The DTRF is committed to providing opportunities for the patient, caregiver, and clinical and research communities to connect with each other, collaborate, learn, and help fundraise for a cure. Below we’ve highlighted our signature events, and we hope that you join us for one (or all) of them!
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Signature Events
DTRF Together We Will Weekend
This weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Annual Patient Meeting, Int’l Research Workshop, and DTRF Community Networking Event.
DTRF Regional Patient Meetings
Similar to the annual DTRF Patient Meeting, experts in the field of desmoid tumors present to local patient and caregiver community members.
Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.
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Rock For A Cure
TRIBE is organizing the first annual “Rock for a Cure” concert featuring Batterhead and Tom Fills for an amazing charity near and dear to our hearts - Desmoid Tumor Research […]
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Navigating Your Desmoid Tumor Diagnosis: A 1/2 day patient education and networking opportunity
Reserve your spot at our upcoming patient education event in collaboration with Stanford School of Medicine to connect with and learn from other desmoid tumor patients and clinicians. A variety of educational […]
Recent Event Articles
October 16, 2025
DTRF Hosts the 2025 “Together We Will” Weekend in Chicago
Read More about DTRF Hosts the 2025 “Together We Will” Weekend in Chicago
September 1, 2025
September is Desmoid Tumor Awareness Month!
February 12, 2025
Recap: February Patient Education Event in Partnership with Penn Medicine
Read More about Recap: February Patient Education Event in Partnership with Penn Medicine
