The DTRF is committed to providing opportunities for the patient, caregiver, and clinical and research communities to connect with each other, collaborate, learn, and help fundraise for a cure. Below we’ve highlighted our signature events, and we hope that you join us for one (or all) of them!
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Signature Events
DTRF Together We Will Weekend
This weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Patient Meeting, DTRF Int’l Research Workshop, RFA 5K & Fun Run, and DTRF Community Networking Event.
DTRF Regional Patient Meetings
Similar to the annual DTRF Patient Meeting, experts in the field of desmoid tumors present to local patient and caregiver community members.
Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.
Desmoid Tumor Awareness Month: Facebook Live with Megan Barrell
Celebrate Desmoid Tumor Awareness Month with us! On Thursday, September 11th at 3pm ET, join us for a Facebook Live featuring Megan Barrell, Desmoid Tumor Patient Advocate. The conversation will […]
Golf For A Cure
Zeeland, MI$100 - Per Player includes 18 holes w/cart, reception, drink tickets, raffles All proceeds go to support research for a cure through the Desmoid Tumor Research Foundation Location: Crestview Golf […]
2024 Together We Will Weekend
Marriott 6580 Fannin Street, Houston, United StatesTogether we will advance research, empower our community with information, foster connection, and fundraise for a cure. We are excited to announce the DTRF Together We Will Weekend and RFA […]
2024 International Research Workshop
Marriott 6580 Fannin Street, Houston, United StatesThe DTRF International Research Workshop features: Scientific talks on current research and treatment A forum to share research findings, develop new collaborations, bring new scientists into the desmoid tumor research […]
2024 Annual Patient Meeting
Marriott 6580 Fannin Street, Houston, United StatesFounded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. It always takes place on Saturday, the day before our annual RFA Walk. The […]
2024 RFA Walk
Houston Zoo 6200 Hermann Park Drive, Houston, TX, United StatesThe 2024 RFA Walk offers something for everyone; build a team, participate as an individual, create awareness, and help fundraise for a cure! Running for Answers (RFA), founded in Philadelphia by […]
Swing for a Cure – St. Louis
The Ortwerth family invites you to the 6th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Register HERE for this special event.
Desmoid Tumor Awareness Month: Facebook Live with Amanda MacKinnon
Celebrate Desmoid Tumor Awareness Month with us! On Thursday, September 25th at 3pm ET, join us for a Facebook Live featuring Amanda MacKinnon, caregiver of a desmoid tumor patient. The […]
8th Annual JoeStrong Halloween Charity Volleyball Tournament
ATX Beach 11000 Middle Fiskville Rd, Austin, TX, United StatesThe JoeStrong Volleyball Tournament is back again! Scan the QR Code or click on the event website link below to register for this fun annual event in Austin, TX.
Recent Event Articles
June 6, 2024
Updated Desmoid Tumor Treatment Guidelines, funded in part by DTRF, Published in JAMA Oncology
June 6, 2024
DTRF Executive Director Lynne Hernandez served as a faculty member this year at an educational session – 2024 Annual Meeting for the American Society of Clinical Oncology (ASCO)
March 3, 2024
