The DTRF is committed to providing opportunities for the patient, caregiver, and clinical and research communities to connect with each other, collaborate, learn, and help fundraise for a cure. Below we’ve highlighted our signature events, and we hope that you join us for one (or all) of them!
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Signature Events
DTRF Together We Will Weekend
This weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Patient Meeting, DTRF Int’l Research Workshop, RFA 5K & Fun Run, and DTRF Community Networking Event.
DTRF Regional Patient Meetings
Similar to the annual DTRF Patient Meeting, experts in the field of desmoid tumors present to local patient and caregiver community members.
Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.
2024 Together We Will Weekend
Marriott 6580 Fannin Street, Houston, United StatesTogether we will advance research, empower our community with information, foster connection, and fundraise for a cure. We are excited to announce the DTRF Together We Will Weekend and RFA […]
2024 International Research Workshop
Marriott 6580 Fannin Street, Houston, United StatesThe DTRF International Research Workshop features: Scientific talks on current research and treatment A forum to share research findings, develop new collaborations, bring new scientists into the desmoid tumor research […]
2024 Annual Patient Meeting
Marriott 6580 Fannin Street, Houston, United StatesFounded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. It always takes place on Saturday, the day before our annual RFA Walk. The […]
2024 RFA Walk
Houston Zoo 6200 Hermann Park Drive, Houston, TX, United StatesThe 2024 RFA Walk offers something for everyone; build a team, participate as an individual, create awareness, and help fundraise for a cure! Running for Answers (RFA), founded in Philadelphia by […]
Recent Event Articles
March 3, 2024
Young Adult Virtual Event Series: “Times Are A-Changin’: Heading into Young Adulthood with a Desmoid Tumor.”
November 11, 2023
DTRF Hosts the 2023 “Together We Will” Weekend in Philadelphia
Read More about DTRF Hosts the 2023 “Together We Will” Weekend in Philadelphia
September 9, 2023
Desmoid Tumor Awareness Month 2023 Comes To A Close
Read More about Desmoid Tumor Awareness Month 2023 Comes To A Close