There is nothing better than talking with someone else who just “gets it.” If you’ve been diagnosed with a desmoid tumor or Familial Adenomatous Polyposis (or both), it’s easy to connect with your community through online support groups and local patient advocacy organizations. You’ll be welcomed with open arms! (Please note that these groups are not affiliated with the DTRF.)
If you run a patient group in your country, the DTRF invites you to join our annual Virtual Global Desmoid Tumor Roundtable meeting held in the fall annually for leaders of all groups around the world. Email us at email@example.com for more information.