Desmoid Tumor Research Foundation

DTRF Heads West!

Sign up for our Second Western Regional Patient Meeting on Saturday, April 13th

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For the latest DTRF news sign up for one of our newsletters to stay informed.

FOR PATIENTS

FOR PHYSICIANS

ASCO ranks Phase III Sorafenib Study as an “Advance of the Year”

2019 Western Regional Patient Meeting

2018 DTRF Patient Meeting Presentations

Int’l DTRF Desmoid Tumor Research Workshop

Upcoming Clinical Trials for Tegavivint and Nirogacestat

DFC- Desmoid Tumour Foundation of Canada

Announcements

ASCO ranks Phase III Sorafenib Study as an “Advance of the Year”

New England Journal of Medicine Article “Sorafenib for Advanced and Refractory Desmoid Tumors” and DTRF Press Release

FDA Approves Fast Track Designation for NirogacestatIn anticipation of the drug’s phase III trial

Tegavivint Trial LaunchesIterion Therapeutics, formerly known as Beta Cat Pharmaceuticals, today announced that it has initiated a multi-center Phase I clinical study of Tegavivint

Abstract for Phase II Pazopanib TrialDT are a group of locally aggressive tumors of fibroblastic origin that can lead

ASCO Presentation for Phase II Pazopanib TrialPazopanib versus IV methotrexate/vinblastine in
adult patients

DTRF’s 2018 Grant AwardsGerlinde Wernig, MD, Assistant Professor of Pathology, Standford Univesity School

Upcoming Clinical TrialsVisit our clinical trials page to find information on all desmoid tumor clinical trials.

2018 DTRF Patient Meeting Presentations

Int’l DTRF Desmoid Tumor Research WorkshopSave the date for the Fifth Annual DTRF International Desmoid Tumor Research Workshop

Desmoid Tumour Foundation of CanadaThey donated $85,000 to DTRF research initiatives in 2018!

Click here for archive of UPDATES

DTRF will hold our Second Western Regional Patient Meeting on Saturday, April 13th in South San Francisco, CA. This meeting is jointly sponsored by DTRF and Stanford Sarcoma Program. Experts will discuss the latest treatment options and you’ll learn firsthand what DTRF is doing to advocate for research and provide resources to support patients. More details »

Make a difference in the lives of many by joining us at one of our fundraising events this year. Or better yet, organize one of your own! Our Annual Golf Classic and Lap4Life will take place in June and The Desmoid Tumour Foundation of Canada’s Patient Networking and Fundraising Evening will happen this May. Events are hosted by patients, caregivers and others committed to a cure for desmoid tumors. Learn more »

On Saturday, September 22nd, in Philadelphia, PA, DTRF held its Annual Patient Meeting. This event educates and empowers patients and caregivers by teaching them about the latest research & treatment options available. Learn more »

DTRF encourages you to join the DTRF Patient Registry in order to facilitate research efforts. With access to your experience as a patient, researchers will be able to continue learning and making new discoveries in the field of desmoid tumors. If you have ever had a desmoid tumor, you can participate. Learn more »

Because desmoid tumors are so rare, they are often misunderstood. Review commonly asked questions about classification, pregnancy, recurrence and mutation types. This is a great resource for newly-diagnosed patients.

The DTRF and desmoid tumors have been highlighted in the media creating greater awareness of the disease. Patients, physicians and board members have played a key role in this effort.