more »
Running for Answers
Running for Answers 5K and Kids’ Fun Run is DTRF’s largest annual fundraiser. Join us on September 25th in Philadelphia for this special event.