Desmoid Tumor Research Foundation

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ANNOUNCEMENTS

Breelyn A. Wilky, MD, Discusses Considerations for Desmoid Tumor Patients During the COVID-19 Pandemic

Additional COVID-19 Related Resources

First-of-its-kind global consensus paper on desmoid tumor treatment published!

Learn more.

To Be Announced: Pediatric clinical trial for nirogacestat. Learn about adult clinical trial.

Tegavivint Trial LaunchesIterion Therapeutics has initiated a multi-center Phase I clinical study of Tegavivint

New England Journal of Medicine Article “Sorafenib for Advanced and Refractory Desmoid Tumors” and DTRF Press Release

Paper published on DTRF’s PRO Tool

ASCO Presentation for Phase II Pazopanib TrialPazopanib versus IV methotrexate/vinblastine in
adult patients

DTRF’s 2019 Grant AwardsGerlinde Wernig, MD, Assistant Professor of Pathology, Standford Univesity School

2019 DTRF Patient Meeting Presentations

Int’l DTRF Desmoid Tumor Research WorkshopSave the date for the Sept 25, 2020 DTRF International Desmoid Tumor Research Workshop

Desmoid Tumour Foundation of CanadaThey donated $100,000 to DTRF research initiatives in 2019!

Click here for archive of UPDATES

On Saturday, Sept. 21st, in Philadelphia, PA, DTRF held its Annual Patient Meeting. This event educates and empowers patients and caregivers by teaching them about the latest research & treatment options available. Save the date for our 2020 events on Sept. 26th & 27th! Learn more »

Make a difference in the lives of many by joining us at one of our fundraising events. Or better yet, organize one of your own! Events are hosted by patients, caregivers and others committed to a cure for desmoid tumors. Learn more »

DTRF encourages you to join the DTRF Patient Registry in order to facilitate research efforts. With access to your experience as a patient, researchers will be able to continue learning and making new discoveries in the field of desmoid tumors. If you have ever had a desmoid tumor, you can participate.

Published paper »

Learn more »

Because desmoid tumors are so rare, they are often misunderstood. Review commonly asked questions about classification, pregnancy, recurrence and mutation types. This is a great resource for newly-diagnosed patients.

The DTRF and desmoid tumors have been highlighted in the media creating greater awareness of the disease. Patients, physicians and board members have played a key role in this effort.