Join us in-person for the 2025 DTRF "Together We Will" Weekend in Chicago from Sept. 12-13! - Register Today

The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

Filter by:

“Understanding the Classification of Desmoid Tumors”

Special Guests: Ravin Ratan, MD, DeAnn Sorenson, Alexander Ommaya, DSc

2025 Patient Education Webinar

“A New Clinical Trial for Desmoid Tumor Patients: FOG-001”

Special Guest: Gregory Cote, MD, PHD

2025 Patient Educational Webinar

DTRF Open House

Recording from April 2025 Virtual Event

“Spread the Word” Facebook Live

Special Guest: Amy Beitz

2025 Rare Disease Day

“Reproductive considerations for desmoid tumor patients”

Special Guest: Laurie J. McKenzie, MD

2025 Lunch N' Learn

Cryoablation: “What We Do and Don’t Know”

Special Guests: Bernd Kasper, MD, PHD and Jean-Emmanuel Kurtz, MD, PHD

2024 Patient Education Webinar