On Saturday, September 22nd, in Philadelphia, PA, DTRF held its Annual Patient Meeting. This event educates and empowers patients and caregivers by teaching them about the latest research & treatment options available. Learn more »
Desmoid Tumor Awareness Month
This September, The Desmoid Tumor Research Foundation is building upon the work of our community by initiating a world-wide annual campaign to create awareness for desmoid tumors. Join us as we designate every September, from this year forward, as Desmoid Tumor Awareness Month. Wherever you are on the globe, we encourage you to participate and help us raise #DesmoidAwareness! Explore ways to celebrate, educate, and raise funds for a cure this September.Learn more »
Make a difference in the lives of many by joining us at one of our fundraising events this year. Or better yet, organize one of your own! The Desmoid Tumour Foundation of Canada’s Patient Networking and Fundraising Evening took place in May and our Annual Golf Classic and Lap4Life took place in June! Events are hosted by patients, caregivers and others committed to a cure for desmoid tumors. Learn more »
Join the DTRF Patient Registry
DTRF encourages you to join the DTRF Patient Registry in order to facilitate research efforts. With access to your experience as a patient, researchers will be able to continue learning and making new discoveries in the field of desmoid tumors. If you have ever had a desmoid tumor, you can participate. Learn more »
Frequently Asked Questions
Because desmoid tumors are so rare, they are often misunderstood. Review commonly asked questions about classification, pregnancy, recurrence and mutation types. This is a great resource for newly-diagnosed patients.
Western Regional Patient Meeting
DTRF held our Second Western Regional Patient Meeting on Saturday, April 13th in South San Francisco, CA. This meeting was jointly sponsored by DTRF and Stanford Sarcoma Program. Experts discussed the latest treatment options and attendees learned firsthand what DTRF is doing to advocate for research and provide resources to support patients. More details »
Desmoid Tumors in the News
The DTRF and desmoid tumors have been highlighted in the media creating greater awareness of the disease. Patients, physicians and board members have played a key role in this effort.
ANNUAL PATIENT MEETING
DTRF’s Annual Patient Meeting took place in September 2018.Learn more »
DESMOID TUMOR AWARENESS MONTH
Join us as we designate every September, from this year forward, as Desmoid Tumor Awareness Month. Learn more »
Being diagnosed with desmoid tumors can be frightening. You’re not alone. Learn more »
If you have ever had a desmoid tumor, you are eligible to participate in the DTRF Desmoid Tumor Registry. Learn more »
IN THE MEDIA
The DTRF and desmoid tumors have been highlighted in the media creating greater awareness of the disease. Learn more »
Running for Answers
Register today for the 10th Annual Running for Answers 5K and Kids’ Fun Run on Sunday, September 22nd!