On Saturday, September 22nd, in Philadelphia, PA, DTRF held its Annual Patient Meeting. This event educates and empowers patients and caregivers by teaching them about the latest research & treatment options available. Learn more »
Join the DTRF Patient Registry
DTRF encourages you to join the DTRF Patient Registry in order to facilitate research efforts. With access to your experience as a patient, researchers will be able to continue learning and making new discoveries in the field of desmoid tumors. If you have ever had a desmoid tumor, you can participate. Learn more »
Tissue Donation
If you have an upcoming desmoid tumor surgery, you can potentially contribute to furthering research on the disease. The DTRF is partnering with Pattern.org to send tissue samples to the Broad Institute of MIT and Harvard (www.broadinstitute.org) for inclusion in their Cancer Cell Line Project. Learn more »
Frequently Asked Questions
Because desmoid tumors are so rare, they are often misunderstood. Review commonly asked questions about classification, pregnancy, recurrence and mutation types. This is a great resource for newly-diagnosed patients.
ANNUAL PATIENT MEETING
DTRF’s Annual Patient Meeting took place in September 2017.Learn more »
NEWLY DIAGNOSED?
Being diagnosed with desmoid tumors can be frightening. You’re not alone. Learn more »
PATIENT REGISTRY
If you have ever had a desmoid tumor, you are eligible to participate in the DTRF Desmoid Tumor Registry. Learn more »
DONATING TISSUE
Pattern.org enables patients to directly donate tissue samples to research projects. Learn more »
DTRF GOES WEST
The Western Regional Patient Meeting on April 28th in Salt Lake City was a great success! Learn more »
Running for Answers
Thank you for joining us for the 9th Annual Running for Answers 5K and Kids’ Fun Run on Sunday, September 23rd!
