Together We Will
Learn.
Together We Will
Collaborate.
Together We Will
Fund a Cure.
Throughout our history, we have been hosting a community event weekend every September in Philadelphia during Desmoid Tumor Awareness Month.
The annual DTRF Together We Will Weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Together we will advance research, empower our community with information, foster connection, and fundraise for a cure.
2023 DTRF Together We Will Weekend
In Person
September
22-24, 2023
Philadelphia,
Pennsylvania
Hotel Events
Friday & Saturday, Sept. 22-23
Wyndham Philadelphia, Historic District
Philadelphia, Pennsylvania
RFA 5K & Fun Run
(Requires Separate Registration)
Sunday, Sept. 24
Fairmount Park (Across from The Please Touch Museum)
Philadelphia, Pennsylvania
Plan Your Trip to Philadelphia:
*Book your hotel in Philly ASAP! The room block is filling up, and hotel rooms are in high demand due to a city-wide event in Philadelphia during the Weekend.*
The DTRF has negotiated a discounted room block at the Wyndham Philadelphia, Historic District, for 3 nights (the nights of Thurs., 9/21, Fri., 9/22, and Sat., 9/23). In addition to this discount, these 3 nights will be subsidized at $50/night by the Foundation for all Weekend attendees.
PLEASE NOTE: If you are making your reservation online, your credit card will not be charged until you check-in. You will NOT see the DTRF $50/night subsidy for Thursday, Friday, and Saturday nights until you arrive and check into the hotel.
The DTRF Together We Will Weekend Core Events
DTRF Patient Meeting
Founded in 2007, the DTRF Patient Meeting is our signature patient support event. The meeting includes educational presentations by clinicians and researchers, with questions from the audience, as well as a talk by a desmoid patient. Content is geared toward topics of interest to our patient and caregiver community, and physicians are also encouraged to attend this foundational event of the Weekend. This meeting will be recorded and available on our website in the weeks following the event.
RFA 5K & Fun Run
RFA 5K & Fun Run, founded as Running for Answers by desmoid tumor patient Sera Snyder in 2009, is our annual signature fundraising event and the celebratory finale of the Weekend. The desmoid tumor community and supporters gather to walk, run, and roll on our accessible course together as a unified force against desmoid tumors. By participating in RFA, anyone can build a team, create awareness, and help fundraise for a cure!
DTRF Community Networking Event
We’ve heard many times from patients and caregivers that attending our annual events have helped them feel that they’re not battling this disease alone. Our in-person networking event is a wonderful opportunity to have one-on-one, real-time conversations with fellow patients and caregivers.
DTRF Int’l Research Workshop
Designed for researchers and medical professionals, this critically important, collaborative event is a meeting of some of the brightest minds in desmoid tumor research from a variety of disciplines. The Research Workshop presents the latest information on desmoid treatments and research, and facilitates new collaborations to move the science forward. It also helps the DTRF identify research priorities for the coming years. Medical students interested in studying desmoid science are welcome to attend as well.
2023 DTRF Together We Will Weekend Event Schedule
All events take place at the Wyndham Philadelphia – Historic District, except for RFA 5K & Kids Fun Run on Sept. 24th
11:00 am – 5:00 pm:
DTRF Int’l Research Workshop for Clinicians, Researchers and Industry Professionals
This is the only Weekend event that will be in-person *AND* virtual. The event is exclusively for researchers and medical professionals. Medical students interested in studying desmoid science are welcome to attend as well.
5:00 pm – 6:30 pm:
Welcome Reception & Weekend Kickoff for All Weekend Attendees
After three years of being virtual, this evening event will allow the DTRF to formally welcome patients, their family members, clinicians, researchers and industry professionals to Philadelphia. Let’s kick off the weekend with connection and comradery as we celebrate being together once again! Enjoy drinks and appetizers as you settle in for the DTRF Together We Will Weekend.
7:00 am- 8:00 am:
Meditation & Stretching for All Weekend Attendees
After yesterday’s travel, the DTRF Welcome Reception, and a good night’s sleep, we invite all Weekend attendees to join us for this morning event to relax, center, and set your intentions for an exciting day ahead of learning and connecting.
8:00 am- 9:30 am:
“Meet the Doctors and Researchers” Networking Breakfast for All Weekend Attendees
Over coffee and an informal breakfast, researchers and clinicians will answer questions about treatment options, tumor locations, and research. Patients will have the opportunity to meet each other and share experiences. Each roundtable will cover a different topic.
Each desmoid tumor case is different. These conversations are not intended as medical advice for any individual problem, or as a diagnosis, treatment plan, or recommendation for a particular course of action, and should not be used as a substitute for professional medical advice and services.
10:00 am- 11:00 am:
Community Networking Event for Patients & Caregivers
This networking event will allow patients and caregivers to connect in small groups.
Signature Event:
1:00 pm – 6:00 pm:
DTRF Patient Meeting for All Weekend Attendees
Founded in 2007, the Annual DTRF Patient Meeting is the annual signature patient support event. Content is geared toward our patient and caregiver community, but all are encouraged to attend this foundational event of the weekend.
8:00 am:
RFA 5K & Fun Run for All Weekend Attendees (in Fairmount Park, across from The Please Touch Museum)
Join us for our first official race day since 2019! RFA, founded by desmoid tumor patient Sera Snyder in 2009, is the annual DTRF signature fundraising event.
Table of Contents
Continue Exploring
The Annual DTRF International Desmoid Tumor Research Workshop
Join us in our mission to support our patient community and fund research.
DTRF Patient Meeting
Our Patient Meeting is a time to hear from clinicians, researchers, and desmoid patients and caregivers during our annual DTRF Together We Will Weekend.
