The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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“Who’s on Your Care Team? A Multidisciplinary Approach to Desmoid Tumors & Mock Tumor Board Presentation”

Featuring Penn Medicine Clinicians

Recorded at the 2026 DTRF Annual Patient Meeting

“The DTRF Patient Registry & Natural History Study”

with Kelly Mercier, PhD

Recorded at the 2026 DTRF Annual Patient Meeting

“2026 Together We Will Weekend Award honoring Dr. Benjamin Alman”

with DTRF Co-founders, Jeanne Whiting and Marlene Portnoy

Recorded at the 2026 DTRF Annual Patient Meeting

“Innovations and Insights in Reproductive Fertilityfor Patients with Desmoid Tumor”

with Caitlin E Martin, MD, MS

Recorded at the 2026 DTRF Annual Patient Meeting

“FAP-associated Desmoid Tumor Management and Using Case Studies to Develop Decision-Making Guidance”

with Dale R. Shepard, MD, PhD

Recorded at the 2026 DTRF Annual Patient Meeting

“Long-term Data on Patients Study Update: Doxorubicin Eluting Embolization for Desmoid Fibromatosis”

with Eldad Elnekave, MD

Recorded at the 2026 DTRF Annual Patient Meeting