Desmoid Tumor Research Foundation

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The DTRF Patient Meeting and RFA 5K on September 22 & 23
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International Research Workshop for Medical Professionals

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FOR PATIENTS

FOR PHYSICIANS

2018 DTRF Patient Meeting Presentations

Int’l DTRF Desmoid Tumor Research Workshop

Interim Results from Phase III Sorafenib Trial

Upcoming Clinical Trials for Tegavivint and Nirogacestat

Western Regional Patient Meeting

DFC- Desmoid Tumour Foundation of Canada

Sorafenib Extends PFS in Desmoid Tumors

Abstract for Phase II Pazopanib Trial

ASCO Presentation for Phase II Pazopanib Trial

DTRF’s 2018 Grant Awards

Upcoming Clinical Trials

2018 DTRF Patient Meeting Presentations

Tissue Donation

Int’l DTRF Desmoid Tumor Research Workshop

Desmoid Tumour Foundation of Canada

Click here for archive of UPDATES

On Saturday, September 22nd, in Philadelphia, PA, DTRF will hold its Annual Patient Meeting. This event educates and empowers patients and caregivers by teaching them about the latest research & treatment options available. Join us for the meeting on Saturday followed by Running for Answers 5K & Kids’ Fun Run on Sunday. Learn more »

DTRF’s inaugural Western Regional Patient Meeting on Saturday, April 28th in Salt Lake City, Utah, was a great success! Patients and caregivers connected and enjoyed an afternoon of informative lectures. Read more »

DTRF encourages you to join the DTRF Patient Registry in order to facilitate research efforts. With access to your experience as a patient, researchers will be able to continue learning and making new discoveries in the field of desmoid tumors. If you have ever had a desmoid tumor, you can participate. Learn more »

If you have an upcoming desmoid tumor surgery, you can potentially contribute to furthering research on the disease. The DTRF is partnering with Pattern.org to send tissue samples to the Broad Institute of MIT and Harvard (www.broadinstitute.org) for inclusion in their Cancer Cell Line Project. Learn more »

Because desmoid tumors are so rare, they are often misunderstood. Review commonly asked questions about classification, pregnancy, recurrence and mutation types. This is a great resource for newly-diagnosed patients.