Desmoid Tumor Research Foundation

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The DTRF Patient Meeting and RFA 5K on September 21 & 22

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International Research Workshop for Medical Professionals

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FOR PATIENTS

FOR PHYSICIANS

Stay tuned for updates on pediatric nirogacestat clinical trial.

Adult study here.

2019 Western Regional Patient Meeting

ASCO ranks Phase III Sorafenib Study as an “Advance of the Year”

Phase I Tegavivint Trial Opens

2018 DTRF Patient Meeting Presentations

Int’l DTRF Desmoid Tumor Research Workshop

DFC- Desmoid Tumour Foundation of Canada

Announcements

Stay tuned for updates on the pediatric nirogacestat clinical trial

Adult study here.

New England Journal of Medicine Article “Sorafenib for Advanced and Refractory Desmoid Tumors” and DTRF Press Release

FDA Approves Fast Track Designation for NirogacestatIn anticipation of the drug’s phase III trial

Tegavivint Trial LaunchesIterion Therapeutics, formerly known as Beta Cat Pharmaceuticals, today announced that it has initiated a multi-center Phase I clinical study of Tegavivint

Abstract for Phase II Pazopanib TrialDT are a group of locally aggressive tumors of fibroblastic origin that can lead

ASCO Presentation for Phase II Pazopanib TrialPazopanib versus IV methotrexate/vinblastine in
adult patients

DTRF’s 2018 Grant AwardsGerlinde Wernig, MD, Assistant Professor of Pathology, Standford Univesity School

2018 DTRF Patient Meeting Presentations

Int’l DTRF Desmoid Tumor Research WorkshopSave the date for the Fifth Annual DTRF International Desmoid Tumor Research Workshop

Desmoid Tumour Foundation of CanadaThey donated $85,000 to DTRF research initiatives in 2018!

Click here for archive of UPDATES

On Saturday, September 22nd, in Philadelphia, PA, DTRF held its Annual Patient Meeting. This event educates and empowers patients and caregivers by teaching them about the latest research & treatment options available. Learn more »

Make a difference in the lives of many by joining us at one of our fundraising events this year. Or better yet, organize one of your own! The Desmoid Tumour Foundation of Canada’s Patient Networking and Fundraising Evening took place in May and we just hosted our Annual Golf Classic! Lap4Life will take place in mid-June. Events are hosted by patients, caregivers and others committed to a cure for desmoid tumors. Learn more »

DTRF encourages you to join the DTRF Patient Registry in order to facilitate research efforts. With access to your experience as a patient, researchers will be able to continue learning and making new discoveries in the field of desmoid tumors. If you have ever had a desmoid tumor, you can participate. Learn more »

Because desmoid tumors are so rare, they are often misunderstood. Review commonly asked questions about classification, pregnancy, recurrence and mutation types. This is a great resource for newly-diagnosed patients.

DTRF held our Second Western Regional Patient Meeting on Saturday, April 13th in South San Francisco, CA. This meeting was jointly sponsored by DTRF and Stanford Sarcoma Program. Experts discussed the latest treatment options and attendees learned firsthand what DTRF is doing to advocate for research and provide resources to support patients. More details »

The DTRF and desmoid tumors have been highlighted in the media creating greater awareness of the disease. Patients, physicians and board members have played a key role in this effort.