Desmoid Tumors are No Match for the Power of Community
We are proof that a community of patients and their advocates can make a difference – and yet there is still more to do. As our community of supporters grows, awareness of desmoid tumors and the work and mission of the DTRF are amplified.
Spreading awareness has a profound impact on our ability to raise desperately-needed funds to accelerate research aimed at better treatment options and, eventually, a cure for desmoid tumors. Awareness has the power to garner more interest in foundational desmoid tumor research and clinical trials, and improve understanding and support for patients among the medical community and beyond.
Desmoid tumors are rare and can be life-altering. We need everyone’s help to spread awareness and make a difference.
Take Part in Desmoid Tumor Awareness Month
Every September, the DTRF and the global patient and caregiver community share stories and information, and rally support to advance desmoid tumor research.
Let Your Voice Be Heard
We are here to listen and amplify your voice. Submit your story, and we may share it on our public channels to help raise awareness.
Want to Take it to the Press?
Educate your community about desmoid tumors by leveraging your local media. Contact us if you plan to approach the media, and we can provide you with talking points and helpful resources.
Wear Your Support
Consider purchasing awareness bracelets to show your support for desmoid tumor patients.
Here’s how it works:
Check out upcoming events for more ways to connect, fundraise and raise awareness.