Our Mission: Cure Desmoid Tumors
The Desmoid Tumor Research Foundation (DTRF) empowers and unites everyone committed to finding answers for the desmoid tumor community. We aggressively fund desmoid tumor research, accelerate the development of improved therapies, drive collaborations among clinicians and researchers worldwide, and support patients and doctors through education. Our goal is to find a cure for each and every patient diagnosed with this rare disease.
Learn more about submitting a grant proposal.
EXPLORE THE RESEARCH WE’VE FUNDED AT PRESTIGIOUS INSTITUTIONS AROUND THE WORLD.
| Year | Principal Investigator | Award Title | |
|---|---|---|---|
| Year2025 | Principal InvestigatorJonathan Noujaim, MD (pictured) and James Tsui, BEng, MSc, MDCM, PhD, FRCPC, McGill University Health Centre | Award Title“Development of a Multimodal Deep Learning Model to Predict Disease Evolution in Newly Diagnosed Desmoid Tumors.” 1 Year (planning grant) | View Project |
| Year2025 | Principal InvestigatorDr. Benjamin Alman (pictured) with Mushriq Al-Jazrawe, PhD, Duke University | Award Title“Modeling Regression and Progression in Desmoid Tumors via Transcriptional and Cellular Programs Evolution in Newly Diagnosed Desmoid Tumors.” Year 1 of 3 | View Project |
| Year2025 | Principal InvestigatorChiara Colombo, MD, Fondazione IRCCS Istituto Nazionale dei Tumori | Award Title“Investigating immune mechanisms mediating tumor regression in patients with desmoid fibromatosis.” Year 1 of 3 | View Project |
| Year2025 | Principal InvestigatorSameer Rastogi, MD, All India Institute of Medical Sciences | Award Title“To see the early effect of sorafenib on cognition, cardiovascular and reproductive functions in patients with fibromatosis.” Year 3 of 3 | View Project |
| Year2025 | Principal InvestigatorEldad Elnekave, MD, Shaare Zedek Medical Center | Award Title“Doxorubicin Eluting Embolization (DEE) for Desmoid Fibromatosis.” Year 1 of 3 | View Project |
| Year2024 | Principal InvestigatorCristabelle De Souza, PhD, Stanford University | Award Title“Activation of c-JUN modulates the transcriptional activity of CD63 serving as a novel target for the treatment of Desmoid Type Fibromatosis.” Year 3 of 3 | View Project |
| Year2024 | Principal InvestigatorSameer Rastogi, MD, All India Institute of Medical Sciences | Award Title“To see the early effect of sorafenib on cognition, cardiovascular and reproductive functions in patients with fibromatosis.” Year 2 of 3 | View Project |
| Year2024 | Principal InvestigatorMushriq Al-Jazrawe, PhD, Koch Institute for Integrative Cancer Research at MIT | Award Title“Concurrent genotyping and transcriptomics of Desmoid Tumor single cells and nuclei to study spontaneous regression and therapeutic vulnerability.” | View Project |
| Year2023 | Principal InvestigatorPeter Hohenberger, MD, University of Heidelberg, Germany | Award Title“An evidence-based 2nd consensus on the treatment for desmoid tumors.” Year 1 of 1 | View Project |
| Year2023 | Principal InvestigatorJoanna Przybyl, PhD, | Award Title“Targeting hexosamine biosynthesis pathway for the treatment of desmoid tumors.” Year 2 of 2 | View Project |
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