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Featured News

FDA APPROVES OGSIVEO™ (NIROGACESTAT), AS THE FIRST MEDICAL THERAPY FOR THE TREATMENT OF ADULTS WITH PROGRESSING DESMOID TUMORS.

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May 4, 2026

Immunome Submits New Drug Application for Varegacestat for the Treatment of Adults with Desmoid Tumors

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April 13, 2026

Charting the Path Forward: 2026–2030 Strategic Plan

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April 2, 2026

2026 Lay Summary of Global Consensus Paper

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March 5, 2026

2026 “Together We Will” Weekend Location & Date Announcement

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February 2, 2026

2026 Spread the Word Campaign

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November 6, 2025

DTRF Update: Welcoming Incoming Executive Director

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