Who Is the DTRF Virtual Tumor Board For?
If you are a physician treating a desmoid tumor patient and are finding treatment exceptionally challenging, the case may be eligible for review by the Desmoid Tumor Research Foundation (DTRF) Virtual Tumor Board.
Led by Dr. Aaron Weiss, pediatric oncologist at Maine Medical Center and Chair of DTRF’s Medical Advisory Board, the DTRF Virtual Tumor Board is an international video conference that meets quarterly and allows physicians to discuss their difficult desmoid tumor cases with leading specialists in the field and receive their input.
Each call covers approximately three desmoid tumor cases, where presenting physicians share de-identified patient history and scans with the rest of the board. Participating specialists who provide input at these meetings are in the fields of oncology, radiology, surgical oncology, pathology and interventional radiology.
We are pleased to be able to offer this important resource free of charge to help patients and their physicians. If you are living with a desmoid tumor and feel like your case may be eligible, speak with your physician as soon as possible about the DTRF Virtual Tumor Board.
Before submitting a case, please note the below guidelines:
- Only a physician can submit and present an individual’s desmoid tumor case
- Due to limited space during these conferences, life-threatening or other time-sensitive cases will take priority during the selection process
- Preference may be given to physicians unfamiliar with desmoid tumors who may be facing a lack of access to resources and support.
DTRF Virtual Tumor Board Chair
Aaron Weiss, DO, Maine Medical Center
In 2012, Dr. Weiss joined the Maine Children’s Cancer Program at Maine Medical Center in Portland, ME. Dr. Weiss has particular interest in pediatric sarcomas. He has co-authored a number of publications on this subject and is currently involved in conducting pediatric clinical trials both locally and nationally in the fields of desmoid tumor and soft tissue sarcoma. He is the Vice-Chair of the Soft Tissue Sarcoma Committee and Associate Vice-Chair of the Adolescent and Young Adult Committee of the Children’s Oncology Group. He is the Principal Investigator of the DTRF-funded project: Deregulated mTOR in Desmoid-type Fibromatosis: Identification and Validation of a New Therapeutic Target. He is Chair of the DTRF Virtual Tumor Board as well as a member of the DTRF Medical Advisory Board.
Tumor Board News
Read the articles below highlighting the efforts of the Virtual Tumor Board:
“Mock Tumor Board”
For Patients: What is a Multidisciplinary Tumor Board?
See the benefits of a multidisciplinary tumor board through this mock tumor board presentation by multidisciplinary experts from the University of Pittsburgh Medical Center – Hillman Cancer Center recorded at the 2022 DTRF Patient Meeting.
“Having this resource meant the world.”Hear from Ingrid, a parent of a desmoid tumor patient from Norway, about her family’s experience with the DTRF Virtual Tumor Board.
Ingrid, a Caregiver from Norway, shares her experience with the DTRF Virtual Tumor Board
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