The DTRF is committed to providing opportunities for the patient, caregiver, and clinical and research communities to connect with each other, collaborate, learn, and help fundraise for a cure. Below we’ve highlighted our signature events, and we hope that you join us for one (or all) of them!
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Signature Events
DTRF Together We Will Weekend
This weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Annual Patient Meeting, Int’l Research Workshop, and DTRF Community Networking Event.
DTRF Regional Patient Meetings
Similar to the annual DTRF Patient Meeting, experts in the field of desmoid tumors present to local patient and caregiver community members.
Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.
Events
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Facebook/Instagram Live with Desmoid Warrior: Morgan B.
Join us LIVE on Facebook and Instagram in honor of Rare Disease Day! On Thursday, February 26th at 5 PM ET, Morgan will share her personal journey living with a […]
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Living with Desmoid Tumors: A DTRF Patient Education Experience
Living with Desmoid Tumors: A DTRF Education Experience is a one day, in-person event designed for patients and caregivers seeking trusted information about desmoid tumors and connection with a community that understands […]
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Okanagan Graveller Cycling Event
The Okanagan Graveller cycling event benefits the Desmoid Tumour Foundation of Canada (DFC), a long-standing partner of DTRF. Participate or register for the event by clicking visiting the registration page. […]
Recent Event Articles
October 16, 2025
DTRF Hosts the 2025 “Together We Will” Weekend in Chicago
Read More about DTRF Hosts the 2025 “Together We Will” Weekend in Chicago
September 1, 2025
September is Desmoid Tumor Awareness Month!
February 12, 2025
Recap: February Patient Education Event in Partnership with Penn Medicine
Read More about Recap: February Patient Education Event in Partnership with Penn Medicine
