The DTRF is committed to providing opportunities for the patient, caregiver, and clinical and research communities to connect with each other, collaborate, learn, and help fundraise for a cure. Below we’ve highlighted our signature events, and we hope that you join us for one (or all) of them!
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Signature Events
DTRF Together We Will Weekend
This weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Annual Patient Meeting and Int’l Research Workshop.
In-Person Patient Education Events
Similar to the annual DTRF Patient Meeting, experts in the field of desmoid tumors present to local patient and caregiver community members.
Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month (DTAM).
Events
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Pong-A-Palooza
Philadelphia, PAJoin a local fundraiser on the Saturday after Thanksgiving for a friendly beer pong tournament raising money for the Desmoid Tumor Research Foundation (DTRF). Bring a partner and get in […]
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Fill the Gap with Us: A Giving Tuesday Community Celebration
Important progress. Incredible people. One mission. 💜 This Giving Tuesday, we're celebrating our community that makes it all possible! Join the DTRF team and Ambassadors for a special virtual event […]
Recent Event Articles
November 2, 2026
2026 “Together We Will” Weekend Recap
August 17, 2026
Stand with the Desmoid Tumor Community this September
Read More about Stand with the Desmoid Tumor Community this September
June 30, 2026
It’s time to accelerate desmoid tumor research.
Read More about It’s time to accelerate desmoid tumor research.
