The Desmoid Tumor Research Foundation

About DTRF

Our Team

The Desmoid Tumor Research Foundation’s critical work is powered by staff and volunteers who will stop at nothing to find more treatments and ultimately, a cure for desmoid tumors.

Join Our Team

Become a part of our daring and strong-willed team.

Join Our Team

Our Team

Jeanne Whiting, J.D.

Co-Founder/Executive Director Emeritus

Read Jeanne Whiting, J.D.'s Bio

Marlene Portnoy

Co-Founder/Special Projects/DTRF Board member

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Lynne Hernandez

Lynne Hernandez

Executive Director

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Debbie Nathan

Development Director

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Maggie Cameron

Communications Manager

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Kelly Mercier, PhD

Principal Investigator, The DTRF Patient Registry

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Mrinal Gounder, MD

Scientific Director

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Amanda L. Lucas

Associate, The DTRF Natural History Study

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Amanda Hoffman

Media/Marketing Advisor, ADH Communications Consulting

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Bill Lundgren

Graphic Design Advisor

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Philip Grand

Technical Advisor

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