The DTRF is committed to providing opportunities for the patient, caregiver, and clinical and research communities to connect with each other, collaborate, learn, and help fundraise for a cure. Below we’ve highlighted our signature events, and we hope that you join us for one (or all) of them!
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Signature Events
DTRF Together We Will Weekend
This weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Annual Patient Meeting, Int’l Research Workshop, and DTRF Community Networking Event.
In-Person Patient Education Events
Similar to the annual DTRF Patient Meeting, experts in the field of desmoid tumors present to local patient and caregiver community members.
Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month (DTAM).
Events
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From Research to Real Life: What the RINGSIDE Trial Results Mean for the Desmoid Community
The presentation of the RINGSIDE trial data in May marked an important moment for the desmoid tumor community. Join the DTRF and Dr. Rashmi Chugh, MD, of University of Michigan […]
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In Her Own Words: Amanda’s Story for Sarcoma Awareness Month
In honor of Sarcoma Awareness Month, the Desmoid Tumor Research Foundation (DTRF) invites you to a new story-sharing event featuring Amanda is an artist and keynote speaker who is both […]
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Golf for a Cure
Join the Augdahl Family for a golf tournament in Zeeland, Michigan! Date: August 30, 2026 Time: 12:00PM registration with 1:00PM shotgun Cost: $125.00 per person Location: Crestview Golf Course - […]
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2026 DTRF “Together We Will” Weekend
Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community. Whether you are newly diagnosed, have been navigating your […]
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Swing for a Cure – St. Louis
The Legends Country Club 625 The Legends Pkwy, Eureka, MO, United StatesThe Ortwerth family invites you to the 8th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Please join them on Monday, October 5th […]
Recent Event Articles
June 30, 2026
It’s time to accelerate desmoid tumor research.
Read More about It’s time to accelerate desmoid tumor research.
June 15, 2026
Introducing: DTRF’s Travel Access Program
May 11, 2026
2026 “Together We Will” Weekend Registration is OPEN!
Read More about 2026 “Together We Will” Weekend Registration is OPEN!
