Over the past 20 years, desmoid tumors have become a popular topic of research in rare diseases.
Below are desmoid tumor posters, abstracts and presentations which have been accepted at international conferences. (Please note that this is not a comprehensive list.)
For more published desmoid tumor research, please visit our Published Research page.
Conference Posters and Abstracts
2024 | ESMO Sarcoma and Rare Cancers Congress
45P “The Patient Voices: Revealing the Challenges Faced by Persons with Desmoid Tumors in a Middle-Income Country”
Author: Carolina Maria de Menezes Chaves, Desmoid Tumor Brazilian Association - Desmoide Brasil, São Paulo, SP, Brazil
Co-Author: Livia Prudente Barbieri MD, Desmoid Tumor Brazilian Association - Desmoide Brasil, São Paulo, SP, Brazil
Co-Author: Bruna Bianca Lopes David MD, epartment of Medicine, Division of Oncology, Brazilian National Cancer Institute, Rio De Janeiro, RJ, Brazil: Oncoclinicas Group. Rio de Janeiro. RJ, Brasil
Co-Author: Celso Abdon Lopes de Mello MD, PhD, Sarcoma Reference Center, A.C. Camargo Cancer Center, São Paulo, SP. Brazil
Co-Author: Fernando Campos MD, Sarcoma Reference Center, A.C. Camargo Cancer Center, São Paulo, SP. Brazil
Co-Author: Georgia Garofalo Mounssef, Desmoid Tumor Brazilian Association - Desmoide Brasil, São Paulo, SP, Brazil
Co-Author: Philippos Apolinario Costa MD, Department of Medicine, Division of Oncology, Yale School of Medicine
2024 | ESMO Sarcoma and Rare Cancers Congress
Impact of Nirogacestat on Patient-Reported Outcomes in Adults with Desmoid Tumor with a Best Overall Response of Stable Disease: Post Hoc Analysis fromThe DeFi Study
Author: Silvia Stacchiotti, et al (Complete author information is listed on presentation.)
2024 | ESMO Sarcoma and Rare Cancers Congress
Treatment Landscape for Desmoid Tumors: Desmoid Tumor Research Foundation Natural History Study
Author: Kelly Mercier, PhD - Desmoid Tumor Research Foundation, Duke University
Co-Author: Shengfan Zhou, MS - SpringWorks Therapeutics, Inc.
Co-Author: Ana Oton, MD - SpringWorks Therapeutics, Inc.
Co-Author: Timothy Bell, MHA - SpringWorks Therapeutics, Inc.
Co-Author: Lynne Hernandez, BA - Desmoid Tumor Research Foundation
Presenter & Co-Author: Amanda Lucas, BS - Desmoid Tumor Research Foundation
2024 | ESMO Sarcoma and Rare Cancers Congress
Impact of Desmoid Tumors on Patients’ Quality of Life: Desmoid Tumor Research Foundation Natural History Study
Author: Kelly Mercier, PhD - Desmoid Tumor Research Foundation, Duke University
Co-Author: Shengfan Zhou, MS - SpringWorks Therapeutics, Inc.
Co-Author: Brad Tumminello, PharmD - SpringWorks Therapeutics, Inc.
Co-Author: Timothy Bell, MHA - SpringWorks Therapeutics, Inc.
Co-Author: Lynne Hernandez, BA - Desmoid Tumor Research Foundation
Presenter & Co-Author: Amanda Lucas, BS - Desmoid Tumor Research Foundation
2023 | CTOS Annual Meeting
INVESTIGATING THE ROLE OF LIQUID BIOPSY IN DESMOID FIBROMATOSIS DURING ACTIVE SURVEILLANCE
Author: Laura Bergamaschi, MSc (she/her/hers) – Fondazione IRCCS Istituto Nazionale dei Tumori, Milano
Co-Author: Marta Zorza, n/a – Fondazione IRCCS Istituto Nazionale dei Tumori
Co-Author: Francesca Rini, n/a – Fondazione IRCCS Istituto Nazionale dei Tumori
Co-Author: Federica Perrone – Fondazione IRCCS Istituto Nazionale dei Tumori
Co-Author: licia Rivoltini, MD, PhD – Fondazione IRCCS Istituto Nazionale dei Tumori
Co-Author: Alessandro Gronchi, MD, FSSO (he/him/his) – Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Co-Author: Sandro Pasquali, MD, PhD – Fondazione IRCCS Istituto Nazionale dei Tumori
Co-Author: Viviana Vallacchi, PhD – Fondazione IRCCS Istituto Nazionale dei Tumori
Presenter: Chiara Colombo, MD – Department of Surgery, Sarcoma Service, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
2023 | CTOS Annual Meeting
PDGFRβ AND C-ABL ACTIVATION ASSOCIATE WITH OUTCOME AND RESPONSE TO SORAFENIB IN DESMOID PATIENTS TREATED ON THE PHASE III ALLIANCE A091105 TRIAL
Co-Author: Jia Hu, PhD – Memorial Sloan Kettering Cancer Center
Co-Author: Meera Hameed, MD – Memorial Sloan Kettering Cancer Center
Co-Author: Narasimhan Agaram, MBBS – Memorial Sloan Kettering Cancer Center
Co-Author: Karissa Whiting, MS – Memorial Sloan Kettering Cancer Center
Co-Author: Li-Xuan Qin, PhD (she/her/hers) – Memorial Sloan Kettering Cancer Center
Co-Author: Anthony M. Villano, MD (he/him/his) – Fox Chase Cancer Center
Co-Author: Rachael O’Connor, BS – Memorial Sloan Kettering Cancer Center
Co-Author: Yuliy Rozenberg, PhD – Memorial Sloan Kettering Cancer Center
Co-Author: Sonia Cohen, MD – Memorial Sloan Kettering Cancer Center
Co-Author: Katherine Prendergast, MD – Memorial Sloan Kettering Cancer Center
Co-Author: Richard White, MD – Atrium Health
Co-Author: Mitchell Posner, MD – University of Chicago
Co-Author: Nicholas Socci, PhD – Memorial Sloan Kettering Cancer Center
Co-Author: Samuel Singer, MD, FACS – Memorial Sloan Kettering Cancer Center
Co-Author: Mrinal Gounder, MD – Memorial Sloan Kettering Cancer Center
Author: Aimee M. Crago, MD, PhD, FACS (she/her/hers) – Memorial Sloan Kettering Cancer Center
2023 | CTOS Annual Meeting
(P14) PERCUTANEOUS CRYOABLATION OF PROGRESSING EXTRA-ABDOMINAL DESMOID TUMOURS
Andrea Vanzulli, MD – Università degli Studi di Milano
Lucilla V. Sciacqua, MD – Università degli Studi di Milano
Tommaso Cascella, MD – Fondazione IRCCS Istituto Nazionale dei Tumori
Carlo Spreafico, M.D. – Fondazione IRCCS Istituto Nazionale dei Tumori
Chiara Colombo, MD – Department of Surgery, Sarcoma Service, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Elena Palassini, N/A, MD – Department of Medical Oncology 2, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy
Alessandro Gronchi, MD, FSSO – Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Carlo Morosi, MD – Department of Radiology, Fondazione IRCSS Istituto Nazionale Tumori, Milan, Italy
2023 | CTOS Annual Meeting
(P219) ELECTIVE DISCONTINUATION OF SORAFENIB TREATMENT IN DESMOID TUMORS: A RETROSPECTIVE ANALYSIS WITH IMPLICATIONS FOR CLINICAL PRACTICE
Nikita Shah, M.D. – Northwestern Memorial Hospital
Ayra Faruqi, MD – Northwestern Medicine
Borislav Alexiev, M.D. – Northwestern Memorial Hospital
John Hayes, M.D. – Northwestern Memorial Hospital
Susan Abbinanti, M.D. – Northwestern Memorial Hospital
Fahad Faruqi, M.D., M.P.H – Northwestern Medicine
Akhil Chawla, MD – Northwestern Memorial Hospital
Terrance Peabody, M.D. – Northwestern Memorial Hospital
Samer Attar, M.D. – Northwestern Memorial Hospital
Jeff Wayne, M.D. – Northwestern Memorial Hospital
Seth Pollack, MD – Robert H. Lurie Comprehensive Cancer Center of Northwestern University
Pedro Viveiros, MD – Northwestern University
Vinai Gondi, M.D. – Northwestern Memorial Hospital
2023 | CTOS Annual Meeting
(P221) EARLY RESULTS IN NOVEL USE OF CONTRAST-ENHANCED SUSCEPTIBILITY-WEIGHTED IMAGING IN THE ASSESSMENT OF RESPONSE AND PROGRESSION IN DESMOID FIBROMATOSIS: PILOT STUDY IN A SPECIALIZED CANCER INSTITUTION
Raul F. Valenzuela, M.D – MD Anderson Cancer Center
Behrang Amini, M.D, PhD – MD Anderson Cancer Center
Elvis Duran Sierra, PhD – MD Anderson Cancer Center
Mathew Antony, M.D – MD Anderson Cancer center
Colleen Costelloe, M.D – MD Anderson Cancer center
John E. Madewell, M.D – MD Anderson Cancer Center
William A. Murphy, Jr., M.D – M.D Anderson Cancer center
2023 | CTOS Annual Meeting
(P158) SORAFENIB OR ANTHRACYCLINE-BASED CHEMOTHERAPY IN ADULT PATIENTS WITH PROGRESSIVE DESMOID TUMORS
Philippos A. Costa, MD – Yale University
Arshia Arora, MD – University of Miami
Nipat Chuleerarux, MD – University of Miami
Leticia Campoverde, MD – University of Miami
Yanelys Fernandez, MD – University of Miami
Baylee Bakkila, BS, BA – Yale University
Heng Tan, MD – University of Miami
Priscila Barreto coelho, MD – University of Miami
Andrea P. Espejo-Freire, MD – University of Minnesota
Gina Z. D’Amato, MD – Sylvester Comprehensive Cancer Center
Emily Jonczak, MD – Sylvester Comprehensive Cancer Center / University of Miami Hospital and Clinics
Ty Subhawong, MD – University of Miami
Hari Deshpande, MD – Yale University
Kelly Olino, MD – Yale University
Jonathan Trent, MD – University of Miami
2023 | CTOS Annual Meeting
(P342) THE EVALUATION AND OUTCOMES OF MESENTERIC AND INTRA-ABDOMINAL DESMOIDS: A TARPSWG STUDY
Tristan Wild, BMSc – University of Ottawa
Kerianne Boulva, MD – The Centre hospitalier de l’Université de Montréal (CHUM)
Francesco Barretta, PhD – Fondazione IRCCS IStituto Nazionale dei Tumori, Milan, Italy
Kenneth Cardona, MD – Department of Surgery, Winship Cancer Institute, Emory University
Elena Palassini, N/A, MD – Department of Medical Oncology 2, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy
Peter Hohenberger, N/A, n/a – Sarcoma Unit, Department of Surgery and Mannheim Cancer Center, University Medical Center Mannheim, University of Heidelberg, Mannheim,Germany
Shintaro Iwata, MD – National Cancer Center Hospital
Rebecca Gladdy, MD, PhD – Mount Sinai Hospital, Sinai Health System, and Princess Margaret Cancer Centre Toronto, ON, Canada Lunenfeld-Tanenbaum Research Institute, Sinai Health System, Toronto, ON, Canada University of Toronto, Toronto, ON
Christina V. Angeles, MD – Department of Surgery, Rogel Cancer Center, University of Michigan
Neha Goel, MD – Miami University
Pawel Sobczuk, MD PhD – Maria Sklodowska-Curie National Research Institute of Oncology
Samuel Ford, MD, PhD – Department of Surgery, University Hospitals Birmingham
Greg Sigler, MD – University of Ottawa
Dan Blazer, III, MD – Duke University
Winan J. van Houdt, MD, PhD, MS – Netherlands Cancer Institute/ Antoni van Leeuwenhoek
Stephanie H. Greco, MD – Fox Chase Cancer Center
Fabian Johnston, MD, MHS – Johns Hopkins
Vittorio Lorenzo Quagliuolo, MD – IRCCS Humanitas Research Hospital
Samuel Aguiar, MD – A.C. Camargo
Elisabetta Pennacchioli, MD – Division of Melanoma, Sarcoma, and Rare Tumor Surgery, European Institute of Oncology
Dagmar Adámková Krákorová, MD, PhD – Masaryk Memorial Cancer Institute Brno, Czech Republic
Sameer Rastogi, DM – Department of medical oncology, Dr BRAIRCH, All India Institute of Medical Sciences
Chandrajit P. Raut, MD, MSc – Brigham and Women’s Hospital, Dana-Farber Cancer Institute, Harvard Medical School, Boston
Hayden Snow, MD – Peter MacCallum Cancer Centre
Palma Dileo, MD – University College Hospital
Guy Lahat, MD – Tel Aviv Sourasky Medical Center
Jos A. van der Hage, MD PhD – Leiden University Medical Center
Attila Kollar, MD – Department of Medical Oncology, University Hospital Bern, Inselspital, Switzerland
Alessandro Gronchi, MD, FSSO – Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Carolyn Nessim, MD – Department of Surgery, University of Ottawa
2023 | CTOS Annual Meeting
(P554) FIVE-YEAR OUTCOMES OF A NATIONWIDE PROSPECTIVE CLINICAL TRIAL ON ACTIVE SURVEILLENCE IN PATIENTS WITH NON-INTRAABDOMINAL DESMOID-TYPE FIBROMATOSIS
Stefanie N. Hakkesteegt, MD – Erasmus Medical Center
Anne-Rose W. Schut, MD – Erasmus Medical Center
Milea J.M. Timbergen, MD, PhD – Erasmus Medical Center
Danique L.M. Van Broekhoven, MD, PhD – Erasmus Medical Center
Thijs van Dalen, MD, PhD – Erasmus Medical Center
Winan J. van Houdt, MD, PhD, MS – Netherlands Cancer Institute/ Antoni van Leeuwenhoek
Han Bonenkamp, Dr. – Radboud university medical center
Stefan Sleijfer, MD, PhD – Erasmus Medical Center
Dirk J. Grünhagen, MD, PhD – Erasmus Medical Center
Cornelis Verhoef, MD, PhD – Erasmus Medical Center
2023 | CTOS Annual Meeting
(P549) DOUBLE-BLIND PLACEBO-CONTROLLED TRIAL OF AL102 FOR TREATMENT OF PROGRESSING DESMOID TUMORS: THE RINGSIDE PHASE 3 STUDY DESIGN
Piotr Rutkowski, MD, PhD – Maria Sklodowska-Curie National Research Institute of Oncology in Warsaw, Department of Soft Tissue/Bone Sarcoma and Melanoma
Mrinal Gounder, MD – Memorial Sloan Kettering Cancer Center
Robin L. Jones, BSc, MB BS, MRCP, MD – Sarcoma Unit, The Royal Marsden NHS Foundation Trust and Institute of Cancer Research
Jonathan Y. Yovell, MD – Ayala Pharmaceuticals
Gary Gordon, MD, PhD – Ayala Pharmaceuticals
Andres A. Gutierrez, MD, PhD – Ayala Pharmaceuticals
Bernd Kasper, MD, PhD – University of Heidelberg, Mannheim University Medical Center
2023 | CTOS Annual Meeting
(P395) TARGETING CD44-MEDIATED IRON ENDOCYTOSIS IN DESMOID FIBROMATOSIS
Stéphanie Solier, PharmD-PhD – Institut Curie
Olivier Delattre, PhD – Institut Curie
Pierre Gestraud, PhD – Institut Curie
Chloé Quignot, PhD – Institut Curie
Sylvie Bonvalot, MD, PhD – Institut Curie
Dimitri Tzanis, MD, PhD – Institut Curie
Sophie El Zein, MD – Institut Curie
Laetitia Lesage, n/a – Institut Curie
Joshua J Waterfall, PhD – Institut Curie
Raphaël Rodriguez, PhD – Institut Curie
Sarah Watson, MD, PhD – Institut Curie
2023 | CTOS Annual Meeting
(P333) SYSTEMIC TREATMENT IN INTRA-ABDOMINAL DESMOID-TYPE FIBROMATOSIS: A SINGLE INSTITUTION RETROSPECTIVE CASE SERIES ANALYSIS
Ilaria Pellegrini, MD – Department of Medical Oncology 2, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Francesca Ligorio, MD – Department of Medical Oncology 1, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Chiara Colombo, MD – Department of Surgery, Sarcoma Service, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Marco Fiore, MD, FEBS, FACS – Department of Surgery, Sarcoma Service, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Salvatore Provenzano, MD – Mesenchymal and rare cancer Medical Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Carlo Morosi, MD – Department of Radiology, Fondazione IRCSS Istituto Nazionale Tumori, Milan, Italy
Ciriaco Buonomenna, MD – Department of Radiology, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Marco Vitellaro, MD – Department of Surgery, Hereditary Digestive Tract Tumors Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Paola Collini, MD – Department of Advanced Diagnostics , Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Alessandro Gronchi, MD, FSSO – Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Paolo Giovanni G. Casali, MD – Department of Medical Oncology 2, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy
Elena Palassini, N/A, MD – Department of Medical Oncology 2, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy
2023 | CTOS Annual Meeting
(P241) ASSOCIATION OF ADC VALUES WITH DESMOID TUMOR SHRINKAGE DURING ACTIVE OBSERVATION
Masato Sugawara, MD, PhD – Yamagata University Faculty of Medicine, Department of Orthopaedic Surgery
Daiichiro Takahara, M.D. – Yamagata University Faculty of Medicine, Department of Orthopaedic Surgery
Chiomi Shirai, M.D. – Yamagata University Faculty of Medicine, Department of Orthopaedic Surgery
Michiaki Takagi, M.D., Ph.D. – Yamagata University Faculty of Medicine, Department of Orthopaedic Surge
2023 | CTOS Annual Meeting
(P12) MULTIFOCAL AND DISSEMINATED SPORADIC DESMOID TUMOUR OF THE EXTREMITIES: A SPECIAL CHALLENGE
Franka Menge – Sarcoma Unit, Department of Surgery and Mannheim Cancer Center, University Medical Center Mannheim, University of Heidelberg, Mannheim,Germany
Peter Hohenberger, N/A, n/a – Sarcoma Unit, Department of Surgery and Mannheim Cancer Center, University Medical Center Mannheim, University of Heidelberg, Mannheim,Germany
Bernd Kasper, MD, PhD – University of Heidelberg, Mannheim University Medical Center
Eva Wardelmann, MD – Institute of Pathology,.University Hospital Muenster
Florian Haller, N/A, n/a – Department of Pathology Friedrich- Alexander- Universität Erlangen-Nürnberg, Erlangen
Jens Jakob, MD – University Medical Center Mannheim, University of Heidelberg
2023 | CTOS Annual Meeting
IMPACT OF NIROGACESTAT ON FUNCTIONAL STATUS IN PATIENTS WITH DESMOID TUMORS: RESULTS FROM THE PHASE 3 DEFI STUDY
Bernd Kasper, MD, PhD – University of Heidelberg, Mannheim University Medical Center
Mrinal Gounder, MD – Memorial Sloan Kettering Cancer Center
Ravin Ratan, MD – The University of Texas MD Anderson Cancer Center
Timothy Bell, MHA – SpringWorks Therapeutics, Inc.
Cristina Ivanescu, PhD – IQVIA
James Marcus, PhD – IQVIA
Allison Lim, PharmD – SpringWorks Therapeutics Inc
Sandra Goble, MS – SpringWorks Therapeutics Inc
Sunny Cho, PharmD – SpringWorks Therapeutics Inc
Thierry Alcindor, MS, MSc – McGill University
Winette van der Graaf, Prof. Dr. – Netherlands Cancer Institute/ Antoni van Leeuwenhoek
Patrick Schöffski, MD, MPH – Department of General Medical Oncology, University Hospitals Leuven, and Laboratory of Experimental Oncology, KU Leuven, Leuven Cancer Institute, Leuven, Belgium
Breelyn A. Wilky, MD – University of Colorado Cancer Center charlotte Benson, MBChB, FRCP – The Royal Marsden Hospital
Nam Bui, MD – Stanford University
Rashmi Chugh, MD – University of Michigan Rogel Cancer Center
Shivaani Kummar, MD, FACP – Oregon Health & Science University
Richard F. Riedel, MD – Duke Cancer Institute
First Place Winner in the CTOS poster category “Improving Sarcoma Care Globally”
2023 | CTOS Annual Meeting
(P146) CHARACTERIZING THE PATIENT JOURNEY TO A DIAGNOSIS OF DESMOID TUMOR: DESMOID TUMOR RESEARCH FOUNDATION NATURAL HISTORY STUDY
Shengfan Zhou, MS – SpringWorks Therapeutics Inc.
Amanda Lucas, BS – Desmoid Tumor Research Foundation
Lynne Hernandez, BA – Desmoid Tumor Research Foundation
Timothy Bell, MHA – SpringWorks Therapeutics, Inc.
Mitchell Allen – SpringWorks Therapeutics Inc.
Sandra Goble, MS – SpringWorks Therapeutics Inc.
Kelly Mercier, PhD – Desmoid Tumor Research Foundation