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The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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“In Her Own Words: Amanda’s Story for Sarcoma Awareness Month”

2026 Story-Sharing Webinar

“From Research to Real Life: What the RINGSIDE Trial Results Mean for the Desmoid Community”

Special Guest: Rashmi Chugh, MD

2026 Patient Education Webinar

“Mock Tumor Board: “How does a Multidisciplinary Tumor Board Work?”

Moderators: Gabriel Tinoco, MD, MBA & Valerie Grignol, MD

Recorded at the 2026 Living with Desmoids Event in Columbus, OH

“Multidisciplinary Evolution in Desmoid Management: 20 Years of Progress”

Special Guest: Raphael Pollock, MD, PhD

Recorded at the 2026 Living with Desmoids Event in Columbus, OH

“Desmoid Tumors: Systemic Treatments and Clinical Trials”

Special Guest: David Liebner, MD

Recorded at the 2026 Living with Desmoids Event in Columbus, OH

“Systemic Therapy in Desmoids: What, When and Why in 2026”

Special Guest: Gabriel Tinoco, MD, MBA

Recorded at the 2026 Living with Desmoids Event in Columbus, OH