We are working together with international healthcare and patient advocacy organizations to learn more about the decisions women make regarding pregnancy after a desmoid tumor diagnosis, as well as to understand how pregnancy may influence the behavior of a desmoid tumor. This may one day lead to improved tools to support women who are making decisions regarding pregnancy.
The study is no longer recruiting participants and will be publishing results in 2023‑2024.
If you have questions about this study, please email the DTRF Pregnancy Study at pregnancystudy@dtrf.org. The results of this study will be added here when published.
What We’ve Learned from the International Pregnancy Study
Watch Dr. Marco Fiore, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano (Italy), as he presents at the 2023 DTRF Patient Meeting. His presentation, “What We’ve Learned from the International Pregnancy Study,” presents the final results from this collaborative effort between the Desmoid Foundation ONLUS – Italia and Fondazione IRCCS Istituto Nazionale dei Tumori in Italy.
International Pregnancy Study Publications
2023
2023 | ASCO Annual Meeting
Impact of pregnancy in women with desmoid fibromatosis: An international retrospective observational study.
Presenter: Marco Fiore, MD, FACS | Sarcoma Service, Fondazione IRCCS Istituto Nazionale dei Tumori
Abstract: 11513 | Poster Bd #: 447
