On Saturday, Sept. 21st, in Philadelphia, PA, DTRF held its Annual Patient Meeting. This event educates and empowers patients and caregivers by teaching them about the latest research & treatment options available. Save the date for our 2020 events on Sept. 26th & 27th! Learn more »
Make a difference in the lives of many by joining us at one of our fundraising events. Or better yet, organize one of your own! Events are hosted by patients, caregivers and others committed to a cure for desmoid tumors. Learn more »
Join the DTRF Patient Registry
DTRF encourages you to join the DTRF Patient Registry in order to facilitate research efforts. With access to your experience as a patient, researchers will be able to continue learning and making new discoveries in the field of desmoid tumors. If you have ever had a desmoid tumor, you can participate.
Because desmoid tumors are so rare, they are often misunderstood. Review commonly asked questions about classification, pregnancy, recurrence and mutation types. This is a great resource for newly-diagnosed patients.
Regional Patient Meeting
Stay tuned for more information about our 2020 Regional Patient Meeting this spring! Experts will discuss the latest treatment options and attendees will learn firsthand what DTRF is doing to advocate for research and provide resources to support patients. More details »
Desmoid Tumors in the News
The DTRF and desmoid tumors have been highlighted in the media creating greater awareness of the disease. Patients, physicians and board members have played a key role in this effort.
ANNUAL PATIENT MEETING
DTRF’s Annual Patient Meeting took place in September 2019.Learn more »