Funded in part by DTRF, the Global Consensus Paper is the first international evidence-based consensus of its kind on the treatment of desmoid tumors. It answers critical questions regarding approach to treatment recommendations, types of treatments, and pain management. Learn more »
Together We Will Virtual Weekend
From September 25-27th, DTRF hosted the 2020 Together We Will Virtual Weekend, which included opportunities to connect with each other, empower ourselves through education about the latest research and treatment options available, and fund a cure through the RFA Virtual Challenge. Learn more »
2020 DTRF Int'l Research Workshop
On September 25th, DTRF hosted the seventh annual Int’l Research Workshop (VIRTUAL) as part of the Together We Will Virtual Weekend. Medical professionals were invited to join this forum to share research findings, develop new collaborations, bring new scientists into the research field, and work together on new innovations that will lead to new treatments. Learn more »
Memorializing Dr. Dina Lev
The DTRF Dr. Dina Lev New Investigator Memorial Research Grant is named in honor of Dina Chelouche Lev, M.D., an early leader in desmoid tumor research. Dr. Lev was one of the original recipients of research support from the Desmoid Tumor Research Foundation in 2007, starting a reciprocal relationship that continued until her untimely passing in 2020 at the age of 55. The award embodies Dr. Lev’s endless enthusiasm and tireless effort toward moving the science of desmoid tumors forward, as well as her commitment to the training of young surgeons and scientists interested in connective tissue tumor oncology, including desmoid disease. Learn more »
DTRF is funding a desmoid tumor research project at the Broad Institute of MIT and Harvard to learn more about the disease and potential treatments. In order to pilot new technologies on desmoid tumors, the Broad team needs to acquire additional fresh tissue samples. *You can help support this research by donating excess tumor tissue from an upcoming surgery.* Learn more »
Join the DTRF Patient Registry
DTRF encourages you to join the DTRF Patient Registry in order to facilitate research efforts. With access to your experience as a patient, researchers will be able to continue learning and making new discoveries in the field of desmoid tumors. If you have ever had a desmoid tumor, you can participate.
Because desmoid tumors are so rare, they are often misunderstood. Review commonly asked questions about classification, pregnancy, recurrence and mutation types. This is a great resource for newly-diagnosed patients.
Desmoid Tumors in the News
The DTRF and desmoid tumors have been highlighted in the media creating greater awareness of the disease. Patients, physicians and board members have played a key role in this effort.
2020 TOGETHER WE WILL VIRTUAL WEEKEND
DTRF’s Medical professionals, patients and caregivers joined us for our VIRTUAL weekend. Learn more »