Help Us Raise #DesmoidAwareness by Submitting Your Story
Awareness is a critical pillar of progress. Educating the medical community can reduce misdiagnosis of desmoid tumors, which can lead to better care and treatment. Educating the general public can help patients find more support among family, friends, and their local communities. Patient and caregiver stories play an especially important role in this effort. As more people become familiar with the desmoid tumor patient experience, we can continue to build a strong extended network to support patients and research.
Following the guidelines for each field below, tell us about your journey as a patient or caregiver with desmoid tumors. We also ask for photos and an optional 1-minute video to support your story. We may share all or part of your story on our public channels to help raise awareness.