The DTRF is committed to providing opportunities for the patient, caregiver, and clinical and research communities to connect with each other, collaborate, learn, and help fundraise for a cure. Below we’ve highlighted our signature events, and we hope that you join us for one (or all) of them!
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Signature Events
DTRF Together We Will Weekend
This weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Annual Patient Meeting and Int’l Research Workshop.
In-Person Patient Education Events
Similar to the annual DTRF Patient Meeting, experts in the field of desmoid tumors present to local patient and caregiver community members.
Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month (DTAM).
Events
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Desmoid Defenders 5K Run/Walk
Queeny Park Saint Louis, MO, United StatesRun for Awareness. Run for Research. Run for Hope. September is Desmoid Tumor Awareness Month, and the Desmoid Defenders 5K is an opportunity to bring our community together to support patients […]
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2026 DTRF “Together We Will” Weekend
Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community. Whether you are newly diagnosed, have been navigating your […]
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Swing for a Cure – St. Louis
The Legends Country Club 625 The Legends Pkwy, Eureka, MO, United StatesThe Ortwerth family invites you to the 8th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Please join them on Monday, October 5th […]
Recent Event Articles
August 17, 2026
Stand with the Desmoid Tumor Community this September
Read More about Stand with the Desmoid Tumor Community this September
June 30, 2026
It’s time to accelerate desmoid tumor research.
Read More about It’s time to accelerate desmoid tumor research.
June 15, 2026
